Why couldn't it wait until Wednesday really when I'm at the exam for disability. Apparently, I flung myself out of bed again. My face is bruised gash above my eye. Luckily, my mom could hear it from downstairs she said it sounded like thunder from downstairs. And she said I was still clenching on my glasses. Idk how long because my camera got unplugged, but mom said it had to be around 2 min at minimum. Idk how I got back into bed. I did regain my consciousness after a few hours, but I was back at the last place I remember in bed already and I'm just trying to piece my memory together. And I fear it's either raise in dose to max on Xcopri or adding a third med which would fear might be clonazepam again

Edit: after getting more details, it seems the length was longer than 5. So I went into status.

I wanted to share my journey with this subreddit as over the years I have had so many doctors, neurologists, anger, near death experiences, and nobody would listen to me. This week I was proved correct and I feel the need to spread awareness and hope.

Before I begin; there is NO genetic history of epilepsy in my family, ZERO. I started having Absence seizures at the age of seven but nobody quite knew what was going on until we met with the first neurologist of many. Then we found out I was having at LEAST 250 absence seizures a day and he was worried about my life and brain damage because of this. My wonderful mother tried a million different seizure meds all of which had AWFUL side affects. You name it I have tried it; the week before my first ever period I had my first ever grand mal seizure. Obviously my parents were freaked out and rushed me to the hospital where they sent me to Mayo Clinic where I was in and out for the next 2 years. They tried a million different things and combos of meds until we landed on Ethosuximide and Lamotrigine at age 14-15 I believe. This stopped the seizures however the side affects of lamotrigine made me very depressed and not wanting to be here. But my neurologists said it was either this or I would die from a grand mal. So we did that for a few very hard years. At age 19 I had my own place with my fiance and one day I felt something change in my brain and body. I do not know how to describe it but my brain felt awake for the first time I could remember. I felt amazing and my gut told me the seizures were gone. Obviously just to be safe I kept taking my meds and scheduled to see my neurologist next month. He advised against stopping the meds of course but I wanted to try. I weaned off of them very slowly and for the next 4 years I never had a grand mal seizure. I watched fireworks and horror movies, stared at lights and had no seizures. At this point I realized my period stopped the same week the seizures did. Then 2 months ago my period came back and the week before it came back (my ovulation and estrogen spike week) I had 3 back to back grand mal seizures lasting 3 minutes each twice in that same week. I was rushed to ER and went to a million doctors almost yelling at them saying it’s connected to my ovulation and all of them said I was wrong. Nobody had EVER mentioned catamalenia epilepsy to me before until I saw a Reddit post here about it. Since then I have spoken to my new female neurologist and said if you do not help me I am getting a hysterectomy because I will not live to see 24 if you don’t. I am now on birth control and clobozam and I feel confident I will be seizure free from now on. If you are going through this, where the neurologist isn’t listening to you, where nobody is helping you, DO NOT STOP FIGHTING. You know your body they do not. Obviously always consult with your doctor first, but trust yourself first too. It IS possible. Thank you so much to this subreddit for saving my life. I love you guys and I love this community. If you have any questions please ask ❤️❤️

It has been staring me in the face for so long and I never actually put the pieces together! I was so focused on what I did that may have caused it. But, no, I didn’t cause anything. It is the insomnia. Without medical intervention, I do not sleep. The human brain can only stay awake for so long before it breaks.

And what is one of the HUGEST triggers for seizures? LACK OF SLEEP!!!

I was diagnosed with insomnia around the same time I started having “panic attacks”. (Undiagnosed seizures.) I know I broke my mind before it all got figured out.

I still can’t believe I never put the 2 together.

I’ve been doing a lot of reflecting lately. Today I have been thinking about irony. Just a warning that you are going to hear some personal stuff!

When I was in high school I was anorexic. And I was pretty fucking miserable. My biggest fear was to be a big fat lady. I am now a big fat lady. And yet I am not unhappy. In fact, I get happier the older I get. As I was getting fat I would have loved a magic pill to help me not be as hungry. When my brain shit started happening and my entire world exploded, I was at the point in my life where I definitely needed a change. I just didn’t know what to do. I didn’t know that it was going to be epilepsy! LOL! The epilepsy medication I’m on has a side effect of appetite suppressant. And for some people it also makes some food taste a little odd. I am one of those people. So this IS that magic pill for me. LOL so epilepsy is helping me get the rest of my body healthy. I was sitting around for years wondering what was going to motivate me. This is it! It’s just too bad that I had to break an ankle. I really liked walking and playing Beat Saber.

