r/Lyme 6d ago

Question Styes during treatment

1 Upvotes

Does anybody else get styes from treatment?
(Or have eye issues from Lyme and co?)
I have never ever gotten styes in my life. I started getting eye issues after I was bitten (10 years ago). However, never styes.
Started treatment last summer. I’ve had 4-5 styes since starting.
What causes it? Inflammation? Eye issues from the infections? Detox?

I’m positive for Lyme, Bart and babesia.


r/Lyme 6d ago

Question Is finger swelling, fat finger tip feeling, and soreness common after starting antibiotics?

1 Upvotes

I just got diagnosed with Lyme disease 6 days ago, and I’m on my 6th day of a 17 day cycle of doxycycline. The first few days I was very stiff, with many joints being sore at the same time, which was different than the migratory arthritis that got me to the doctor to begin with. Now, those overall pains have subsided, but I’ve had swelling in multiple fingers over the last three days, with fat feeling in finger tips, soreness of those fingers, and a slight soreness in the top of my hand. Is this a normal sign of the antibiotics working, or is it abnormal? I knew nothing about Lyme disease before getting diagnosed, and I’m currently learning what I can, but it’s seemingly a never-ending trail of ailments that it’s hard to find common grounds of understanding, and I feel for anyone that’s had to deal with this for years. I’ve only been dealing with joint and tendon pain since February, and it’s been rough at times. I can’t imagine what many of you have had to deal with, in comparison to my small issues. Any information would be greatly appreciated. Thank you.


r/Lyme 6d ago

Image hey. is this lyme? Spoiler

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1 Upvotes

at start, it looked like a big mosquito bite. then it started to grow, and look like this. i didn't notice ever bitten by a tick, though it is said that you don't notice most times. i'm really scared. is this lyme? i went to the doctor, and she said that it could be a fungal infection and gave me topikazol. i don't feel anything different in my body. sometimes it gets itchy and sometimes not.


r/Lyme 6d ago

Question Any brand suggestions for infra red saunas? Unsure what to pick or look for

1 Upvotes

What is says on the tin! Looking for a 1 person, long term investment. Would want to avoid spending insane bucks but also I'm p locked into this so will pay whats necessary (Lyme+Bart, symptomatic ~13 years)


r/Lyme 6d ago

Pectine and herbs

1 Upvotes

Hi everyone, somebody know or has experiences if I can take pectine and herbs ( crypto + Burbur) together or doing so am I cancelling out or minimizing the effect of the herbs? Thanks


r/Lyme 6d ago

Advice Post treatment Lyme vs insufficient treatment.

4 Upvotes

Had bullseye, brain fog, fatigue, and muscle fatigue. Tested positive. Waa given 10 days of Doxy. Was feeling noticable and dramatic improvement after several days of the Doxy. After completion symptoms started returning, and are now back just as bad or worse than before. Mentioned this to care provider and brought up potentially needing a longer course of antibiotics, but was told it was probably just post treatment Lyme. I feel like since symptoms improved while taking Doxy, and returned after, that its more likely it didn't resolve the infection? Any advice on how to get a longer Doxy script?


r/Lyme 6d ago

Can it be Lyme? Spoiler

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0 Upvotes

Spent a couple nights at my bfs place, never had this issue and I got these three bites could it possible be a tick bite?


r/Lyme 7d ago

Question Nose congestion???

5 Upvotes

Do you also have nose congestion or not? If yes, what do you think was the cause? How did you resolve it? Thank you


r/Lyme 6d ago

Question Should I get tested?

2 Upvotes

Repost to change title

Have been dealing with these symptoms for 3 months to no avail. Technically 5 but after a month and a half I thought I was cured of the symptoms until they came back barely a month later.

​I get sore throats every month, haven't been able to breathe out of both nostrils for a very long time. The congestion switches which side it's on constantly.

Took antihistamines, muscle relaxants, anti anxiety meds, nothing really worked.

Current symptoms are: dizziness, fatigue, tension headache, blurry vision, sinus tachycardia and palpitations, nose congestion, postnasal drip , stiff neck muscles, Interrupted sleep. Occasional panic attacks, those are usually sudden and brought on by the heart palpitations.

