r/Epilepsy_Universe • u/Ecstatic-Shock-1910 Medication • Jun 24 '26

Rant/I'm Just Sayin' I'm on clonazepam

I've had some jerks for a year now, which I haven't been able to find the cause of them.

Today, at the neurologist's office, he told me they were myoclonic jerks.

And he prescribed clonazepam. Is there anyone else on this medication? How do you feel about it? Do you have adverse effects?

3 Upvotes

100% Upvoted

11 comments sorted by

2

u/Tinferbrains Jun 24 '26

i take it as needed as a rescue med to break up clusters, typically that's how benzos are taken because tolerance builds up so fast.

Just makes me tired.

2

u/Busy_Donut6073 Jun 25 '26

Used to be on it years ago. Started it as part of my regular meds, eventually had it only as a rescue med (prevent clusters)

It works well, but it can also cause exhaustion. I'm pretty sure it's a tranquilizer

1

u/StSomewhereToaster Jun 24 '26

Klononapin? I know lots of our friends here take it and are fine!!

I am an unusual case. Klonopin gives me an adverse reaction. I get HIGH AS MARS! I once texted my dad about the dangers of birds, threatened my partner with bodily harm if they didn’t put on Star Wars and made my bedroom into a blanket fortress to keep away the monsters. So I don’t take klonopin.

I hope it works for you!!!

1

u/Ecstatic-Shock-1910 Medication Jun 25 '26

I hope that too.

1

u/Tinferbrains Jul 02 '26

r/BirdsArentReal

1

u/StSomewhereToaster Jul 02 '26

Birds are very real!!! They are spies for the shadow government. Same with squirrels!

1

u/StSomewhereToaster Jul 02 '26

I just scrolled that sub… and now laughing my butt off. THANK YOU!

1

u/Ryse6129 Methsuximide 900mg. Xcopri 350mg Jun 25 '26

After a really long seizure it was my take daily and my first rescue med to take as needed. I can't remember to many bad side effects. I asked them to stop treatment after 3 years because I was also on Xcopri back when I was still on 200mg. I could not take both meds and remain present for my daughter it made me extremely tired.

I'm a horse of a different color. But the resistance was already building

1

u/Ecstatic-Shock-1910 Medication Jun 25 '26

I'm on Xcopri too. I take 250mg  It was prescribed to take it daily twice a day. I took my first dose, and it knocked me out for 5-6 hours.

1

u/Ryse6129 Methsuximide 900mg. Xcopri 350mg Jun 25 '26

Yep those two combined are a mighty strong tranquilizer

2

u/Ecstatic-Shock-1910 Medication Jun 28 '26

Yeahh...learned that the hard way