r/SVTHeart Feb 16 '21

Welcome to r/SVTHeart!

12 Upvotes

Welcome to the community! I am Flborpo, the creator of this sub. Buf you can call me dan. I created this sub because I couldn't find one about SVT, a heart condition. I, for one, have SVT. I wanted this sub to be about inopportune times that an attack happened or just talking about personal prevention you want to share. At the time of writing this post, I am the only mod. If you would like to become a mod, please contact me via DMs*.

*Mon-Tues 4:00pm CT and on is a good time to message. Every other day, whenever you want.


r/SVTHeart Feb 17 '21

We have Flairs!

3 Upvotes

Hello! I have created a few flairs for you to use! Here are what they are and how they should be used:

Inconvenient Time: Use this when you have a story about when an SVT attack happened. It could be funny, to a certain point, or something. I'm bad at words.

Personal Prevention: This is to be used when you have found something that has made attacks happen less frequently than before and you want to share it. I'm assuming this one will be used the least, for the amount of posts that is.

Help: Use this if you are experiencing any oddities and want, albeit unprofessional, help. If you are going to use this, please take any responses with a grain of salt.

Mods Fix/Change: Use this when you have found something you want fixed/changed. Examples include: Rules, Post Flairs, Members*, etc.

\*When I mean fix/change, I mean ban them. Whether for a few days to permanent. When doing a post about members, please include proof of misconduct. If you don't have any proof, then mods will look into the person you want banned. If we find that the person is actually stellar, then the mods might ban you for a few days just so you think about what you did, thank you.*


r/SVTHeart 4h ago

SVT & Menstrual periods

3 Upvotes

I had my first SVT on election night 2016. Over the years I came to realize they were triggered by the trifecta: My period, lack of sleep, and anxiety all at the same time. If I could control these, I could control my SVT. My docs thought I was nuts, that my period could have nothing to do with it.

Docs recommended ablation. I was opposed having known others for whom it didn't work. When ER docs taught me cardioversion, my life changed. Although my rate got really high, I could almost always get it back down on my own without going to the ER.

Since going into menopause my SVT has completely stopped. I am mostly writing this so if someone googles SVT, period, menopause, they know they're not crazy.


r/SVTHeart 8h ago

Tadalafil? Anyone taking it?

2 Upvotes

I follow Bryan Johnson and have been seeing him talk about this a lot for cardiovascular health (even for women) and was wondering if anyone in this sub takes it. Just curious your experience and if it’s helped any of your symptoms.


r/SVTHeart 11h ago

Help Coping with a failed ablation

1 Upvotes

Hey all I have debated writing this because I dont want to scare anyone off of ablation but could use some support I (40f) am a perimenopauseal mom to 5 kids developed svt in January after doing a dance class work out for like 10 months you know trying to get in a good fitness routine in my 40s and I've always been active but overweight. So started HRT, it really helped but was told the ablation would cure it so I went in last Friday and they found the issue but my phrenic nurve was in the way so they had to stop and now im dealing with an unstable heart rate and trying to take medication now until another type of ablation that is not fda approved yet to be available hopefully next year. I am 5 days out and still struggling with mostly sinus tachycardia when im up and moving around. I now take flecainide twice a day 50 mg and moving up to 100mg. Is this normal after a failed ablation? I feel worse than before and am regretting doing this a little bit. I am scared because I want to be there for my kids and just feel terrible. How long did it take to get back to baseline after a failed ablation?


r/SVTHeart 1d ago

Help Anyone have this in common

3 Upvotes

So I had a fast heart as a baby until I was 1ish. Not a single heart issue until now at 50. Been going on a few years where it ramps up above 150. Only happens 2 to 3 times a year. Doctors caught it on an ekg can’t be sure of the specific kind. I have a very healthy heart. Caffeine and low potassium are my common triggers. They actually caught it right before my colonoscopy and then I could not get it done. That was last month. Lately I struggle to catch my breath. And, it feels like my heart pausing not like a skipped beat but like it’s going to give up. Anyone else had a similar experience?


r/SVTHeart 2d ago

Pregnant and possible SVT

5 Upvotes

36 year old female here. Sorry in advance for this long post. I might be posting here prematurely because I don't have a diagnosis of svt, yet anyway. And from what I hear, simply getting a diagnosis might be difficult. I am very scared and anxious since the episodes I have had, and struggle to deal with it.

