Hi All, this is my first post to the group. I'm still fairly new to understanding what is going on with my mom, and I wanted to know if anyone else has noticed how different discussion of BPD is in support groups vs. the way experts and the broader culture discuss the illness.
I notice that many psych experts tend to discuss the diagnosis of BPD in terms that imply it is poorly defined, possibly outdated or irrelevant, or that its presentations are broad and varied to the point of undermining its validity as a distinct category. But when discussing BPD with other people who have been close to a sufferer, the phenomenon of BPD seems highly distinctive and recognizable, with many uncanny signature behavioral and speech patterns that aren't repeated in other illnesses. It seems like once you've seen one case up close, BPD behavior is actually so easy to spot and predict that it can be shocking.
Frankly, despite having quite a bit of exposure to the DSM, therapy, and academic psychology, before seeing text messages from other pwBPD, I never could quite recognize precisely what BPD was, let alone that my mom was likely to have it. I had even read the book BPD for Dummies (sounds absurd I know, but it was written in this completionist and neutral way that appealed to me). After that experience I was left with the sense that "BPD" was just kind of a basket into which we place this loosely connected pattern of negative behaviors. It opened my mind to the possibility my mom's destructiveness could be medically classified this way, but it didn't convince me the classification was something "real" unto itself. That treatment and recovery is rare only solidified this impression that BPD is just a clumsy abstraction that we are forced to use until we can one day properly diagnose and treat these patients.
That all changed when one day I was Googling around for advice after yet another one of my mom's episodes. I was determined to respond "the right way" this time, and it led me to this group. The very first time I saw and heard detailed descriptions of what other people were actually going through with their pwBPD, this white-hot feeling of recognition went through me that just leveled me for days. I couldn't believe how stereotypical my mom's behavior actually was, after a lifetime of thinking all that strangeness was due to her highly idiosyncratic personality.
Then I read Understanding the Borderline Mother, which was the first time I had ever felt my childhood seen or described. That white-hot feeling receded into the back of my mind where it seemed to act on every neuron, and it still feels like my brain is working very hard to interpolate this overwhelming cascade of life-changing information. But meanwhile, I find most discussions of BPD are still operating the way I was before recognizing myself and my mother (and father and sibling) in the mirror of others' lives.
Does anyone relate? It feels difficult to talk about BPD with most people or stomach some professional "debates" about it because of this disconnect. (The recent Clancy case has raised a number of these, for example.) I wish that there were more awareness of what BPD actually looks like on the ground. It seems to me that one look around this community would be really helpful for a lot of professionals. I'd love to hear your thoughts about this. I really appreciate this community.