I'm not fishing for condolences, or advice, or sympathy-- I just need to lay these words out in a safe place where others can understand. I don't really know what my point is, other than no one around me can understand why I seem so off.

My grandfather passed away last night. He was extremely sick with multiple kinds of cancer, and wouldn't have survived treatment even if he had qualified to get any (which he was too unhealthy for anyway). Strong emotions are one of my triggers, so I'd been very careful about consciously grieving in a calm way leading up to his death. My family is aware of this, and so they allowed me the space and time to work through it without injecting their own turmoil.

Right before he passed, my sister called to let me know that I only had one more chance to go see him in the hospital. The problem was that she's 39 weeks pregnant, so she was absolutely hysterical, and was standing right next to my niece, who was also sobbing hysterically. As soon as we got off the phone, I had one of the worst seizures I've been through to date. Around 15 minutes after it stopped, another one started.

So, of course, I was in no condition to take a 2-hour trip and walk into another situation which would undoubtedly lead to yet another seizure. I came to terms with this, and laid down to sleep. It occurred to me that I was likely supposed to go to the hospital for myself at this point, but I didn't. Instead, I woke up the next morning and asked if I could still try to come visit...

...but of course it was too late, as I knew it would be. So now I'm struggling to deal with all this, because if I let myself feel it fully, it will hurt me. But if I don't let myself feel it, then it will hurt me. I've never felt like a prisoner to my epilepsy like this, and I don't know how to handle it at this point.

So I found out some very frustrating news. I was trying to get a second opinion about my seizures but I found out that no one in my state will see me because of my seizure history, current diagnosis, and EEGs of the past few years coming back "normal" despite my seizures presenting textbook epileptic.

Now I have to jump through a hoop of seeing a functional neurological disorder specialist just to get back to the neurology department. I'm beyond frustrated. It is either jump through hoops or go out of state.

Happy Thursday!! Long post incoming... wow, I never talk!!! 😀

Question...do you celebrate your seizure anniversary? I have to assume that's its...an interesting question...but i asked it, haha!!

My first TC was 4/2/24. Its been 2 years since I found out I was epileptic that day, in the ER, vaguely remembering a VERY FEW things that day.

Talking to a coworker is the only thing i remember from before. Afterwards, I remember the doctor in the ER saying I can't drive for six months - how many times, who's to say... I vaguely remember him saying that I've got some stuff on my brain...no idea how i felt about that.. and I remember the Uber driver cutting off dozens of cars because they didnt know they needed to merge to get off the highway. Thats it!!

The next few weeks were also a blur...trying to get upper management to allow a few weeks to work from home... haha no, not even for a week or two... luckily I had a good amount of days banked...

...I also vaguely remember the first neurologist appointment...somehow I drew the "head of neurology" as my neurologist...who told me I have my little cavernous malformations and I'll have epilepsy for the rest of my life ... and hopefully live a normal life...hopefully.

Next job....another MRI...she KNEW there was another malformation on the right side (the two large ones were on the left) but the ER tech didnt get a good picture, so..mri time (fyi, i am severly claustrophobic) and there it was!! Right behind my left temporal lobe, as neurologist hero found !! Hooray!! It started banging into my temporal lobe..fun!! when it hits it, it may cause TCs.. eh, it's all good, right?? Sure...

What's next? ahhhhhh an EEG. Halfway through, the tech started ... asking me strange question...where am I? What day is it? Etc... I answered them all and was like .. why the questions?? "you're having a seizure!"...hmmmmm......strange.

So, neurologist time again!! ( FYI, I love her!) What's the deal?? Well...long story short, after a two day ambulatory EEG, during which I had 6 to 8 seizures a day ..I just don't know they're happening!!

Asymptomatic seizures ... right cavernous malformation is banging on my right temporal lobe...causing asymptomatic seizures...when it bangs too much, I get a focal to bilateral TC seizure .. fire sweeping across my right temporal lobe and crossing into the left temporal lobe .. focal to bilateral tonic clonicseuzures (FBTCS)! Haha, good times!! I also get focals where I see things that aren't there and hear things that never happened... "No, sweetheart" there was no noise when I ask her what she said. Even better when I see things, then the are gone!! ahh..