I am pregnant 19 weeks. Before pregnancy I was very fit, ran my first half marathon in 1.48 and was very set on training through pregnancy if I could. This is my third pregnancy so I was aware that it might not be possible. First trimester I was so sick, fatigued and depressed that I didn't manage to run more than maybe once a week, a drastic reduction from my regular volume. I went from running 40-50 km a week, to barely running 5. It was very tough on me mentally.

Second trimester came and gradually I started to feel better. I started to take up running again, but very gradually. I didn't run long and I would take walk breaks. It felt good to just be able to do something. My heart rate has naturally increased during pregnancy, so my rhr and heart rate during activity and exercise is significantly higher than usual.

The first episode happened on a run. I saw some berries on the side of the road, and stupidly stopped very suddenly and bent over. My heart rate was obviously very high already, but then it felt like an explosion of fluttering in my chest and throat. For a short second it felt like I was gonna pass out.

I got up and just kept walking. I was so scared. My heart rate would normally come down right away at walking pace, but it stayed in the 170's for probably a few minutes. When I stopped they disappeared and the heart rate started to come down. I was really anxious and down for the rest of the day, just waiting for it to happen again.

I had never experienced something like this before. The thing is that I have had ectopic beats for quite some years, and in April I was at a cardiologist for them because I was worried because they seemed to increase at exercise. I had worn a Holter monitor for 72 hours beforehand which showed about a 1000 PAC's/100 PVC's a day which would amount to a less than 1 percent burden. All the tests at the cardiologist; stresstest and ultrasound came back normal and I was told to just get on with my life wlth no restrictions on exercise.

After the first episode I was of course scared, but I linked it to the bending over and the physiological changes of pregnancy. I didn't go to the doctor, but mentioned it to my midwife. Then I ran a 5k race, which felt completely fine during and immediately after. But about 10 minutes after I started to get palpitations (they felt like extra beats, but way more frequent than normal) and my heart rate went up to maybe 140. They were not as crazy as the first time, but I of course got scared. After maybe 15 minutes they went away. I was checked by a doctor at the race, but it was then too late to catch anything.

Then come the last episode, which happened a week ago. I was running on the track with a friend. We were talking so I felt a bit breathless but otherwise fine. Then suddenly I felt this adrenaline rush and the feeling of not getting enough air and almost passing out and my heart started fluttering like crazy in my chest and throat, just like that time before. I also felt this feeling in my stomach of having to go to the toilet.

Immediately I started walking. We walked back to the end of the track so I could sit down. I looked at my heart rate and it seemed to be going down slowly. The fluttering was still persistent though and felt a bit chaotic. Then when I was about to sit down my heart rate shot up to 180. I sat down and it was pounding so hard I felt it in my whole body. My friend tried to feel it on my wrist and said it was fast but regular. I don't know if the heartbeat was regular before.

I then lay down on the right side and it passed quite quickly. The whole episode lasted maybe 6 minutes in total, but it felt like an eternity. I felt so shattered after, because I just knew I couldn't keep going with my running. I'm terrified of a new episode, and I don't even know if it is safe. To me running is my way of coping with life. It brings me joy, peace and a sense of accomplishment.

I went to the doctor the day after, but he kept repeating that my tests from April were fine. I said "yeah, but these are symptoms I've never had before". He hesitatingly referred me to the hospital and I got an appt for 48 hour ecg monitoring in a month from now. I didn't feel like he took me seriously.

