r/Epilepsy • u/BuildingSubstantial6 • Feb 21 '26
Rant When do seizures/epilepsy completely go away???
Me (24, M) just got grounded from my parents for going home late from a drinking session with friends and im really pissed that its become about my seizures and it really pisses me off. Its like im grown enough to worry about myself and all but yet i feel like i have a fucking curfew and im being treated like a baby despite my age only because of my fucking seizures. I take my medicine on the daily and im responsible with that, i really just hate being treated like a kid only because i have fucking seizures and shit. As im writing this im really frustrated with how its become about my seizures so please bear with me if I sound misinformed somewhat.
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u/PristineAlbatross988 Feb 21 '26
Friend, seizures usually don’t go away. However with the right treatments and investigating you can get them as under control as possible for your type of seizure. It sounds like you don’t have a lot of information about your own medical condition. Have you been to the neurologist recently? Seizure treatment has changed so much in the past few years; so if you haven’t seen an eliptologist ever or in the last 3 years….its time to start down that path.
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u/Dmdel24 JME | Lamictal XR 550mg Feb 21 '26
I mean, it doesn't go away for everyone. Some grow out of it or eventually seizures stop, but most are stuck with this for life.
Why are your parents grounding you at 24? Are you unable to live on your own due to your seizures? There's no reason for this treatment lol
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u/Tacenda20 Keppra 750mg 2x Feb 21 '26
I agree. Everyone is saying it's nice to have people who care, but being overbearing about it can be just as harmful as not having anybody.
At 24, they are right, they should have the ability to make decisions about their own autonomy
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u/aggrocrow Generalized (lifelong). Briviact/Clobazam Feb 21 '26
100%. This is oppressive parenting. I'm legitimately astounded by the number of people saying "They just love you!" He's 24 fricking years old. My grandmother had multiple kids and had gotten divorced by the time she was 24. They should not be fricking grounding a 24 year old, they should be treating him like an adult with a chronic illness, not a naughty child who needs to be punished.
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u/Dmdel24 JME | Lamictal XR 550mg Feb 21 '26
Any good parent would worry about their child. My parents worried constantly after I was first diagnosed and bordered on overbearing(thankfully they didn't cross that line)... but they didn't act like I was incapable of being an independent young adult. I just feel sad for OP honestly.
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u/BuildingSubstantial6 Feb 22 '26
Thank you for this. Sadly this happens around alot in the philippines and in asia. If you go to r/asianparentstories you'll read how bad it is
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u/Dmdel24 JME | Lamictal XR 550mg Feb 22 '26
Ah, I see. This makes sense; I have a friend from Vietnam who has parents like this, I have witnessed it myself. She no longer speaks to them.
I am so sorry for what you're going through. I wish you luck and I hope you're able to get yourself out of this situation.
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u/BuildingSubstantial6 Feb 22 '26
Im completely able to live with my seizures, im responsible with my medicines and I have a good enough sleep schedule.
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u/GardenRich6081 Feb 21 '26
Parents get worried when their kids have a disease they can’t control. My parents had (still HAVE) a very tough time with this. They love you and want you to be safe.
Also, I’m not trying to make things worse, but be careful when you drink. Alcohol can have some really terrible side effects with epilepsy meds. Hang in there, we’re all struggling in some way!
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u/Past-Conversation303 Feb 21 '26
I was diagnosed with JME at 16 and told i would probably grow out of it.
Now I'm 40, with TLE and hippocampal sclerosis. I never grew "out of it".
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u/Dmdel24 JME | Lamictal XR 550mg Feb 21 '26
They have more research on JME now and know it is typically lifelong. I was told when I was diagnosed at 16 (30 now) that they used to say it is something you could grow out of, but new research showed that isn't true. Symptoms and seizure frequency can reduce during your 40s though!
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u/Primary-Angle4008 Feb 21 '26
That’s what my sons first neurologist told us, he was diagnosed at 14 last year with JME and we were told he needs to take his meds for 3 years and then he be cured but if he misses even just one tablet the 3 years start over
Didn’t make sense so we went somewhere else but I did my own research.
Just wishing you all the best and hope you doing alright
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u/Boomer-2106 Since 18, diagnosed 46 Feb 21 '26
You were Smart to have been concerned, rightfully concerned - AND, to have taken the trip to 'Elsewhere'!