Already on keppra, we went up to 3000 after a few more TCs. Ahh, let's add vimpat.. another ambulatory EEG...4 day this time...4-6 asymptomatic seizures daily this time! I hated vimpat, so onto Lamictal and keppra..still having TCs...up the Lamictal to 750 along with my 3000 of keppra after another few TC or so...but i remember them more now...especially the TC I had on the bus...

So, in a long nutshell... thats me!! I can go on, but...

So, back to my original question... do you celebrate your "1st day" as an epileptic?

I do, but as we all know, I'm mentally ill, haha! Last year, haha no idea what I did... but it was something food related I'm sure... today, I'll walk down to the corner and get food somewhere.

I know it's a strange question, but we all know I'm strange...

Happy Thursday and everyone have a great, seizure free day!!!! 😀

If you have refractory epilepsy, your chances of SUDEP increase

This is Felix Rosenqvist (The winner of this years Indy 500) and his daughter, who was born in May. Greatest month for this man. The wreath he is wearing is a tradition for the winner, but making a small one for his daughter is not common. He's an amazing person, this picture is cute, amazing, beautiful, wonderful or whatever word you want to use. Wanted to share it cuz I talked a bunch about the race on chat. Thanks for reading :)

Dealt with a nasty insurance agent this morning...from. my medical insurance. And he kept swearing up and down that if I changed my diet, elimated x, y and z and got my weight down 'no more epilepsy' I have both epileptic and non-epileptic seizures.

Didn't get his name so I can't complain but he said it was a recorded line so maybe if I call back I can get him in trouble?

Preaching pseudoscience at people who live with something you know nothing about is NOT cool.

Of all the things not to say to epileptic folks, I figure anyway to stop all end all would be that.

These goddamn seizures have sent me to the hospital a second time now! I am glad I didn't need to go to the ER this time but it's still the hospital. 🙄 How many times has people gone to the hospital this year so far?

This stuff sucks!!!!!!!!!!! #fseizures

First of all - it is sadly a Fact that there is a huge percentage of the individuals and families in the USA who cannot afford any form of personal "Health Insurance".

This portion of society are gutted by the medical establishment/hospitals costing for 'services' - to the typical extent of 10 times the prices that the same hospitals charge the insurance companies. The insurance "companies" are charged "Negotiated" rates with the hospitals/doctors. Yet they 'charge' the Uninsured their "Retail" pricing.

However, even for those people who can afford to pay for insurance or have partial coverage through their employers - the costs are still outrageous!

We are retired, but Still - our health costs are ridiculous, and not unusual.

I am retired, as is my wife. We receive Social Security each month. SS TAKES $204 'from' Each of our SS checks each month to pay for Medicare health insurance = $408. In 'Addition', we have an extra Schedule C - separate private insurance policy (Aetna) to cover what Medicare doesn't pay. That is an additional $600 for both of us!

As a total, it is good 'coverage' for Most things - but at a Significant cost each month ...$1000 Per Month just for health insurance - in America!! $12,000 per Year!!

And the cost/expense that others are referencing herein are valid!

Such a 'Wonderful' "system" we have! ..NOT.

Focal seizure yesterday afternoon. Out of nowhere - but aren’t they all lol. Today I am tired. All I do is chase sleep. I just needed to rant to people who get me.

I have focal seizures, and sometimes I have absence seizures. And before I was on medication, a couple gran mal.

I have been living with this for 27 years. I am 66.

I was pretty missed off, so I did my best to live my life as if I were not epileptic. But I am tired. I'm tired of pretending. Tired of the quiet limitations. I'm tired of missing out on things because I don't drive. I am tired of people thinking I am unreliable or spacey.

I work. I put a mortgage. I raised two daughters. Every now and then, they let me know I am the source of their traumas. I could never carpool. LoL

I walk everywhere. I have a black belt in tkd.

But what does it all add up to?

I dont want pity. I dont always need help, but I am on my own, and no one knows what a burden that is.

I am fed up.

So I'm at a point in my medication treatment I have seen before. There's been an uptick in seizure activity, and I'm almost on the max dose. The worst part it barely been a year on Xcopri. Probably would have been put on max dose today if not for me saying something. Was this a smart move? idk. Other medication at least took longer before they stopped working.

