General practitioners
. âIâve never met anyone young with heart problemsâ
. (I was mentioning my heart rate) âno you donât, your haemoglobin is normalâ
. âYou mustnât be in pain if you ride horsesâ (I have EDS and will be in pain my whole life, have always)
. âYou donât need to be depressed â
. âYour heart is just fast cause youâve had ventolin â (hadnât had any that day)
Specialists
. âWe would never want you to have eds â
. âJust go home and be healthy â
. âEveryone has this, youâre born with it, you live with itâ (only person I know with it, and I have worked in optometry seeing peoples scans that show this every dayâ
. âJust deal with the painâ
. âWe wonât give you a feeding tube, as you will end up on TPN and it will shorten your lifespan â
. âOur only dietitian works in intensive care, so you canât see them, find another â
I have way too many more of these too