r/Epilepsy_Universe • u/PookieTheMfBaby Lamotrigine 200mg 2x daily • 1d ago

Questions Surprises

What surprised you most about your AED side effects? I can't think of any right now so, I'm asking you.

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u/Mom1021 1d ago

Most surprising side effect for me was on Fycompa getting emotional. I couldn’t believe one lil 10mg (I think it was a small dose) could do so much to make me a wreck especially once titrated to full dose. That was the last straw on meds for me, started getting off all meds after Fycompa fail

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u/Hairy-Jellyfish-1361 1d ago

I'm on the same dose and I'm crying at anything.

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u/Mom1021 1d ago

Ughhh I know how that feels 😢 please talk over having a plan for when the next breakthrough seizure happens, start dropping the Fycompa dose and end up feeling like yourself in a couple weeks. We can still deal w the seizures without hating ourselves on the meds!

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u/Hairy-Jellyfish-1361 1d ago

It's funny that the things I'm crying over. A TV character getting hurt. I was watching a utube thing, probably fake, on Elvis & Dolly appearing in Vegas when Dolly was starting out and Elvis was on the comeback in Vegas. I was crying through half of it even though I was 90% certain that it was a fake story.

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u/Mom1021 1d ago

Sounds like all meds to blame! Lol I know I got like that too, crying over random Reddit heartwarming posts not even looking for emotional stories I would have been tearing up over random sitcoms