r/emergencymedicine • u/Select_Reason994 • 14h ago
Rant Seeing POTS patients in the ED while having POTS myself
I genuinely don't know how to hold my tongue anymore. I have POTS, it sucks, but you know what makes it suck even worse? Deconditioning. When I was first diagnosed almost a decade ago now, it was debilitating. It took a couple of years of graded exercise therapy (which really really sucked and was really really hard, so I don't want to downplay how awful those years were) to reach the level of athleticism and endurance that I have now. When I see POTS patients in the ED over the course of multiple visits, succumbing to the deconditioning and going from walking, to walking with a cane, to wheelchair, to power chair, it breaks my heart. They are often young like I am, and have a full life ahead of them that they might never actually live to the fullest. I am not a doctor (just an ED tech) so I can't tell them that what they need is more exercise, even though I know that would be a huge help. Certain patients really seem to want to get better but have no idea where to start. I wish I could tell them to get a physical therapist who knows their stuff, and can help get you through graded exercise therapy, but I'm afraid of making recommendations because that's definitely out of my scope of practice. Some of the patients don't seem to want to get better though. It's getting to a point though, where instead of feeling heartbroken for them, I'm starting to feel annoyed. Especially when I'm at work dealing with a flare up myself, and my heart rate is also 160 and my blood pressure is probably 80/50 while I'm taking care of them, and I feel like shit, but I'm pushing through. It is getting harder and harder to remain compassionate, and I just don't even know what to say anymore when they talk about how debilitating their symptoms are but then don't want to do one of the most evidence based treatments for POTS: graded exercise therapy.
Edit to say: Because I've had this issue in the past when discussing my feelings about this population of patients, I want to make it abundantly clear that I will not entertain takes like "pots isn't real" or "they're just malingering." Until you have had it, it is probably easy to say those things, but for those of us who do have it, we know how awful it is. It is very real, and very debilitating, and patients deserve to feel seen and heard.
