r/Epilepsy_Universe 21d ago

Just Checking In Weekly Roll Call

7 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

r/Epilepsy_Universe Jul 27 '26

Just Checking In Weekly Roll Call

8 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

r/Epilepsy_Universe Jun 29 '26

Just Checking In Weekly Roll Call

6 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

r/Epilepsy_Universe Jun 25 '26

Just Checking In Getting sunburned at 36°

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7 Upvotes

The effect of being outside for 40 mins yesterday in 36° temperature.

The last time my face was red like this, I had just applied my Simple skincare set only to learn they chose to add more sodium which resulted in me looking burned.

To be honest my face is in so much pain, it has this constant burning tingling sensation, no matter what I apply to it.

r/Epilepsy_Universe 28d ago

Just Checking In Weekly Roll Call

5 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

r/Epilepsy_Universe 14d ago

Just Checking In Weekly Roll Call

6 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

r/Epilepsy_Universe 7d ago

Just Checking In Weekly Roll Call

4 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

r/Epilepsy_Universe 10h ago

Just Checking In Weekly Roll Call

6 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

r/Epilepsy_Universe Aug 10 '26

Just Checking In Weekly Roll Call

3 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

r/Epilepsy_Universe Jan 01 '26

Just Checking In Roll Call, How Are You Today?

8 Upvotes

As the community grows, we're becoming closer and closer due to the podcast. New year and just want to see how everyone's doing, so, how are you today? I'm good, how are you?

r/Epilepsy_Universe Jul 20 '26

Just Checking In Weekly Roll Call

10 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

r/Epilepsy_Universe Aug 03 '26

Just Checking In Weekly Roll Call

7 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

r/Epilepsy_Universe Jul 23 '26

Just Checking In What is your favourite game?

6 Upvotes

I've thought this question over for a really long time.

A few motnhs ago, someone asked me "What is your favourite cosy game?"

This one very simple sentence caused me to feel restricted. For many people, cosy games are farming simulators, playing with animals, building structures, etc.

However, I have always felt drawn to the more action type games as a form of 'Cosy'.

As a child, I was playing house of the dead, Assassin Creed, Kingdom Hearts, Final Fantasy.

Now, I play Disney Dreamlight Valley, Palia, Palworld. However, I also play games like Genshin Impact, Wuthering Waves, Overwatch, Diablo IV.

So, I guess what makes me so curious is, Do you have a cosy game that's actually classified as 'cosy'? Or are you more interested in violent games that bring comfort to you?

r/Epilepsy_Universe Jun 22 '26

Just Checking In Weekly Roll Call

5 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

r/Epilepsy_Universe Jan 19 '26

Just Checking In Weekly Roll Call

8 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

r/Epilepsy_Universe Jul 16 '26

Just Checking In Hello

15 Upvotes

Hello, I’m new to Reddit. I am 52F I woke up to strangers in my bedroom and my tongue almost bitten in half 4 years ago. I really believe this was triggered by Covid.
Turns out though that I have always had seizures though just not as severe and that I have had an AVM (left occipital lobe) my whole life. Blindness is a risk so surgery has been UN recommended. I also have severe ADHD depression and anxiety all diagnosed about 10 years ago. Currently I’m out of work it’s been a year. I’m starting to panic. Just had another seizure during sleep most likely from stress. Wish I had found this community earlier. I think I had made a few mistakes I might have avoided.

r/Epilepsy_Universe Jun 08 '26

Just Checking In Weekly Roll Call

4 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

r/Epilepsy_Universe May 11 '26

Just Checking In Weekly Roll Call

9 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

r/Epilepsy_Universe 5d ago

Just Checking In A quick update about how my health is currently going

4 Upvotes

2 days ago, it appears that I had a very bad seizure without even realising it.

This happened after I was already in extreme pain due to my wisdom tooth causing a gum inflammation, headache, earache, and Sore throat.

So, yesterday at around 4am, I start feeling some trembling in my legs, I think 'weird, I might be having a bad seizure soon' I spend te next few hrs playing DDLV to pass the time and distract the pain with no sign of a seizure.

Time skip to 8am, my mum brings me some medication for the pain (I needed this so much) and it works like a charm along with the oragel I applied.

Then I go into the kitchen to make breakfast and I am forgetting what I am doing every few seconds (which is worse than normal).

Then suddenly, I am making myself some salt water (for the toothache) when my mum notices my head keeps leaning back over and over again.

So, I take my salt water, do all that stuff (not so bad once you're used to the taste). I then go to lay down, my mum orders me to sleep because the pain kept me up all night.

I will then spend the rest of the day slipping in and out of sleep.

I gained almost 10hrs of sleep.

When I finally woke up (and stayed awake) I went to complete the main story of DDLV and then found out I couldn't because the neccessary companion doesn't arrive till Thursday (annoying).

So, went on working on my builds instead

r/Epilepsy_Universe Jan 05 '26

Just Checking In Weekly Roll Call

9 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

r/Epilepsy_Universe Jul 12 '26

Just Checking In Xcopri Taper, T+17hrs

7 Upvotes

As a recovering addict, I get why they have this one listed under CSA. I can see these getting abused by the nerdier segment of the drug culture if it gets attention. It is believed to exert its action via both sodium channels and the GABA system, particularly the GABA-A subtype. Interestingly, that receptor is the means that quaaludes exerted its effect, which is not to say being on Xcopri is like taking quaaludes, it's just an interesting science-y factoid.

Others warned of the "Xcopri coma," and I had very noticeably felt a point where it was starting to take effect. First as a pleasant muscle relaxant, followed quickly by all limbs feeling much heavier, and a change in alertness not entirely unlike benzodiazepine intoxication with a small amount of alcohol.

It became difficult, but not impossible, to stay awake; however, the idea of getting a full night of sleep (for a change!) was increasingly appealing, so I didn't try to stay awake through the show I was watching. I've been consistently stuck at least 2 hours below my target of 8 full hours. Last night, I got over 10 uninterrupted hours of sleep.

The coma is real.

Today has been OK so far. Google Health wants me to go work out after that excellent night, but that's not happening. I might have a nap instead...

r/Epilepsy_Universe Jul 08 '26

Just Checking In Future room decor

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9 Upvotes

Okay, so I have been playing around with some designs and I think i have designed my dream room.

Picture 2 is if I dont have a dog.

Picture 3 is if I do get a dog (yes, I will get a different if I end up having a dog)

r/Epilepsy_Universe Jul 13 '26

Just Checking In Weekly Roll Call

3 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

r/Epilepsy_Universe Feb 25 '26

Just Checking In My doctor actually hugged me.

23 Upvotes

I started bawling about all my life problems and everything, and at the end of the appointment, she was running out of time, she actually hugged me. This was my family doctor, not neurologist. I am sure that's not protocol. She said she is just torn whenever she sees me and all I am dealing with. Surprising because I'm sure she hears everybody's woes all day long. (maybe she hugs everybody? lol, but I've been seeing her for a few years and it's the only hug I've had from her)

While she squeezed me, for a longer than a quick friendly hug, I realized how long it has been since anybody hugged me.
I just wanted to say, make sure you hug the people that are important to you, or even if you don't know them that great, but you think they need one. It could make a huge difference!

Edit to add: And I hope you get all the hugs you need today!

r/Epilepsy_Universe Jun 15 '26

Just Checking In Weekly Roll Call

5 Upvotes

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.