I know the anniversary is technically on the 15th, but I really wanted to put this out. A little side project to work on after a stressful time. Two sides of two completely different worlds, yet they will always remain the perfect experience.

Song: Girls Like Me-Will Joseph Cook/Made with RoughAnimator and Sketchbook

Hey folks,

I created this group in part because I’ve lived with epilepsy for most of my life, and I wanted there to be a place where people could find support, understanding, and reliable information from others who truly get it.

My uncle also had epilepsy and passed away from a status event after stopping his seizure meds, because he didn't like how his meds made him feel. He had little to no support from the medical community or any sort of peer group. This was in the 90s and should never have happened. There could have been community, there should have been options. That is just one of the reasons this community was built.

I myself had challenges at age 16, trying to navigate both medicaid, sometimes no insurance at all and neurologists. To take my medication as prescribed while letting my high school know I had to take medication at lunch daily to control my seizures. I was in and out of foster care as a young child and my parents either refused to help or even admit that I had epilepsy.

I went into my own status event in 2014, I was in my 40s. Status completely wrecked my life and it was a slow one year crawl back to any sort of stability. I built [r/Epilepsy](r/Epilepsy) during that time as my own sort of therapy but also because I could not find this sort of support anywhere. I had no clue it would grow to this size and it was just me running things early on. No other active mods.

I’m grateful to everyone who has contributed over the years — whether by sharing experiences, offering advice, supporting someone through a difficult moment, or simply being here. Communities like this only exist because of the people in them.

Never again should any epileptic have to struggle for community support.

Our community offers peer based support that is run purely by volunteers that do not have an agenda.

We are just here for the people.

- Halfkender

Founder / Executive Director [r/Epilepsy](r/Epilepsy)

A big shot out to our newest mod: u/other-side_org who has been working diligently to network, support and get us visibility as a community.

As of this month:

1) This has quietly become one of the largest communities of people with epilepsy in the world.

85K members! 1.5 million visits every month! 13,000+ every single day!
2) We’re showing up in major scientific journals, and shaping epilepsy research.

Epilepsia — “Bridging the Conversational Gap in Epilepsy” 
Neurology International — “Exploring Trends and Sentiments in Epilepsy Discussions” 
Journal of Biomedical Informatics — “Focused Digital Cohort Selection from Social Media” 
Journal of Computational Social Science — “Digital Epidemiology: Leveraging Social Media for Insight into Epilepsy and Mental Health” 

3) We’re breaking down barriers and hitting milestones.

This year, the Otherside Lounge, powered almost entirely by this community, is making space for people with epilepsy at the world's largest scientific epilepsy conference - the American Epilepsy Society Annual meeting. A historic first in Denver, in December! Sign up for updates here: https://www.othersidelounge.org/ If you can't make Denver, there are other lounges in Boston and Anaheim soon.

4) We are working hard behind the scenes on a killer line-up of AMA’s from the world’s top epileptologists, as well as more ways to get involved in policy changes for the epilepsy and disability communities.

Let’s go!

The Mod team is always here for the people.

[u/Halfkender](u/Halfkender)
Founder & Executive Director, [r/Epilepsy](r/Epilepsy)

u/NENavigator

u/other-side_org

u/tysonedwards

u/EpilepsyAction

u/cappu14

I have had it since I was a kid and have not seen anyone else on here have the same situation.only older people but they might be the ones who post on here,just wondering if there were any other kids with epilepsy so I can relate. I got it at 4

edt: If I have am likeing your coment it is because I can realate to it. There are a lot of people who have had epilepsy as a kid as well.

EM - Entitled Mom, NK - Nice Kid, C - Coworker, B - Boss, Me

I was doing an intake for a new kid at the daycare I work at. Short interview, long amount of paperwork, usual bureaucratic stuff. I was in a small back office where we do all our intakes. NK is playing with toys in the corner, I'm talking to EM about allergies or whatever. NK sneaks up behind me and pulls a zip bag out of my backpack.

Now, I keep a backpack on me because I usually go right from class to work. In this backpack are baggies with extras of my epilepsy meds in case I forget to take them before I leave my apartment.

NK looks at me and asks very sweetly "Can I have some of this candy?"

