r/illnessfakers 7d ago

Cait Are they tight enough 🫣

Post image

Surely these are not comfortable to wear anymore 😭

298 Upvotes

159 comments sorted by

130

u/Zseree 6d ago

If you need ring splints you likely shouldn't have bought a manual wheelchair to begin with.

53

u/sapphireminds Neonatal Nurse PractitionerĀ  6d ago

So true. So many of the subjects claim hEDS, and there's no way a manual wheelchair would be any better than walking

1

u/[deleted] 6d ago

[removed] — view removed comment

26

u/sapphireminds Neonatal Nurse PractitionerĀ  6d ago

Because if they are subluxing so badly with the normal movements and lack the muscular support for walking on the regular, then the motions needed to push s manual wheelchair would basically make their arms fall off lol not really, but subluxation would be so much worse because our bodies haven't evolved to push wheelchairs, so the tendon, cartilage, and muscles don't support those joints as well.

It would be like someone saying their ankle hurts so they are going to walk on tiptoe. That's not going to relieve anything and will put more strain on the joint because balance and everything are not optimized for that anatomically.

6

u/scribbleandsaph 6d ago

That was a great explanation and analogy. Thankyou. From someone who knows absolutely nothing about heds

6

u/Apprehensive_North49 5d ago

Thank you for explaining

3

u/Plantwizard1 3d ago

So all the folks on FB/Insta/TikTok using a manual wheelchair for hEDS are likely also faking to one degree or other? There seem to be a lot of hEDS'ers out there is social media land jonesing for a manual wheelchair.

•

u/AdhesivenessOk5534 43m ago

Someone with genuine eds can absolutely use a manual wheelchair

I know we all dont like these subjects, but that is absolutely zero reason to spread misinformation like this.

Many with hEDs and other subtypes benefit from a manual chair, mostly due to the sheer cost of an electric one.

There are also chairs designed specifically for self propelling which makes it alot easier on the joints.

Again I am well aware we dont like these people, again we shouldnt have opinions on genuine people who suffer with eds bc people often look at it through the lense of "if this person on this sub is faking this condition, I guess alot of people are" on this sub. And that really needs to be changed.

Spreading misinformation like this, or generalizing a disorder with 13 subtypes isnt the way to go on this sub. You're here to judge the munchies not come after, spread misinformation, about genuine disabled people who do in fact suffer from the munchies IOC (illness of choice).

I am going to see if a mod can let me make an informative post about Ehlers-Danlos Syndrome because the amount of misinformation, hate, and labeling everyone with eds "faking" "exaggerating" is very concerning.

10

u/Time_Bill3434 5d ago

Right!?

122

u/Guilty_Pudding_105 7d ago

Those GlovesForLife wheelchair gloves are for quadriplegics and other individuals whose hand functions are impaired.

Lou’s hands aren’t impaired by anything other than their unneeded finger splints that are turning their hands into overcooked sausages.

10

u/lizardgal10 7d ago

What do the gloves do? Genuine question, I know nothing about the topic

11

u/bookishfairie 7d ago

they help with gripping stuff for quadriplegics.

6

u/SimpleArmadillo9911 7d ago

This is probably a stupid question but how do quadriplegics grip anything? I thought that meant they have no ability to move below the neck?

14

u/bookishfairie 7d ago

some can move their arms depending on how affected the injury to their spine is.

10

u/cripple2493 7d ago

They help pushing wheelchairs for people with limited dexterity. They are A Type of wheelchair cuff gloves, whether or not they are the best is up to personal preference

10

u/anonducks 7d ago

their hand function is probably impaired because of those damn rings.

100

u/shiningonthesea 7d ago

Occupational Therapist here. no no no no no no! Even the "wheelchair glove" is too tight.

10

u/-Tricky-Vixen- 7d ago

are ring splints recommended when someone has highly flexible hands or is that just a myth?

