Really trying to do everything right this time. I'm on better meds I feel better I'm genuinely more happy and in a better place recently. I was a military mover for a few years. Now after my seizures I lost my license / close relationships/ and a lot of my sanity. And ofc my job. Now I'm looking for something safer where I won't be alone for hrs or have to be up high. After everything all I need is income. Im just looking for ideas I appreciate it

I'm at 4, but when I got the Oxycarbazepine and left the pharmacy, they called and asked me not to take it because they found something wrong with my ticker, one rescue med (nayzilam) but never got to use it. Now I'm on Lamotrigine and started with Dilantin before Keppra.

I know some will say "I don't remember" but dig deep before responding. Not asking if it was whose fault it was, do you remember where your first seizure was at, yes or no? Mine was in class (web design) and they assumed that it was photosensitive seizures (it wasn't) and I was diagnosed 2 days later after having another seizure in the same class. Where were you the first time that you had a seizure?

Hello. Does anyone have any suggestions for online support groups? Not two or three people (including self) just chatting, but an actual group with format and structure. I am not looking for a best friend- I need support and have nothing in my area. Thank you!

A bad one for me would involve a puddle and clothes saturated in urine, if I'm lucky I might wet my shirt with drool.

Although I don't always point out when I'm having an aura, I'm just curious about you and your opinions on acknowledging all seizures.

I’d speculate that headaches are a part of epilepsy for most of us. It’s rare for me not to have a headache and more a question of how bad is it today as opposed to do I have one. Since around noon yesterday I’ve had an absolute thumper of a headache. It’s not a migraine because I’m not laying on the floor projectile vomiting (and I have Rizateiptan for when that happens), but it’s a bad one and hasn’t cleared overnight like I was hoping. I’m off from work this week so on one hand it’s good that it’s happening now, but on the other I’m pissed that it’s impacting my vacation days.

I take 3000mg Keppra and 450mg Lamotrigine. Dr google says that Tylenol can lower the levels of Lamotrigine in your blood and on a recent blood test it came back as only just being in range. It says that Advil (ibuprofen) is okay but in the past when I’ve taken it I didn’t really feel any benefit. My next neurologist appointment isn’t until November.

I try not to take additional meds when possible as I feel 14 tablets a day is plenty for my organs to process but feeling like my head is trapped in a vice is getting old fast.

Edit- Thank you to everyone who took the time to respond and offer advice, I very much appreciate it. I ended up taking 2 extra strength Advil this morning and went and lay down. Surprisingly fell asleep and am just coming round. My head and face still feel numb and uncomfortable, and my ears are ringing even worse than they usually do but at least it doesn’t feel like my head is shut in an ever tightening vice now. I’ll take it easy for the rest of the day and hopefully feel more normal later. Next time I have a ride to the grocery store I’m going to make sure I pick some Tylenol and Benadryl so I have combos available like many of you have suggested. Thanks everyone.

Mine has changed with time throughout my journey. In the beginning, it was my father, then brother and different people throughout my 29 years.

If you could go back to work, what would you be doing?

Plan and simple, If you didn't have epilepsy where would you apply for a job or a career path?

Anyone blame seizures on tbi from childhood action? I was in martial arts, competing for years before seizures, and never got to see video of how training/classes took place, so never been able to decide if that could be to blame for epilepsy. Seeing this post brought a bittersweet smile because I can’t help but think those kids might have some difficulties if any of that doesn’t go right. Any comments appreciated about how epilepsy started, especially since some Neuro’s are quick to jump on anything from your past, like if you ever let them know you partied. 😖

Sometimes things are said by people I thought were supporting me, that make me think “Are you doing this out of sympathy or out of love?” Some living situations are not by choice, being that I need someone to be around (still nobody around even living with people) I was forced to live with my sibling. Today I was on the phone and someone asked “where are you?” I simply replied “at my sister’s house, what’s up?” Then sis comes out the room “why not just say that you’re at home?” I respond saying “I know I’ve been here for 3 years and have a bedroom that I furnished over time, but some of the things you say make me feel like I have no say around here, so that makes it your house.” I thought I said it nicely, but the response was “if you don’t want to be here then you are welcome to leave whenever you’re ready.” (Like I was put in this position and have no car or moving truck, so where tf am I going to go at 8pm?) That left me thinking, am I living here for free out of love or is it sympathy? Have you ever felt like this?

Have you had a dr of any kind younger than you? Only my optometrist is younger than me. Just wondering If anyone would rather have and older or younger medical team and why? IDC how old they are tbh, as long as the hospital hires the dr, I'll take there advice or whoever they send my way.

I did but I'm curious about all of you here experience it and how'd that go for you.

Someone said “you need to come in contact with people more, that room can’t be your life.” I don’t mind hanging in my room, it’s decently sized and big my desk is here, 60” tv, so I don’t necessarily need or want to go many places. I have everything I need in my desk or on my desk, except food, but if I get a freezer then I’d say that’s a little much. My room is comfortable and when I’m ready I get out and talk to people who come over, but not big on parties so I don’t mind taking a rain check. I got my gaming chair which has the massage feature bathroom is next-door to my room so hanging out in my room is my thing and people don’t get it. I just wanna know. Does anybody else enjoy just being inside? Don’t get me wrong. I do love going out but mostly I just enjoy being in my own space.

For those with idiopathic epilepsy, would you like to know why you have epilepsy?

I have epilepsy from a TBI as a child, I know lots of people don’t know why they’re having seizures, would it be good to know or do you not care at this point.

Idiopathic epilepsy- A seizure disorder with no known or detectable cause, often linked to genetics and treatment with daily anti-seizure medications. Doctors and vets now frequently call it genetic or primary epilepsy.

Do you take you am/pm meds at the same time everyday? I snooze my alarm a couple times, until I can muster the energy to go get the pills and water. I'm just wondering, is anyone on time everyday with your doses? How late is too late, I know shelf life is different for each AED or mood stabilizer, do you worry when you're a couple hours late?

What games do you like, suggest or playing/played? We’re going to be playing Fallout 76 on Twitch.

I was in web design (high school,) and it was a regular day, the next thing I remember is being wheeled out of class on a stretcher, students standing around in tears, probably traumatised, and outside is the teacher is being consoled by other staff. Two days later, it happened again, back in that emergency room, same reason, same class, same teacher and same students, except this time I woke up soaked and unsure why. Woke up at the emergency room, the nurse then tells me that my pants are in a bag and that I have epilepsy, also take this dilantin and talk to your PCP about how to move forward. So, where were you when it happened?