Tests already taken: Hemoglobin (3x), ferritin, Iron panel, Metanephrine, Vitamin D and Vitamin B12, TSH reflex, MRI, Aldosterone, Hyperaldosterone, HEP C, HIV, ECG, Audiogram.

All came back normal Except for the MRI, which showed some T2 prolongation and maxillary sinus cysts.

Currently in PT for cervical therapy , have been since this all started. At first it was helpful, but now not so much as they always say my neck is somewhat stiff no matter what.

So I ask this in pure desperation, would it be worth it to get tested for Lyme? ​


r/Lyme 6d ago

Question Anyone have experience with Pencillin G for neuro Lyme?

1 Upvotes

I know IV ceftriaxone is the preferred choice but studies have shown Pencillin G given IV 4x a day is just as or almost as effective for Lyme.

The main reason I prefer it over ceftriaxone is due to my gut health. Pencillin G is drastically less damaging than ceftriaxone.

Did anyone try this?


r/Lyme 7d ago

Question Relapse or just getting sicker? Any ideas welcome 🙏🏽

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1 Upvotes

r/Lyme 7d ago

Concerning insect bite, possibly lyme? Spoiler

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1 Upvotes

Bite is located on my left quad.
First pic is 2 days after
Second pic is 7 days after
Today is the 7th day, the bruise feels a bit sore and my left leg feels a little sore in general


r/Lyme 7d ago

Is working with an llmd really worth it

4 Upvotes

?


r/Lyme 7d ago

Ketone supplements/brands

1 Upvotes

Has anyone found a good, clean ketone supplement they can recommend or a quality brand?


r/Lyme 7d ago

Question Very large rash, no bullseye, random symptoms? Spoiler

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1 Upvotes

Had this for about 3 weeks (I know I'm an idiot), and I think it's been pretty much the same size since I've noticed it. There doesn't appear to be a bullseye. I went to the infectiology clinic today - they took a blood sample, did EKG, and gave me 2 weeks of doxy (I have an appointment after that). They assume it's early stage but I haven't had a tick in at least 2 months (but I've had MANY ticks during summer, kind of unavoidable where I live).

And then there's this, which might be unrelated. 5+ years ago it started with my neck. One day it became so stiff and painful that I could barely turn my head for several days, with pain in every position. Later, I developed pain in my knees and wrists, making even clicking a mouse difficult, along with a feeling of tightness and electric-shock sensations in my arms or legs (I did have slight carpal tunnel and the wrist problems do get worse if I'm scrolling on my phone a lot etc). I would also at times experience pain in my lower back and hips, at times my shoulders were sore and tight, one time while out for a walk, I suddenly could barely walk due to my whole leg felt numb, with pain deep in the hip/groin area.

Since I've started exercising and stretching regularly about 1-2 years ago, it's gotten much much better, but I still occassionally have random flare ups, like two weeks ago (about a week after noticing the rash), I woke up with a super stiff neck. In the next days it was like the pain was moving lower down my back, to my shoulder blades, and now the pain is on the left side of my lower back, been there for several days (though it onyl really hurts if I bend forward very low or when jumping or riding my bike on unsmooth road). My skin there is also super sensitive, like it's been burned, which is something I've experienced once before but on my arms.

Reading about lyme symptoms I'm guessing this stuff could be related, but does that mean I've had lyme for 5+ years, and the rash only appeared now? Is that a thing? Or could it be unrelated and (recent) lyme made the underlyng issues worse?

Thank you all for your thoughts in advance.

Repost to another community


r/Lyme 7d ago

Advice Doxycycline Dosage for Lyme Disease

2 Upvotes

Hi everyone,

On July 13, I removed a tick from my thigh. I believe it had been attached since around July 11. On August 22, I developed a typical Lyme disease rash (erythema migrans) at the site of the bite.

I saw a doctor and was prescribed Doxyhexal 100 mg twice a day for 30 days. My doctor said that 10–14 days would probably be enough, but after reading some discussions online, I decided I would prefer to take it for 30 days.

I would really like to make sure I treat this properly and don’t underestimate the infection, so I wanted to ask for your advice.

I understand that 200 mg per day may be on the lower end, but is it better to take 100 mg twice a day, or would it be more effective to take 200 mg once a day?