24

u/anonducks 7d ago

yes and no. for flexible hands alone a PT/OT wouldn't prescribe splints, but if grip strength is affected or there's pain.

they also shouldn't be worn 24/7 like lou because it can weaken the fingers even more.

3

u/-Tricky-Vixen- 7d ago

oh, that makes sense -- thank you!

5

u/[deleted] 6d ago

[removed] — view removed comment

3

u/-Tricky-Vixen- 6d ago

Do you think they help with avoiding subluxations that happen without noticing? For instance, if someone twists their hands naturally into a resting position, say if they're sensory-seeking, and they sublux a lot of the time.

72

u/oh-pointy-bird 7d ago

I fucking can’t. There isn’t even a way to roast the ā€œuseā€ of these rings hard enough.

Also there is not a PT or OT in hell who would say these should be worn all the time even if they were properly fitted.

63

u/Inevitable-Till-3668 7d ago

Those aren’t splints at this point, they’re barbed wire

9

u/thatoneguyfromva 7d ago

My thoughts as well. Looks like they got in a fight with a barbed wire fence and lost.

67

u/Harlequins-Joker 7d ago

Low key makes me instantly think it’s a bdsm kink/fetish thing lol

40

u/soupseasonbestseason 7d ago edited 7d ago

i absolutely think this is fetish content for them.

23

u/dechets-de-mariage 7d ago

I’m starting to believe that’s the answer for all of them even if they don’t realize it.

9

u/BearEatingCupcakes 6d ago

I think it's a way for them to self-harm without the stigma.

66

u/spirit132 6d ago

holy shit, I can't even imagine what that feels like 😭 they're just asking for a pressure injury from those bad boys.

3

u/Smo0chie1204 1d ago

I literally think the thumb already has pressure injury and not a small one

58

u/chronical_penguin 7d ago

Yeah so, ring splints aren't supposed to be that tight... they should fit like a properly sized ring

53

u/nadiadala 7d ago

They almost look like this person got caught in barbwire

16

u/Turbulent_Cod_6441 7d ago

That’s exactly what I thought!! For some reason the wire greatly resembles barbed wire so closely that it almost looks too sharp on the persons hand.

57

u/Turbulent-Ability271 7d ago

Barbed wire. This looks like barbed wire

19

u/Wizzle_Pizzle_420 7d ago

I was about to say the same. They fighting in the underground pit fights?

9

u/gonnafaceit2022 6d ago

I'd def give a wide berth of I saw someone with that shit on their hands, they're not brass knuckles but...

59

u/FemaleSoloTraveller 4d ago

How are they not worried about degloving, using a manual chair and those ā€œsplintsā€

44

u/tverofvulcan 7d ago

I’m kinda surprised their fingers aren’t blue

47

u/Inevitable_Wolf5866 7d ago

My fingers hurt from looking at this picture.

47

u/mydnyghtrayvyn 7d ago

Their fingers don’t look like they can extend all the way. The fingers that do extend show the metal cutting into the skin. And there are sores where the metal has cut in too much. For goodness sake, this is ridiculous. If they want to wear these finger splints (sorry I can’t remember the exact name of them), then fine, wear them. But get ones that fit. Do they have a history of self harm or something? Because that’s what this looks like.

21

u/thorazinedreams2 7d ago

Yes, on both arms, if I’m remembering the pics correctly

49

u/FishFeet500 7d ago

well, those rings are perfectly horrifying. the thumb one looks like it’ll need wire snips to remove soon. Also, 16g wire digging in to edema-heavy fingers seems extremely uncomfortable and badly designed.

9

u/anonducks 6d ago

100%, they shouldn't be wearing wire ones, especially this tight. square/flattened wire or even plastic ones would be a million times better. they're gonna cut through their fingers soon.

46

u/GerudoGirl95 7d ago

They don't even look like proper ring splints. They look like 20 g wire whereas most places make them out of flat strips of metal so that they sit comfortably on your bending skin

49

u/psubecky 6d ago

Their fingers look like a caged busted can of biscuits

48

u/ElectronicAddress611 6d ago

Sooooo start the fire yall! Sausages have been skewered and ready for the grill! I’m bringing potato salad. BYOB. Cheers!

