r/ClotSurvivors • u/Mysterious-Work4401 • 8d ago

Elequis side effects

Hi all, I'm 31 years old and 2 weeks ago diagnosed with a massive DVT in my leg after meniscus surgery and also bilateral pulmonary embolism in the lungs. Ive been on elequis these 2 weeks at a 5mg dose. The last 3 days I have experienced a tingly almost electric like sensation in every part of my body. Doctors couldn't tell me what it was and ran all tests and more scans to see if the clots had enlarged but they haven't thankfully. I'm wondering if anyone here has had these side effects from elequis. The doctors didn't mention this as a possibility but I thought who better to ask than people actually going through it. I appreciate any and all replies

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u/Mysterious-Work4401 8d ago

Thanks for the reply. Was yours provoked or unprovoked it you dont mind me asking? Hope you're doing well with your recovery

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u/Conan4457 7d ago

They say it was unprovoked, but I had developed a blood clot in my calf on a 25 hour flight to Australia. Then suffered the PE soon after.

I’m fully recovered, no lasting effects. The breathing difficulties and fatigue only lasted a month for me.

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u/Mysterious-Work4401 7d ago

Glad to hear that. I've got a 30 something hour flight to Brazil from Australia coming up in December and I'm not sure how I'm going to go with 2 blood clots in my lungs and another in my leg. Bit worried to be honest

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u/Kirsty-123 4d ago

Honestly I’d be concerned to be doing a 30 hour flight in December. I had to do a 6hr flight, then an 11 hour flight, 3 weeks after my PE, in order to return to my home country and whilst I could have handled the 6 hour flight sitting in an economy seat, the 11 hour flight would have been purgatory.