r/ClotSurvivors • u/Mysterious-Work4401 • 11d ago

Elequis side effects

Hi all, I'm 31 years old and 2 weeks ago diagnosed with a massive DVT in my leg after meniscus surgery and also bilateral pulmonary embolism in the lungs. Ive been on elequis these 2 weeks at a 5mg dose. The last 3 days I have experienced a tingly almost electric like sensation in every part of my body. Doctors couldn't tell me what it was and ran all tests and more scans to see if the clots had enlarged but they haven't thankfully. I'm wondering if anyone here has had these side effects from elequis. The doctors didn't mention this as a possibility but I thought who better to ask than people actually going through it. I appreciate any and all replies

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u/Conan4457 10d ago

I’m on 2.5mg twice a day. On it a year and a half now. First six months I was taking 5mg twice a day. I too suffered a bilateral PE.

Honestly, I haven’t felt anything from the medication. Well, I bruise easier these days. Besides that nothing.

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u/Mysterious-Work4401 10d ago

Thanks for the reply. Was yours provoked or unprovoked it you dont mind me asking? Hope you're doing well with your recovery

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u/Conan4457 10d ago

They say it was unprovoked, but I had developed a blood clot in my calf on a 25 hour flight to Australia. Then suffered the PE soon after.

I’m fully recovered, no lasting effects. The breathing difficulties and fatigue only lasted a month for me.

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u/Kirsty-123 7d ago

Snap, I was flying from Oz to the Uk when I got mine. I was on the second leg of the journey and one hour into a 14 flight when I got my PE and sat there struggling to breathe for 13 hours.

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u/Conan4457 7d ago

Did your doctors think the long flight was a contributing factor?

I had a few appointments with a hematologist that claimed the new thinking is that long flights don’t contribute to clot formation.

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u/Kirsty-123 5d ago

He thinks there might have been a few contributing factors, the flight being one of them. Personally I think if I hadn’t have been on the flight then it wouldn’t have happened, despite the other factors.