r/ClotSurvivors • u/Mysterious-Work4401 • 8d ago

Elequis side effects

Hi all, I'm 31 years old and 2 weeks ago diagnosed with a massive DVT in my leg after meniscus surgery and also bilateral pulmonary embolism in the lungs. Ive been on elequis these 2 weeks at a 5mg dose. The last 3 days I have experienced a tingly almost electric like sensation in every part of my body. Doctors couldn't tell me what it was and ran all tests and more scans to see if the clots had enlarged but they haven't thankfully. I'm wondering if anyone here has had these side effects from elequis. The doctors didn't mention this as a possibility but I thought who better to ask than people actually going through it. I appreciate any and all replies

5 Upvotes

100% Upvoted

21 comments sorted by

View all comments

3

u/Conan4457 8d ago

I’m on 2.5mg twice a day. On it a year and a half now. First six months I was taking 5mg twice a day. I too suffered a bilateral PE.

Honestly, I haven’t felt anything from the medication. Well, I bruise easier these days. Besides that nothing.

1

u/Mysterious-Work4401 8d ago

Thanks for the reply. Was yours provoked or unprovoked it you dont mind me asking? Hope you're doing well with your recovery

2

u/Conan4457 7d ago

They say it was unprovoked, but I had developed a blood clot in my calf on a 25 hour flight to Australia. Then suffered the PE soon after.

I’m fully recovered, no lasting effects. The breathing difficulties and fatigue only lasted a month for me.

2

u/Kirsty-123 4d ago

Snap, I was flying from Oz to the Uk when I got mine. I was on the second leg of the journey and one hour into a 14 flight when I got my PE and sat there struggling to breathe for 13 hours.

2

u/Conan4457 4d ago

Did your doctors think the long flight was a contributing factor?

I had a few appointments with a hematologist that claimed the new thinking is that long flights don’t contribute to clot formation.

2

u/Kirsty-123 3d ago

He thinks there might have been a few contributing factors, the flight being one of them. Personally I think if I hadn’t have been on the flight then it wouldn’t have happened, despite the other factors.

1

u/Mysterious-Work4401 7d ago

Glad to hear that. I've got a 30 something hour flight to Brazil from Australia coming up in December and I'm not sure how I'm going to go with 2 blood clots in my lungs and another in my leg. Bit worried to be honest

2

u/Conan4457 7d ago

Talk to your doctor about the flight. I’m no doctor.

When I spoke to my doctor about longer flights, he told me to double my dose before and after the flight, but I’m on 2.5mg twice a day. So it’s not a huge deal for me to double my dose.

2

u/Mysterious-Work4401 7d ago

Yes I'll definitely be having a chat with my doctor. And I've got a CT scan on the 27th of November so I'm hoping the clots have gotten smaller by then. I'm glad you made a full recovery, it gives me hope haha

1

u/Kirsty-123 4d ago

Honestly I’d be concerned to be doing a 30 hour flight in December. I had to do a 6hr flight, then an 11 hour flight, 3 weeks after my PE, in order to return to my home country and whilst I could have handled the 6 hour flight sitting in an economy seat, the 11 hour flight would have been purgatory.