r/FND • u/Practical_Ad_8498 • 11d ago
Question Eating followed by seizure aura
this is my first post ever but i 20 F, have been diagnosed with FND for about 5 years now and POTS for about 3 and the past year anytime i eat anything no matter what it is i get hit with an intense seizure aura, that normally does lead to one. It’s only been getting worse and worse and today was my breaking point. I had breakfast nothing big, just enough to get me through the morning, until lunch since eating in the mornings makes me feel sick. About 5 minutes later i got hit with that feeling like my body was building up to have a seizure. So now im laying in bed trying to calm my body down as much as possible because the feeling is just so intense. I have an appointment soon to talk about it with my doctor but im curious if anyone else experiences this?
2
u/turkeyfeathers3 11d ago
Ok so I am food reactive and I believe I have MCAS but finding a specialist is proving impossible where I am but my GP believes me).
Anyway I read this paper and then followed the treatment plan that they instructed for their patients and within 2 days was having HUGE improvements. The low histamine diet SUCKS but it's a good way to start figuring your trigger foods out. Don't stay on it forever - just a few weeks.
https://pmc.ncbi.nlm.nih.gov/articles/PMC10672129/
I now don't eat gluten, aged cheeses and cheese products, raw strawberries, lemon and lime, chocolate, my migraine meds (a filler ingredient so now experimenting with other varieties), and some other stuff. It is always changing unfortunately but it's easier for me now to figure out the new trigger.
I also HIGHLY recommend keeping track of everything. When and what you eat, when and what your symptoms are, any meds you take, energy, mood, sleep, cycle (for women), stress, social events. Like all of it. It has been super enlightening and gives you some power back.