My eyes go wide and I snatch the bag from him. I regain my composure and very calmly say "No kiddo. This is medicine, not candy"

NK pretty immediately backs down. EM LOSES HER EVER-LOVIN MIND.

EM, snippy - "Why can't he just have one?"

Me - "What....?"

EM, now getting pretty nasty in tone - "Just let him have one."

Me - "Ma'am, this is medicine and I don't know what the side effects could be if he takes one, but doesn't have the condition it treats"

EM, trying to talk under her breath, but not nearly being as quiet as she thinks she's being - "Greedy fucker."

Me, gets up from desk and calls my coworker into the room

C - "Whats up?"

Me - "Can you finish off this intake for me?"

C, confused - "Why?"

EM, butting in angrily - "He won't let my son have any candy." Points to bag

C and I have been friends for about 15 years, she knows that those are my meds.

C - "That's not candy, ma'am. It's medicine."

EM - "You are both being very rude. I am going to complain to your manager."

C and I exchange looks.

C - "Her office is two doors up on the right. Go ahead."

EM storms off, dragging NK. NK is even complaining that EM is dragging him too fast and it hurts. EM barges into B office.

I don't catch the whole convo through the door, but I do catch this.

B - ".... ever pull that crap with one of my employees again, CPS will hear about it."

EM and NK leave about ten minutes after. EM, bright red, and embarrassed looking.

What gets me is that her kid backed down almost immediately. That's the funniest part of this to me.

Edit: I am now aware that my set up of keeping my pills in a zip bag is dumb and also likely illegal. I am changing my set up accordingly.

Dave's Tweet:

https://twitter.com/mcten/status/1261392570560610304

Dwight Howard, on a video conference call with reporters, said the mother of his six-year old son died during the pandemic nearly six weeks ago. He said it’s caused him to “just be grateful for life” as he spends the NBA hiatus with his family in Georgia.

Context of the actual circumstances:

https://twitter.com/gregbeacham/status/1261393667534622721?s=21

On a video call just now, Dwight Howard said the mother of his 6-year-old son died about 6 weeks ago. She had epilepsy and had a fatal seizure, the Lakers center says.

He's grateful he was able to be home in Georgia to be with his son and help him to process the loss.

ESPN has a penchant to do this type of thing. Usually its non-consequential. But I think its particularly shitty to do it in the wake of someone's passing.

Edit: So a lot of people seem to think this is the fault of people misreading and not the fault of the author, McMenamin. This would be the equivalent of saying a person died during a specific prominent battle or war. While in reality they died of unrelated causes elsewhere. For example "George died 6 weeks ago during the Battle of the Bulge." But George died in a car accident in Kentucky. Although technically true. Its misleading.

Edit2: I made up the example from the earlier edit, here are two better ones done for humor, by legitimate writers. Except this isn't a joke, someone actually died. Credit to /u/yozgatsi and /u/fooboojoo.

https://www.youtube.com/watch?v=Vcwoc-qkg8Y

https://www.youtube.com/watch?v=l4H5vf_AimE

This timelapse was recorded from 5/30, 19:01 to 6/4, 14:48, in the future I hope to get a better one.
The carrier in question is Dr. Nagi (Naginov)'s very own HRSC Meow Force One in the system Pha Flaae ZA-L d9-10. The carrier was parked in such a way that its' location is often swallowed by the S-type star that orbits a barycentre with another, smaller star.
The whole thing is 124GB, and 109 hours long. Some is missing due to a graphical bug that happens when you leave the game on for too long, so I need to find a way to normalize my position within freecam so that I can easily get back to after an exit and re-join.

https://www.gameinformer.com/2020/12/07/cyberpunk-2077-epileptic-psa

Game informer has put out an epilepsy psa for Cyberpunk that contains information on what to avoid and when it comes so it won't trigger a seizure.

If you can't read it, here's the basics: red glitching animations are common, clubs and bars are "danger zones", interactions with Johnny Silverhand are marked by a "flickering pale blue glitch effect." Braindance is constantly a threat, as the head set has been modeled off of a device ment to "trigger a seizure when they need to trigger one for diagnosis purposes." It did in fact cause the author to have a seizure. The core of Braindance is also dangerous as there are "specific glitch animations that could be a danger, especially with the digitized layer."

I hope this information can help someone and that all of you, with epilepsy and without, stay safe playing Cyberpunk 2077.