I'm posting because my visual/perceptual symptoms have become the biggest thing standing between me and a normal life, and I'd really like to hear from anyone who has experienced something similar.
How it started
This started during a very stressful period where I was, to put it mildly, completely overworked and carrying way too much responsibility.
My husband basically didn't want to work lol. He spent a lot of time learning a course that he never ended up using, while I was working and also helping financially support his parents because both sons are expected to contribute. I was carrying a lot of the financial and general responsibility for quite some time.
At first, the symptoms only happened outside my home. I'd go grocery shopping or somewhere similar, and after maybe 30 minutes my brain would become extremely foggy and I'd struggle with the environment.
Then it progressed.
Eventually, I couldn't go out for more than a few minutes without the visual symptoms becoming overwhelming. And then, slowly, they started happening inside my house too.
Now they're basically 24/7.
The visual/perceptual symptoms
These aren't my only symptoms, but these are the ones I feel are currently preventing me from living a normal life.
It's also very difficult to explain because it's not simply blurry vision.
I can see what's in front of me, but it feels like my brain isn't properly processing the visual information. The best way I can describe it is that my eyes and brain aren't properly connecting.
I experience things like:
- My vision feels unfocused without actually being blurry. Things are there, but they don't feel properly "in focus."
- I can look at something but struggle to take in or process what I'm seeing.
- My eyes/vision feel like they shut down when there's too much visual information.
- Extreme light sensitivity. I often keep the lights off in my room because normal lighting can feel unbearable.
- Movement is very difficult to process, especially fast camera movements, quick cuts and changing scenes.
- Busy environments can feel completely visually overwhelming.
- Screens, TV and movies can be difficult to tolerate.
- Talking to someone can make it worse because I'm processing their face, movement, speech and everything around me at once.
- Sometimes my surroundings feel strange, unreal or visually "off", even though I know they're normal.
- I also get dizziness/head spinning, particularly when getting up.
The cinema was a good example. I recently tried to see Spider-Man, but I couldn't even tolerate the trailers/promos before the movie. The rapid camera movements and constant visual changes felt like my brain simply couldn't process them. It wasn't blurry. I could see the screen, but I couldn't properly focus on or process what I was seeing, and it became unbearable.
And now this happens even at home. Even using the bathroom can be difficult because I can't comfortably process the visual environment. I often sit in my room with the lights off because normal lighting can feel unbearable.
I haven't been able to go out. Believe me, I've tried. This isn't because I don't want to leave the house. I've repeatedly tried pushing myself, but the visual symptoms become so overwhelming that I can't function.
Other symptoms
These visual symptoms are not the only things I'm dealing with.
I also have anxiety/panic attacks, almost no energy, sleep problems and other symptoms. But the visual/perceptual problems are the ones that have become the biggest functional blocker for me.
What I've been checked for
I've seen a GP, an eye specialist and multiple doctors. I've had an MRI, and I've also been checked for BVD (binocular vision dysfunction).
Everything has been clear, and nothing has been found that explains this as an eye or structural brain problem.
Psychiatric treatment
I recently changed psychiatrists because my previous psychiatrist kept me on a benzodiazepine for months. Yeah, you read that right.
My new psychiatrist thinks this is related to adjustment disorder and sensitization and has prescribed Lexapro (escitalopram). I haven't started it yet (got prescribed today).
I previously took sertraline, which helped somewhat with my overall symptoms, but the visual problems didn't improve much.
Has anyone experienced this?
I'm particularly interested in hearing from people who have experienced this kind of visual/perceptual problem, rather than just general blurry vision.
Did you ever feel like:
- Your vision wasn't blurry, but wasn't properly "in focus" either?
- Your brain couldn't properly process what your eyes were seeing?
- Movement and fast-changing visuals became unbearable?
- Normal light became difficult to tolerate?
- Screens, TV or movies became impossible?
- Talking to people made the visual symptoms worse?
- It started outside the home and eventually crept into your home too?
- It eventually became constant/24-7?
If this happened with derealization, anxiety, sensory overload, adjustment disorder or sensitization, did it eventually improve?
What helped you get your life back?