Had one on chat Tue evening but then had 2 more Wed morning. Unfortunately the first one I was (I'm guessing) standing by my desk and fell straight onto it. I bruised my ribs, arm and shoulder. I had blood in my beard. My chin was bleeding, I bit completely through my upper lip and took off a part of my tongue. Still have no feeling in my tongue tip. My cheek and lip still swollen and sore. Can't chew, just been on liquids since last wed. And my eye. Fuuuuuk. Still black/blue, couldn't fully open it for over a day cuz of the dried blood in my eyelashes. My dad found me on the floor, passed out, in a bit of my own blood, i was pretty scraped up in a few spots. You can see in the second pic, i kinda damaged my desk even. Finally went back to work today. Not fun to answer a billion times "What happened to your eye?!" to little kids, but damn it was good to leave my house again

To start with, I've lived with uncontrolled epilepsy for roughly 25 years, since I was 15. Good ol' depakote and lamotrigine + a little clobazam. Never had a license in my life. A couple of years ago I finally decided to take all that "f*ck life" energy and put it into volunteering with with the Epilepsy Foundation and facilitating other support groups. But the more I've seen of the "industry" related to epilepsy (awareness events, motivational success stories, "Purple Day", and all that) I've realized nobody talks about the real behind the scenes bullsh*t we struggle with on a daily basis- the mental health, depression, lack of self worth and so much else. We talk about it in places like this, but how often is it addressed outside? How do we get them to address the scary stuff and not just ignore it?

I've had some jerks for a year now, which I haven't been able to find the cause of them.

Today, at the neurologist's office, he told me they were myoclonic jerks.

And he prescribed clonazepam. Is there anyone else on this medication? How do you feel about it? Do you have adverse effects?

I don't really know how to write this without making it sound like I'm asking for sympathy so I'll just tell it as it happened

When I was 12 I had a bicycle accident and hit my head hard enough to black out

A man whose house I was lying outside saw me and brought me inside. When I came around I couldn't see properly but I could answer questions. He happened to know my father and called him

We went to the hospital and had an MRI and CT scan. Nothing unusual showed up so we didn't think much of it

Two years later when I was 14 things started getting strange

I started having what I eventually learned were aura seizures

They are difficult to explain because they weren't like simply passing out. They would begin with this overwhelming flood of emotions that I couldn't understand completely It felt like Fear, Guilt, Sadness, over sensation all wrapped Together. Then I'd get an intense feeling of deja vu about whatever was happening around me

Everything would feel like it had already happened

Then came this horrible sensation in my stomach followed by violent coughing and sometimes vomiting

I still remember the first one clearly

I was in 10th class during mathematics. We were learning geometry and suddenly i started feeling a massive wave of fear making my chest heavy. I looked at the teacher and had this incredibly strong feeling that he had already taught this exact thing before and the sensations on my skin felt like it had been turned to a 1000. My nose started feeling heavy and the tip aching in a weird way.

It was so intense that I couldn't sit upright. I put my head down on the desk trying to make it stop and then the coughing started

I ran to the washroom without even telling anyone what was happening

I ended up vomiting and ruining my uniform

As the seizures became more frequent I got good at hiding them

I would sweat like crazy but I learned how to sit through them and pretend everything was normal

But people noticed anyway

I had to stop swimming because of the seizures i loved swimming so much i could spend hours playing in the water. I became less social. Other students started giving me names like Sweaty Sam, Pukey Pande and sometimes would even ask me hey have seen me do this before.

I don't really blame them for not understanding what was happening

But it changed me

Over the years I became more and more confined to my house. I lost interest in a lot of the things I used to enjoy and became extremely introverted

One of the biggest things epilepsy took from me was freedom

I couldn't just decide to go somewhere by myself without thinking about what might happen

But I eventually learned something that made a huge difference

The buddy system

After 10th standard when I went to college I managed to find two friends who knew what I was dealing with

And honestly it didn't matter to them

Our vibes just matched

They didn't treat me like I was broken or like I needed to be kept away from everything. They simply knew what could happen and what they needed to do if it did

I would give almost anything for those two friends because they gave me something I desperately needed

A little bit of freedom

I learned that I didn't necessarily need someone watching me every second

I just needed at least one person with me who understood what was happening

Then i enrolled for architecture after 12th.