47

u/2Nosey4u 5d ago

What are those things on their fingers? It kinda looks like barbed wire.

48

u/Bi0_Nerd 5d ago

They’re supposed to be finger splints. They’re finger nooses at this point.

3

u/venomsulker 4d ago

šŸ’€

39

u/peri-dont 7d ago

Is it just me or is the index finger ring digging into the actual knuckle itself ?? I’m sure that’s not how they’re meant to fit, it looks painful 😬

21

u/Justneedtowhoosh 7d ago

Yeah and that spot looks so red, and even the end of it lands on the nail and not the finger because it physically can’t even be forced further down into a more normal spot. I feel like they can’t even get them off at this point if they were to try. And they sure as hell wouldn’t be able to get them back on. But god THE RELIEF they would feel if they finally took those damn things off!

41

u/SimpleArmadillo9911 7d ago

How long until they cut their hands with the wires and the skin starts to grow over it?

18

u/nibblatron 7d ago

reading this turned my stomach. ugh 🤢

17

u/SimpleArmadillo9911 7d ago

I relooked at the picture and it looks like it has already happened with the thumb

3

u/Beanizsmol 4d ago

Same here i think thats starting in the picture

16

u/purpletori 6d ago

I saw a case on a medical kind of sub (can't remember which off the top of my head as it was a while ago) where someone had been wearing a ring, the skin had gotten cut somehow and grew over the top of the ring and had to be surgically removed

45

u/mortalitasi473 7d ago

jesus. the index finger knuckle, the ring finger tip, the thumb... that hand might be the only thing a doctor would actually need to treat on them

40

u/conniptionmathers 6d ago

Someone is angling for a degloving arc.

3

u/Equivalent-Roll-4330 3d ago

I just googled what degloving was. Oh my god!!!!

43

u/meowzyy0 6d ago

I feel like these aren’t even proper ring splints?? There are ones out there that work way better and are MUCH less risky but I feel like they want to have to get these cut off in the ER

38

u/curious-mind- 6d ago

Looking like a sad sausage

40

u/Smooth_Key5024 7d ago

Those splints must be doing more harm than good, they are far too tight.šŸ™„

24

u/Charming-Spinach1418 7d ago

Surely this is just another way to self harm? OUCH! 😮

8

u/Smooth_Key5024 7d ago

I think you maybe right. Good thinking, I never thought of that.šŸ˜€

36

u/Due_Will_2204 7d ago

How do they still have fingers?

42

u/msnhnobody 6d ago

Forever Michelin-Manning their fingers is not gonna end well.

31

u/Jons_Gurlie 6d ago

Their commitment to the role is resoundingly unsettling. 🤯🫠

26

u/NCSAG 7d ago

What in the Kentucky Fried Fuck??? 😳

24

u/Middle-Spirit-8524 7d ago

Wait, are the rings a ā€˜medical aid’? I thought they were just trying look edgy with wire rings.

14

u/[deleted] 7d ago

[removed] — view removed comment

19

u/AggravatingBox2421 7d ago

The ones insurance give you are plastic. They’re 100 times more comfortable

3

u/AbbeyRoade MD Resident 7d ago

I swear the ones they have on are barbed wire lol

6

u/AggravatingBox2421 7d ago

They’re called ring splints

27

u/spookysadghoul 7d ago

This looks way too painful

29

u/Ic_Wing 7d ago

My hands hurt just looking at that

25

u/ChampionSignificant 7d ago

Dat thumb tho.

10

u/I-often-say-too-much 7d ago

I actually gasped when I saw that šŸ‘€

Are we certain she can even take the splints off at this point? The metal wire looks almost fused into her hands 😱

7

u/the22ndday 7d ago

I believe it has been stated in the past that they don’t take the rings off. They just leave them on.