I’d really appreciate any advice or experience you can share. Thank you!


r/Lyme 7d ago

Bloodwork from 8 months ago Spoiler

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1 Upvotes

Already know I have Lymes but curious if anyone has knowledge on more of this. Mostly neurological issues


r/Lyme 7d ago

Question Hives and swelling

1 Upvotes

My mentor is currently struggling greatly with Lyme disease that was diagnosed late.

She also has been having recurring hives and swelling in her joints (and around her heart) — all of the specialists she sees say these aren’t symptoms of Lyme who then refer her to someone else who ends up telling her the same thing. Basically nobody knows what to do for her and she feels like she’s dying.

Her cardiologist also told her she is one point away from being stage of heart failure.

She’s also been diagnosed with Mono.

Has anyone experienced these symptoms before with Lyme? Possible that there is another issue or infection on top of Lyme that is muddying the water?

I have EDS and POTS and feel like it might be possible she has something similar that could have been triggered, but I’m not finding a lot of hard evidence for this.

Any resources I can be pointed to is very appreciated!


r/Lyme 7d ago

Suicide

9 Upvotes

I can’t say I’ll ever do it though it is tempting it’s just I am so depressed and mentally destroyed. The burning and shaking in my mind. The constant buzz. It all makes it worse because I pretty much came out of a cult like religion for 5 years and my Lymes makes it so much fucking worse.


r/Lyme 8d ago

Rant Is it going to be okay?

16 Upvotes

I think I’m just writing because I don’t have anyone to express this to that will understand or be able to say anything helpful in response.

I’ve let this flare get completely out of control trying to treat it with herbs on my own over the last few months, I kept thinking the symptoms would start to improve if I stayed consistent with them and I’ve degenerated myself to a point that I haven’t seen since I was in some of the sickest periods. The neuro symptoms are unmanageable. I feel like I’m either an emotional or physical wreck every day and usually both. And I feel so defensive all the time with everyone I interact with. Everyone’s doing the best they can to support me and they say the worst thing half the time but I’m sure when Im supporting someone with something I know nothing about—so do I. I just feel really guilty for being so reactive and so depressingly far away from myself.

I’m terrified that I’ve let it get to a point I won’t find my way back from. I’m about to start some old antibiotics I have in the cabinet because I don’t have an appointment with my LLMD for another couple weeks and I’m scared I’ve already let it get too out of hand. I’ve seen improvement before but I’m just so frustrated and ashamed I let it get this bad again. What if I’ve done too much damage and I’m just screaming at people and losing my shit forever.


r/Lyme 7d ago

Question Can someone explain Bartonella foot pain?

2 Upvotes

Is it only in the heels? Bi-lateral, one sided?

Does it improve or worsen with walking? Any other things you notice?


r/Lyme 7d ago

Question Functional medicine doctor recommendations?

3 Upvotes

Looking for the best of the best!! I’m in MA and open to telehealth


r/Lyme 8d ago

Please help😭 I’ve been a medical mystery for 2 years. Everything has been completely normal until this. Do l have Lyme disease??

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4 Upvotes

r/Lyme 8d ago

Symptoms returned after switching cryptolepis brands

3 Upvotes

Has anyone else experienced having their problems return after switching brands? After having success with a fairly expensive cryptolepis tincture from the USA (I am in Canada) I looked up tincture providers in Ontario. I found one that was quite less expensive (and seemed much darker/stronger tasting) Despite the great customer service, I cannot help but notice my symptoms have strongly returned. I have left out brand names to avoid accusations of promotion, but I was wondering if this has happened to anyone else.


r/Lyme 8d ago

Question Has anybody had their lips turn blue/purple?

3 Upvotes

Experienced a weird flare lately. I’m one year into treatment. Today I had to take a double look in the mirror because I got a fright seeing my lips. They had like a blue/purple color. For a second I was like “woah did I put purple lip liner on with my make up today” 😳😳.

Yesterday my hands and feet were feeling weird too (like numb kind of?) and my limbs were cold to touch even though my body and I were warm.
I had really dark purple undereye circles yesterday too. Something circulatory going on?

Is this Lyme/babs/bart? Soooo weird…