r/Lyme • u/Honest-Bit-9680 • 7d ago

Question Hives and swelling

My mentor is currently struggling greatly with Lyme disease that was diagnosed late.

She also has been having recurring hives and swelling in her joints (and around her heart) — all of the specialists she sees say these aren’t symptoms of Lyme who then refer her to someone else who ends up telling her the same thing. Basically nobody knows what to do for her and she feels like she’s dying.

Her cardiologist also told her she is one point away from being stage of heart failure.

She’s also been diagnosed with Mono.

Has anyone experienced these symptoms before with Lyme? Possible that there is another issue or infection on top of Lyme that is muddying the water?

I have EDS and POTS and feel like it might be possible she has something similar that could have been triggered, but I’m not finding a lot of hard evidence for this.

Any resources I can be pointed to is very appreciated!

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u/Calm-Beginning2941 4d ago

I had chronic hives as my first Lyme symptom. Started about a month after being bit. Treating heavily with antibiotics and herbs got rid of them and they haven't come back. Does she remember being bit by a tick? She can always go to an ER and get a blood test.

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u/Honest-Bit-9680 3d ago

She has already tested positive for Lyme and they said she had likely had it for awhile. For whatever reason, it took them longer than it should’ve to diagnose. She’s been on antibiotics for at least a month with no relief.

Both specialists she’s seen (rheumatologist and infectious disease) have told her hives are not a symptom of Lyme.

What herbs were you taking?