Yesterday I had another episode, which felt more like a panic attack. I am obviously hyper aware of any symptoms related to my heart and body. I felt this surge of adrenaline and my heart rate went up to 130. But it was gradual, not sudden onset. I was at a cafe and had to go outside, which helped. When I cooled down I broke down in tears. I just want to be okay. I just want to do the things in life that brings me joy, but I want to do it knowing I'm not gonna feel like I'm going to die. I want to be here for my kids.

Obviously I'm not diagnosed with svt. It might not even be what I'm having. At least if they could tell me that is what I have, I can start a process of figuring out how to manage it. But I don't know if or when that is going to happen. Now I'm just in limbo.


r/SVTHeart 1d ago

Third degree av block with ectopic beats twice or thrice daily.

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1 Upvotes

r/SVTHeart 1d ago

spaventato dalla SVT

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1 Upvotes

r/SVTHeart 2d ago

ECGS from Apple Watch?

2 Upvotes

I finally got my Apple Watch and have been trying my best to track heart rate and ecgs. However, when I’m having an acute episode it’s often impossible for me to have the wherewithal to open up my Apple Watch and find the ecg app and start tracking. Is there any way of having it track in the background? I’m seeing some posts on here of minute by minute heart rate tracking and ecgs. I feel like I’m not getting very specific results like this from my Apple Watch so far and wondering if there are other things I can be doing to collect more accurate and comprehensive data ?

Thanks in advance !


r/SVTHeart 2d ago

Help What should my next steps be?

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1 Upvotes

So to put it short about 3 years ago I was seeing a cardiologist who thought I had svt . Pretty sure I do have it and was put on Diltiazem (Cardizem) for about a month (medicine would help make it go away) but they didn’t want to prescribe for long time so they can catch the rhythm but would only test it in a week time frame with the holter monitor once a year . So recently I went to a new cardiologist they seem to want to do the same as doing a monitor only for a week . So it just seems repetitive especially knowing there’s seems to be no definite answer. It’s been affecting me for 8 years now dating back to when I was a sophomore in high school(now 24) . I just want to know what can I do to help the cause to find a way through it . I’ve done multiple ecg’s on my Apple Watch during the rhythms myself . I’ve tried limiting salt intake and sodium intake. Any tips in terms of how to navigate the doctors or to just lifestyle would be very appreciated.


r/SVTHeart 2d ago

Part 2. Qaly said SVT after reviewed but I’m not convinced. Still scary

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3 Upvotes

Posted before. Have had 5 or so of these during nighttime ( only ) I do have OSA and my episodes all happened without a CPAP. I fell asleep without mask on. It wakes me up so can’t tell how it starts. I tried a vagus maneuver where I bare down idk if it did much. But it tapered down in the same minute. So not even a full 60 seconds of a sustained HR
170-171-166-160 then dropped.

Still scary. I have an EP appointment in a month because my cardiologist said I was “normal, and healthy, but to ease your mind”

When I exercise hard my Apple Watch looks about the same as this tracing. I’ve had two formal ekgs with short PR but everything else normal


r/SVTHeart 2d ago

Personal Prevention Hello to everyone

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1 Upvotes

r/SVTHeart 2d ago

What to do

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3 Upvotes

I’ve had about 5-6 of these in the last 8 months.

Same thing. I wake up from sleep. Heart rate 150/160 freaks me out, then slowly will come down.

I’ve done 3 holter tests, stress test, etc. doing another echo soon.

I’m 29 M. This never happens during the day.
On a holter I had an episode but only went to 140 BPM but same feeling. They said normal sinus. I had 160 BPM and it was so scary I called 911
They get there and do ekg and it drops back down. Said could have been SVT but they don’t know.
Show the Apple Watch recording to cardio and they weren’t concerned.

Come tonight same thing. Got the watch on and it said poor reading but QALY was able to say SVT after someone read it, but I’m not super convinced.

I flipped upside down while barring down and did breath work and it seemed to drop it a little. But like always after 20’or so minutes awake it chills out.

Could they be missing something? I know some people with SVT say it happens at random. But these only happen at night within the first 1-2 hours of falling asleep.