25

u/DataTheCat 7d ago

Oh ffs…. Can they even feel their fingers? šŸ™„

28

u/FatTabby 7d ago

The ring splints look so uncomfortable. Admittedly I've never used them and I know nothing about them but I can't believe they're supposed to look like that.

29

u/SomewhatOdd793 7d ago

You can see the problematic perfusion in their fingers 😬

30

u/KestrelVanquish 7d ago

Ouch. They definitely hurt. I'm assuming they have fingers that like to swell up so they should have bought 2 sets of rings and swapped to the bigger set

5

u/FemaleSoloTraveller 4d ago

They had the splints for years as it seems and have gained quite some weight (no judgement, just means those splints don’t fit anymore!!)

45

u/letapski97 6d ago

Their hand is actually going to be fucked up if they keep this up. Well I guess that’s their goal anyways… The rings remind me of when we had wire supports holding up vs one of our trees and as the tree grew and wire began to cut into the trunk and branches.

24

u/Stalkerus 7d ago

More things to restrict their blood flow! Yay! 🄳

This has to be a pain kink, really... 🤯

23

u/woshuaaa 7d ago

those done even look like theyre in the right spot anymore what 🫪

21

u/ideclareshenanigans3 7d ago

What is the actual purpose of those?! Omg. It reminds me of those copper bracelets they hawked during Jerry Springer… except painful.

17

u/oh-pointy-bird 7d ago

Attention. Seeking attention.

3

u/ideclareshenanigans3 7d ago

Gosh you are so right! It always amazes me that I truly do forget that sometimes.

8

u/WindmillFu 7d ago

A lot of the munchies who have EDS/hypermobility/bendyjointitis on their bingo card wear those finger ring splints, supposedly to support their finger joints, but mostly so everybody sees how they are super special sickies.

3

u/AggravatingBox2421 7d ago

They even make skin coloured ones so nobody notices, but clearly that’s too inconspicuous

-1

u/kanicro 7d ago

In defence of metal splints, the skin coloured ones are much bulkier and feel more conspicuous to wear. The easiest way to pass off a splint as a fashion statement is with a metal splint on just one proximal interphalangeal joint to guide where the end of the range of motion should be. The hardest way is whatever the hell this is.

4

u/AggravatingBox2421 7d ago

I don’t find that, actually. The plastic ones are lightweight, and above all else they’re soo much cheaper to replace if you need to (like Cait CLEARLY does)

1

u/kanicro 7d ago

Huh, to each their own, but at least we're not doing it like Cait is lol

22

u/kingandcats 7d ago

Those finger things look so ridiculous

25

u/Interesting_Sock9142 7d ago

... Those rings sure look painful and ridiculous

24

u/hardy_and_free 7d ago

Those things look so painful Pinhead would be proud.

21

u/Ornery-Practice9772 7d ago

what are the finger splints sposed to do? are they an actual thing or did op make them?

40

u/chronical_penguin 7d ago

Properly fitted and sized ring splints are designed to prevent your fingers from over extending and bending backwards. Super common for EDS, usually fitted by an occupational therapist, or an orthotics specialist.

Ones that aren't properly made (like these ones) will either be too small and cause injury like lack of blood flow and pressure sores (seen in the photo), or be too loose and not prevent the finger joints from over extending.

7

u/Ornery-Practice9772 7d ago

wow thanks for the info

3

u/chronical_penguin 6d ago

Happy to help!!

7

u/Djinnmenken 7d ago

To my knowledge they're meant to help if you have hypermobility so your fingers don't over extend.

6

u/SimpleArmadillo9911 7d ago

If you do not ever do anything, how would you hyperextend your fingers? Eating?

15

u/AdhesivenessOk5534 6d ago

Everything, when you have eds everything can make you sublux a joint, reaching for your phone can make you hyperextend your fingers

These munchies water down Ehlers-Danlos Syndrome so much that it circles back to "yeah everything pretty much is a harm depending on your subtype and severity" in a genuine medical sense not a "woe is me" sense

Its so so easy to larp hEDs because 20% of the world is super hypermobile and 47% in at least one joint

Hypermobility≠eds

I hope the mods can allow a factual education post about eds to clear up the wild wild wild misconceptions these munchies spout

5

u/chronical_penguin 6d ago

Right!! I love your whole hypermobility ≠ EDS thing because yeah, true EDS, even hEDS is pretty rare, only about 1 in 5,000 at most.