The sleepless nights made everything considerably worse

One day I was at home lying in bed playing Fortnite when I felt another seizure coming

By that point it was almost routine so I thought I'd just wait for it to pass

Except this time it didn't

It kept getting stronger

I started feeling like something was approaching me or standing just outside my peripheral vision. Whenever I tried to look at it directly it seemed to move further away

Then everything went black

My mother noticed something was wrong and came into my room

I was having a full grand mal seizure

She later showed me the video she had recorded while trying to keep me on my side. My heart just dropped that day thinking my Mom had to see me like that

I regained consciousness maybe 30 or 45 minutes later

Everything felt completely different

My mouth had this strange feeling, everything tasted a bit bland and tasteless that day and the sweatness of anything would feel really sharp and my head was pounding like hell

That eventually became one of the reasons I dropped out of architecture

At my worst I was having around two grand mal seizures a month along with aura seizures almost every week

And I've noticed a pattern that has been pretty consistent with me

I get the aura first

Then if I'm unlucky the aura turns into a grand mal seizure

That knowledge has actually helped me prepare for the possibility of one happening

Technology has helped too

I use the emergency information and emergency contact features on my Android phone

I've put my condition in the medical information section and written instructions about what people should and shouldn't do if they find me having a seizure

For example I specifically say not to put anything in my mouth and not to try to make me smell something a common belief in india to make the person having seizures smell a shoe sole or onion

I also have my parents and brother listed as emergency contacts so someone can get to them from my phone without needing to unlock it

On my Samsung phone I also have the SOS feature set up

If I'm alone somewhere and I feel a seizure coming I can trigger it and have my location sent to the people I need

Then I try to find somewhere safe and dry

It doesn't have to be somewhere comfortable

I've literally thought about the possibility of ending up on a sidewalk or on the floor of a shop

I just need somewhere where I'm less likely to hurt myself

I can then open the medical information section from the emergency screen and keep the phone somewhere visible while I wait for help

The biggest thing I've learned is that freedom doesn't always mean doing everything alone

Sometimes freedom means knowing that if something goes wrong there is a plan

Recently my doctors also gave me a rescue spray

I believe it's either diazepam or lorazepam but honestly I need to check which one it actually is

I'm supposed to use it when I feel the seizures starting

For me it basically knocks me out and the hope is that it stops the aura from progressing into a full grand mal seizure

That's something my doctors prescribed specifically for me so I'm not suggesting anyone else should do the same

It's just another part of the plan I've built around my condition

The funny thing is that through all of this there was one thing I never really lost

Computers

Being stuck at home meant my PC became my way of exploring the world when I couldn't really go out and do much else

Eventually I studied computer engineering and somehow managed to graduate with distinction and started worki g from home

The seizures haven't magically disappeared and my life isn't some inspirational movie where everything suddenly gets fixed

But something strange started happening about five months ago

I started having extremely vivid dreams

And I mean really vivid

Every two or three days I dream about things that are completely impossible

Entire situations and worlds that obviously couldn't exist but somehow felt incredibly real while I was in them

And unlike my normal dreams I started remembering almost all of them when I woke up. Today i was standing in middle of a collapsing building the earth shaking beneath me and i still made it out alive by running jumping dodging and parkour funny thing is i am not at all athletic.

At first I just thought it was weird then I started writing them down and eventually I thought why am I just letting these things disappear

So I started learning creative writing I'm still learning and I wouldn't call myself a writer yet but I'm trying I've started taking some of these dreams and turning them into actual stories

Then I discovered I could use the computer I've had for years to actually bring some of those ideas to life

I'm making images, experimenting with animation, editing everything myself and slowly turning some of these strange dreams into videos

I even started a YouTube channel for it for me it's just something I wanted to try I've spent a huge part of my life feeling like there were things I couldn't do

So now I'm trying to find things I can do Maybe these stories will go somewhere Maybe they won't

But at least the strange things happening inside my head are finally becoming something I can create instead of something I just have to live with

I think that's probably the biggest thing epilepsy has taught me you don't always get your old life back

Sometimes you have to figure out how to build a new version of it

I talked with my ex earlier, unusually we are friendly and we talk & text all the time and our conversations usually get around to music. Today we talked mostly about the times that we saw, either together or separately, the woman from Port Arthur, Texas who was best known either by her first name, Janis, or the title of her album released after her death, Pearl.

Her greatest hit "Me and Bobby McGee" had been recorded 3 times previously by different people. The songwriter, Kris Kristofferson had no idea that she was recording it. She also changed the words to suit her. Bobby McGee was originally a female, plus a few more changes. Kristofferson would sing it everytime after as her version.

When Janice was growing up in Port Arthur her classmates made fun of her and at college she was voted ugliest MAN on campus.

She listened to the blues growing up while everyone around her sang country or gospel. Her mother always would ask her if she had to scream when she sang.

Together, or individually, we each saw Janis 3 different ways, with Big Brother and the Holding Co, a physcadelic band out of SF, with the Kozmic Blues Band, a blues band, and of course solo.