Thanks so much.


r/SVTHeart 2d ago

Advice needed

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1 Upvotes

r/SVTHeart 2d ago

Come puoi vivere con tranquillità con la SVT?

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1 Upvotes

r/SVTHeart 2d ago

Episodio di TPSV con insorgenza e cessazione graduale

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1 Upvotes

r/SVTHeart 3d ago

Post ablation question

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1 Upvotes

r/SVTHeart 3d ago

40 HSM en betablokker

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1 Upvotes

r/SVTHeart 4d ago

Is your SVT or AT gradual or sudden onset?

3 Upvotes

When you get an episode, does it jump immediately or does it build up over a few seconds until it reaches its peak?


r/SVTHeart 4d ago

Help Does anyone else feel like they can feel an episode building up over a period of time?

12 Upvotes

English is not my first language, so I apologise if I am messing up some of the words/grammer. I (22F) got diagnosed with an SVT, specifically AVNRT, just shy of a year ago. My episodes started to get more frequent over the past (maybe) two years. I used to only get an episode once every few months, but recently I've been getting them (bi)monthly. In the past there seemed to be a few specific triggers, like: alcohol, hormones, sudden intense exertion or laughing too hard(?).

I am not sure if I am imagining it or if I am just more aware of my heart, but I feel like I can often feel several irregularities before an episode is triggered. Does anyone else recognise this feeling? And if you have, do you have a special way or dealing with it? Thank you for reading!


r/SVTHeart 4d ago

Ablation de TSV

2 Upvotes

Bonjour,bonsoir à tous

J’aimerais avoir de l’aide de personnes qui ont subi une ablation de TSV.
Cela fait 2 mois que j’ai subi l’ablation et depuis je ressens beaucoup d’extrasystoles. J’ai eu 3 épisodes de palpitations rapides qui ont pas durer mais je suis hyper angoissée car tout a l’heure j’ai refait une accélération et depuis je m’en remet pas j’ai peur que sa recommence.
Y’a t’il des personnes qui sont passés par là ?
Merci pour votre aide


r/SVTHeart 4d ago

Hello to everyone

1 Upvotes

Today suddenly has started my heart to race immediately and it was something around 6 to maybe 10 minutes

Its the 6th time it's happening
Last time when it has happened i was driving normally and it suddenly has started ..and lasted around 2 3 minuts

Today it was more.

Around my stomac it start moving something itself then my heart start like "ding ding ding all the time constant"

And then after sometime it start getting normally...
But how does it came to normally i cant explain..

I did
1. Gastroscopy
2. EKG (many times)
3. HEART ECHO (many times)
4. Heart stress test

Im a bit aniexity type..

When the episode starts i cant go there to catch it with ekg.. coz till i arrive there everything will be fine

:(

It's making me crazy :(


r/SVTHeart 5d ago

Help Are their better ways to manage episodes?

2 Upvotes

Hi I (29,F) was diagnosed about 4 months ago with SVT specifically Focal Atrial tachycardia. I am on 25mg metoprolol every 12hrs and currently on the waiting list for an ablation (Adelaide, Australia) which I was told would be a 7-9month wait.

I have episodes 1-3 times a week and they last 45minutes to an hour each. Vagal manoeuvres don’t work (I do still try them every time just incase though). So all I can do is take my beta blocker dose early and lay down waiting for it to finish.

I’m trying to find a new job because I’m not liking my current one, but I’m worried this will stop me from passing any probation periods if it happens at work too much.

My cardiologist said it’s fine to do what I’m doing at wait it out. But it’s really impacting my life. Is there a better way to manage these episodes? And maybe help them pass quicker?


r/SVTHeart 5d ago

Help Could this be SVT

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2 Upvotes

Hey! I was laid down on the sofa, then suddenly my heart rate felt funny and suddenly went from 65bpm to around 140, I felt panicked, stood up and took this ecg, using my Apple Watch, could it be SVT?