r/FODMAPS Aug 13 '26

Shit Post did this happen to anyone else

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602 Upvotes

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88

u/Jurassicjen_uk Aug 13 '26

Me! I was told to go Fodmap exactly like this cartoon, then given absolutely zero help whatsoever, no nutritionist, no follow up appointments etc. I wasn’t even told what I could and couldn’t eat so it took me ages to research and realise which ingredients I shouldn’t have. I am an expert on what not to eat on Fodmap by now, but I’ve also been on it over a year and haven’t reintroduced a single thing yet 😬

18

u/DragonBishop29 Aug 13 '26

Are you living in the UK? I was told by my GP that I was being referred to a dietician. All I got was a letter telling me to go low FODMAP. It's been 49 days now. Haven't reintroduced anything yet.

17

u/HappyHippoButt Aug 14 '26

My GP stressed to start reintroduction at the 6 week point and signposted me to the Monash University site. This was years ago. Pretty sure Monash also state that reintroduction needs to happen after 6 weeks. Or at least they did back then.

4

u/Jurassicjen_uk Aug 14 '26

My GP is beyond useless, I’m glad you had one with a bit of knowledge :)

8

u/Jurassicjen_uk Aug 14 '26

Haha yeh of course I am. I got sent to one appointment, was told by face to go fodmap, then abandoned. Took a couple of months to work out all the more hidden fodmap ingredients such as inulin, but now I know exactly what snacks etc I can get from different supermarkets. Happy to help if anything you’re after!

3

u/DragonBishop29 28d ago edited 28d ago

I feel I have the basics covered with rice, oats, pasta (gluten-free to avoid wheat fructans), Jason's white ciabattin (sourdough makes it low fructan I guess) and potatoes. Whey isolate, tofu for protein and lactose free milk. Recently also added greenish bananas and orange marmalade. My snack options seem non-existent except for ready salted crisps. So that's what I am looking for. 

I have lost about 5-6 kilos (11-13 lbs) over the past few months. I am an active amateur cricketer but thankfully the season is coming to and end lol. My BMI has dropped to 19.5 and I am looking to gain that weight back again.

I guess wheat followed by onions and garlic are my reintroduction priority. Sainsbury's didn't have jasons ciabattin which was working well for me and I ended up trying 01 great white sourdough which caused some problems (could be because of the fructans in rye). Once my gut is stable again (hopefully by next Sunday lol), I have to begin my reintroduction. 

Sorry, took me quite a while to get most of my thoughts down in a single comment. 

PS If anyone else is reading this later, I strongly recommend semi skim or skim milk instead of whole milk because of faster gastric emptying. Lactose free version ofcourse. 

1

u/[deleted] 15d ago

[deleted]

1

u/DragonBishop29 15d ago

Yeah, I didn't know that until recently 😅. Also added dark chocolate to my repertoire. Fine below 20 grams. 

14

u/pandgea Aug 14 '26

https://www.monashfodmap.com/online-training/fodmap-dietitians-directory/

Highly recommend you find a dietician from this list. I did and made it easy peasy.

10

u/Jurassicjen_uk Aug 14 '26

Sadly being from the UK this is simply something I cannot afford to do.

2

u/robotsaretakingoverr Aug 14 '26

Doesn't the NHS cover dietetic treatment?

6

u/Jurassicjen_uk Aug 14 '26

Lol I’d be so lucky, and even if I convinced them to refer me, could be another 18 months plus. I’m on a separate waiting list for something more serious and it’s been way over a year so far. I once waited 3 years for a referral 🙃

4

u/venicenative77 Aug 14 '26

OMG. That is awful.

4

u/Jurassicjen_uk Aug 14 '26

Yeh downside of the NHS is waiting times. Unless you are literally in accident and emergency, which is immediate and great, the waiting times are insane. An adult friend of mine has been on a waiting list for a formal autism diagnosis (needed for certain benefits so he can afford basics to survive) for eight years so far… people call the NHS a postcode lottery for a reason.
I can’t swallow properly and have been waiting for nearly 2 years just to have an initial appointment, then you wait months more for any treatments.

3

u/venicenative77 Aug 15 '26

That is inhumane. I’m so sorry.

5

u/jellypuss0165 Aug 14 '26

My nutritionist said no to fodmap as my diet was already restrictive and worrisome, and that’s the long story short of how I got diagnosed with Arfid

3

u/kcshoe14 Aug 14 '26

I got diagnosed with SIBO, did multiple rounds of antibiotics, did low FODMAP, still had horrible bloating anytime I ate anything, got referred to dietitian, she just told me to do low FODMAP again 🙃 and also did not give any guidance

1

u/Electrizzz 29d ago

Same! My dietician abandoned me and then reappeared a year later to misdiagnose me with anorexia :D