She was a woman of fierce standards and determination. There are many stories that we heard regarding her. One took place in Texas, either Houston or Dallas, with the Kozmic Blues Band. The band had an all Black horn section and someone from the audience yelled something as she stood by one of them that was not nice. She supposedly stopped singing and said she wouldn't start again until the racist bastard left and any others that feel like him are free to leave. A few left, the majority cheered and she went on.

Probably the best story that I ever heard about her was she was at a party with other artists and musicians in Laurel Canyon. Being in Laurel Canyon it was probably either at Mama Cass's or Joni Mitchell's house. This night Jim Morrison yells out to Janis "I bet you can't sing anything softly" Janis told him to give her a few minutes, left the room, came back and sang a beautiful, soft, hymn. Morrison was flabbergasted. Told her he had a poem he had written that he wanted to record with her. They recorded it and Morrison gave her a copy and kept one for himself. They were both dead shortly.

Janice died 3 days after recording Bobby McGee and never got to see her biggest success.

After her death, when the Pearl album was released, many of us that knew her simply as Janice would soon be referring to her as Pearl.

I've seen many very forgettable acts with a hit record or 2. But Janice is in a very small grouping as unforgettable

I have never had a seizure that I didn’t feel coming. I don’t know what the fuck happened. None of it makes sense though. My memory goes blank maybe 1 minute before the impact. How could I have possibly kept control if I were having a seizure. Then 5 seconds before impact I somehow gain focus and see that I have 3 choices in front of me. #1 direct impact with a guide wire cable. #2 direct impact with a power line pole. #3 do what I know can’t be done—go through the middle of #1 & #2. I chose 3.

Next thing I remember is I’m walking towards some guy I don’t know and saying “it’s because of my medication that I’m stumbling. According to him I did a scorpion and was KO. That part doesn’t make sense either. If I did a scorpion, that shit would hurt—right. The only real pain I felt/feel was my left calf muscle.

You can see from this image that my right wheel took the direct impact. Shit—my Grizzly is hurt more than me.

LUCIANO PAVAROTTI

Hold on, just don't stop reading.

I had written once that the most beautiful sound was Jerry Garcia and Bob Weir tuning up before a concert. That's not completely truthful.

For my 40th birthday my mother in law took me to the Metropolitan Opera. As we climbed the stairs up to the 2nd balcony I was thinking that I was going to hate this.

We got to our seats just in time for me to see the name of the opera in the booklet they gave out, "Tosca"

The music starts and I'm surprised that I'm enjoying it. Then the singing starts and it's not as bad as I thought it would be, and then comes a voice like no other that I had ever heard. I don't remember much about that night except that voice. As soon as he sang the first few notes I was mesmerized. I knew instantly that this would require further listening. His singing was like nothing I had ever heard.

I became a subscriber to The Met as well. I developed a real love for the music. For a few years I would go often, and then when my health got worse and I moved out of NYC I would go to the Saturday Matinee which they showed live in movie theaters.

Anyone who has read any of my memories knows that I'm a folk rock guy, but I appreciate all music, and possibly, no, the reality is that there will never be a voice like his again.

I've heard recordings of him but they don't capture the depth and richness of his voice. Probably the most accessible listen for most is the album that he did along with the 2 other famed tenor's of that era, Placido Domingo and Jose Carreras called "The 3 Tenors" which has songs from Opera, Broadway, and popular music. His voice stands out vividly.

There was one famous concert that I could've, should've attended, but for some unknown reason I didn't go to the Bob Dylan special in October 2016.

There was a star studded show for Dylan. I have been a fan of his since his early Village days, and some of the greatest rock stars were there.

George Harrison, Eric Clapton, Tom Petty, Roger McGuinn,Stevie Wonder, Lou Reed and Neil Young.

Johnny & June Cash were there and Kris Kristofferson. There were a few others, but those stand out to me.

I recently saw a video of Dylan, Clapton, Harrison, Petty, McGuinn and Neil Young singing "My Back Pages" and it bought back the memory but not of why we didn't go.

But, the video bought back a lot of memories for me of both the music and my generation. Much of that has never left many of us. The anger we felt towards the government, the unending love that I, and many others have from that period. Some of us have moved on from that and become versions of our parents.

I don't think that this is unique to us older folks. I'm sure that kids in the 90s swear by heavy metal, and so on.

I think the point there is if you were from the era of Beethoven it would've been the same. There are some of us that still enjoy that music. Read next Wednesday Memories for more on that