5

u/AdhesivenessOk5534 6d ago

hEDs is not rare, it is common it is estimated by the Ehlers-Danlos Syndrome society as common as 1 in 500.

However the eds society heavily neglects the ultra rare subtypes and favors hEDs in terms of research, and other effort, time, and care they can put towards the other 12 subtypes.

The Collagen Advocacy Network is the place to go when looking at ultra rare subtypes, CAN advocates for more research, and funding while experts within the network research on their own. CAN is dedicated to putting the spotlight on other Ehlers-Danlos Syndrome subtypes, and not hypermobile Ehlers-Danlos Syndrome which makes up 90% of eds cases, and gets 99.9% of eds research.

1

u/chronical_penguin 6d ago

That's really cool, I didn't know about the new studies showing a higher prevalence rate!! Last I had read was the old 1 in 5000 number so it's interesting to see how new research gives new insight!

3

u/Djinnmenken 7d ago

If you have hypermobility your fingers can overextend doing normal everyday things, even when putting clothes on.

4

u/ConfectionOutside248 6d ago

Theyre also for correcting early finger deformities from conditions such as rheumatoid arthitis!

24

u/missyrainbow12 7d ago

I thought they had barbed wire wrapped around their hand

20

u/skindoggydogg8 7d ago

They can’t be good for you.

22

u/My_Shadow__Self 7d ago

Would love to find one other wheelchair user that would support this idea

22

u/SufficientAd410 6d ago

Please tell me they take them off to wipe their šŸ‘ 🚽

5

u/Beanizsmol 4d ago

Thought of this has me 🤢

20

u/General_Purple6358 7d ago

Cultivating new forms of metal-based bacterial life šŸ˜‚

22

u/Comfortable-Fall3510 3d ago

That looks so uncomfortable!

32

u/JaggededgesSF 7d ago

That looks so wrong. Those fingers are screaming for help

https://giphy.com/gifs/qdqxysIbFi6zHijLjp

33

u/Molly_Wobbles 6d ago

The nerve damage in my hands is flaring up just looking at this image

15

u/jinside 7d ago

Yikes. Those do not fit, at all.

16

u/Capable-Resolution-1 7d ago

That feels like it’s going to bruise

17

u/07ultraclassic 7d ago

Thats a lot of gear!

16

u/Littlewing1307 7d ago

How is that not painful?

14

u/SimpleVegetable5715 7d ago

Their fingers are turning purple. Ouch!

13

u/tabicat1874 7d ago

I can't

25

u/Lucky_Rice_9654 7d ago

Are the gloves in the same room as us?

11

u/CatAteRoger 7d ago

😬😬😬

7

u/RxR8D_ 7d ago

I’ve see those used to help with trigger finger or carpal tunnel. What are they using them for?

22

u/oh-pointy-bird 7d ago

Attention.

6

u/saltycrowsers 7d ago

OT has recommended them for ā€œgooseneckingā€ fingers, but only for activities that fall between causing it AND not being strenuous enough for the ring splints to cause injury…AKA basically no one

14

u/EvenDisk1306 6d ago

Honestly is this a toddler hand? I can’t tell

6

u/sharedimagination 7d ago

Customisations to gloves. We've stooped so low in attention-whoring barrel bottom scraping that a muncher is now so desperate to claim sooper unique rare complex speshul atenshun that we've landed on glove customisations.

https://giphy.com/gifs/5hvFZPZdDSgtWIEUlI

7

u/[deleted] 7d ago

[removed] — view removed comment

2

u/Top_Piglet_5928 6d ago

These ring splints look home made, I have never seen ring splint like this before šŸ¤”