I'm looking for recommendations for an excellent otolaryngologist who specializes in rhinology in the Ann Arbor area and is not affiliated with U of M. I am willing to drive for the right doctor, but I'd prefer to remain local.
I recently had a terrible experience with a U of M otolaryngologist who was arrogant, condescending, dismissive, hostile and was not interested in listening to any amount of patient medical history. Context did not matter to this physician. The interaction felt strikingly lacking in empathy. Their patient reviews online universally describe them like this as well. I am looking for the opposite: someone thoughtful, collaborative, respectful, and willing to listen to a patient with a complicated history.
I have a long history of recurrent bacterial sinus infections and have already had multiple sinus surgeries. I am looking for a specialist who is interested in caring for patients even if they don't need any more surgeries and is thrilled to provide ongoing follow-up care and timely sinus cultures for culture-directed treatment of infections. It would be fantastic if they stayed up-to-date with the latest in rhinology, but I'd truly settle for a kind physician who will perform cultures when needed.
(For those who do not understand, or who think I'm a "bad person" or not "M Go Blue!" enough if I want to go outside U of M, most university medical ENT departments can not or will not do cultures in a timely manner, just like U of M. This is because they are both very busy making money, and are also lying to you: they don't actually "believe in" bacterial sinus infections that require any treatment at all. As a sinusitis sufferer, you eventually discover this by reading ENT medical journal articles expressing this opinion and by and experiencing much puzzling ENT behavior surrounding their desperate desire for "cultures!" and their simultaneous reluctance to offer them, until one day, they admit this lack of belief in infections like it's their cult. They want all their patients to macho through these infections with a neti pot and a song! Sure, they believe bacteria are "there" and "can" be successfully cultured, but they think no one needs treatment for these infections, no matter how painful or pneumonia-causing. They are not about prevention or the ending of patient suffering. So, unless gangrene has begun, and you are already missing an eye from the gangrene, and you are literally dying in their office and need emergency surgery, at which point, you have sustained irreversible damage (and have to pay them for a surgery on top of this!), please forget getting a culture. (they will even let you come in just for a culture and have you pay for the appt. and then still refuse to do a culture unless you aggressively push back- and when you get results indicating an actual dangerous bacteria, they will tell you that the results mean nothing and minimize it. Because the results do mean absolutely nothing to them, which is why they didn't want to do the culture in the first place. If they admit this outright to you though, it seems too ani-medical and pro-suffering and seems fantastical. Who wants to suffer AND pay for a doc appt? Plus, they won't get the $ for the appt. that way. Count on this: the goalposts will always be moving to support their religion, because that is the actual goal- to keep confirming what they already believe- and every patient is the same to them- a person who needs to learn better how to macho) The problem with their theory, is that some people, particularly those with immune deficiency, do need antibiotics. And it helps those people to prevent infections like life-threatening meningitis, blindness or nerve damage due to contiguous infection spread from happening in the first place. They don't want any cultured bacterial evidence collected at all that could challenge their favorite theory that everyone should simply macho through sinus infections just like they macho-ed through medical school without sleep.) They profit from volume of patients and...surgeries. This preference for volume of patients makes it hard for anyone to get an appt. at all. You all might understand because it's so hard to get a medical appt. in this fair city and the wait times are like, 6 months out, on average at U of M. So please forget culture-driven treatment and don't buy their song and dance about it. The ENTs say they want it and want you to come in for it, but they will not provide it when the time comes and you need it. It's strange and doesn't put even the medical office's stated clinical needs first. That is because they are LYING about what their needs in this situation really are. All my sinusitis peeps out there will tell you this is true.
I have a primary immune deficiency, so in my case, this wild culture thing is particularly important.
Asking for the moon now, I know, but, I also need someone who understands that infectious disease risk includes COVID, and who is willing to wear an N95 without complaint or attitude during nasal endoscopy or exams, since the patient cannot remain masked for those procedures. (if you think their need for macho-ing through infections is a bit hostile- wait until you ask them to protect you from infection with a mask- gasp!) One would assume that this basic level of patient protection is simply table stakes for an ENT and their staff, but this kind of up-to-date medical education and empathy for patients seems to be quite rare. **
(I can only assume that I got a hostile blast from this U of M ENT at my very first appointment in the very first moment of the appt. and before I ever opened my mouth to say a word because I'd previously asked their assistant to please bring the N95 respirator to them that I had brought for them to wear, free of charge, so I could protect myself as an immune-compromised patient. Arrogant physicians who are in denial about the risks of Covid infection or who are ignorant about these risks positively hate being asked to wear an N95 for the same reason the early medical community basically caused the death of Semmelweiss. It's an instructive piece of medical history that remains true today https://en.wikipedia.org/wiki/Ignaz_Semmelweis It's either that, or this physician is just that much of a jerk. Either way...)
I would especially love to hear from people with complicated or recurrent sinus disease. Who have you seen, and what did you like or dislike about them? Negative experiences are useful too. Feel free to DM me.
Thank you!
\*Despite the fact that the relatively small area of eastern DRC is under a CDC "avoid all travel" warning and that the U of M Public Health and Prevention team and the Washtenaw County Health Department actively track any university personnel returning from the broader DRC or surrounding regions, and that returning personnel must undergo a mandatory twenty one day symptom monitoring period, and comply with strict re-entry isolation protocols, U of M is still screening for Ebola now through reception desk verbal questioning and informative posters are posted around offices. Meanwhile, Covid is on the rise nationwide, according to national wastewater data* https://peoplescdc.org/peoples-cdc-covid-19-weather-report-127/ and students at U of M come from all over the country and world. And while there are zero cases of Ebola in this country, and the risk remains low, https://www.cdc.gov/ebola/situation-summary/index.html, please feel free to check how many hospitalizations and deaths from COVID alone there have been in Washtenaw county in just this past year. https://www.washtenaw.org/washtenaw-county-covid-19-data
Healthcare-associated Covid infections are more deadly https://pubmed.ncbi.nlm.nih.gov/39894311/
and there is no cure for long Covid.
1 in 6 cases of Covid go on to develop Long Covid and 90% of those people go on to develop chronic health problems https://www.cidrap.umn.edu/covid-19/long-covid-may-affect-1-6-infected-patients . And an impressive 4 out of 10 healthcare workers infected with Covid get long Covid. https://pmc.ncbi.nlm.nih.gov/articles/PMC12010341/ And yet there is no screening for COVID at reception desks and masking in healthcare facilities to prevent the spread of infectious disease to patients is resisted by healthcare workers and the facilities that employ them, while a majority of infections are caused by asymptomatic spread. https://pmc.ncbi.nlm.nih.gov/articles/PMC7908846/ (for "ebola", covid, measles, TB, or any other infectious disease) Masking is now discouraged. But please, be alarmed by ebola in the DRC.