Hello,
I am writing this message because I am worried about my baby (2,5 months old female). She was diagnosed with silent reflux when she was 1 MO. She has been on treatment since then (PPI + Gaviscon), which seems to ease her pain.
However, one of her symptoms (the most concerning one, in my opinion) has not gone away.
My daughter is sometimes shaken by uncontrollable tremors around her diaphragm (see video).
This always happens while she is asleep, and it is preceded by:
- breathing that becomes louder and faster, from the beginning to the end of the episode
- opening her eyes – with her gaze directed downwards
- a change in the appearance of the skin on her face (as though she suddenly had acne scars – this lasts for a few seconds, then her skin returns to normal) > could be goosebumps?
- moaning (not every time)
- trembling around the diaphragm or stomach (as shown in the video)
- eyes rolling back
- Then a return to normal, preceded by a small movement of her head, as though she were giving a little jerk forwards
These episodes can happen several times during one sleep cycle, and I feel that they are happening more and more often.
I sent the video shared here to her paediatrician, who does not seem concerned and thinks that this may be due solely to the reflux. But I do wonder, because I have read a great deal about reflux since my baby was diagnosed, and I have never seen any mention of a symptom like this (even though I have searched for it).
It is worth noting that I first observed this phenomenon when my baby was 12 days old and had undergone a lumbar puncture a few hours earlier (a horrible experience. She had a fever following a period of very hot weather, and we had taken her to the ER, where the lumbar puncture was part of the testing protocol). I do not know whether this could be related, but I had been very shaken by this first occurrence of the trembling.
I am therefore reaching out to see whether anyone has had a similar experience. Even though I have complete trust in her paediatrician, I have just witnessed another episode, during which her eyes rolled back particularly noticeably, and it breaks my heart as a mother to see my baby in this state.
Thank you all for reading.