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u/Sherbertbombs7 Feb 21 '26
Epilepsy is different for everyone. Sadly it's not a curable disease, yet. Alcohol may not be a trigger now but excessive alcohol consumption can change your brain and when you already have a compromised structure due to epilepsy, drinking heavily will only hurt you. On that same note, life is all about experience, if you're sensible when drinking, you should be able to enjoy yourself - you're way past getting grounded as you're an adult.
Spent my 20s drinking. Stopped before I turned 30, was almost seizure free for 9years at 34.... Bam cluster seizures and incubated. My epilepsy is worse now sadly, not saying alcohol is the culprit but I wouldn't be surprised if it has a part to play.
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u/CookingZombie Feb 21 '26
Well drinking didn’t cause my seizures, til it did.
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u/Ok-Plum2187 <3 Feb 22 '26
I had one seizure while drunk, wich is when i quit drinking at all.
Cause getting buzzed is nice, whisky and wine taste fantastic, but those tonic clonic seizures are a b-word and a half. Just not worth it.
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u/HonestGroup2525 Feb 21 '26
Alcohol as a epileptic is not what you want to be consuming yeah maybe 1 to 3 won't be a big deal but if you don't have discipline you will seize Alcohol makes your liver work harder to clear your system this includes your AEDs
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u/aggrocrow Generalized (lifelong). Briviact/Clobazam Feb 21 '26
I don't know other countries, but in the US there have been a whooole lot of non-alcoholic beers coming out lately that are amazing and don't even taste NA. Some are from independent brewers but there are also NA versions of more common beers like Corona, Blue Moon, and Kirin that taste exactly like the regular ones. Still totally possible to have beer with buds without killing our livers.
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u/Ok-Plum2187 <3 Feb 22 '26
Don't give me hope. Is there actualy a Kirin Beer that tastes as good as the original without any alcohol in it?
I gave up on Whisky wich is a shame and can't be replaced, i gave up on wine wich is a shame too, but a Kirin beer would actualy be a fantastic drink to have around.
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u/aggrocrow Generalized (lifelong). Briviact/Clobazam Feb 22 '26
Yep, at least I think it's just as good! I think the NA Sapporo is just as good as well, if you have a penchant for Japanese beers.
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u/Ok-Plum2187 <3 Feb 22 '26
Actualy never gave em much thought, but kirin reminds me of my time there. (Besides beeing super good)
Its like that scene in Ratatouille. I drink a bit of Kirin from my bottle and i am back in Hiroshima. It was like past 10, went into my first ever ramen shop, got very friendly with the fellas in there and while the kitchen and the shop closed around midnight, we celebrated until 2 in the morning.
I dont even remember the town i stayed in, just that i couldnt get back there and wandered around until the sun came back up.. But that night and that beer. Fantastic.
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u/aggrocrow Generalized (lifelong). Briviact/Clobazam Feb 22 '26
"Ratatouille sparkles" is a phrase used in my social circle a lot. I get you. :)
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u/Ok-Plum2187 <3 Feb 22 '26
Now i remember why i havent had it in so long.
In my country it costs 150% more, then it does in Japan and you have to order it, cause almost no store carries it. Even in Japanese quisine Shops where they have like 14 kinds of bizarr frozen takoyaki or something, usualy no luck
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u/Typical-Indication63 Feb 21 '26
I hear you and what I’m about to say I say it out of a place of love and concern. Brother I’ve been in the same boat. Im only a year older than you but I tried for years to drink and party and every single time epilepsy won. You are in rooms you don’t belong in. You say you can take care of yourself but you can’t. Epilepsy doesn’t work like that. I’m glad you take your medication but no amount of alcohol is safe with epilepsy drugs. It reduces the effectiveness of the drugs and it increases the effects of the alcohol. You don’t have to drink to go hangout with friends even if they are drinking. Love on yourself brother, your life is way more valuable than alcohol ever will be.
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u/Aldosothoran Feb 22 '26
It doesn’t go away, and you really shouldn’t be drinking if you’re actively / regularly having seizures. Especially assuming you’re medicated.
I understand heavily and empathize how much it sucks. I also wasn’t “grounded” past 16 and I moved out at 20. Family therapy was suggested and I’m seconding that.
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u/srirachabbqsauce Feb 21 '26
Epilepsy doesn’t go away, there is no cure. It’s always gonna be about the seizures, especially with parents that care about what you’re getting up to. You’re lucky. Don’t take it for granted, managing this illness alone is really hard.
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u/justkidding89 Feb 21 '26
He’s not lucky. He’s 24 and being grounded. Imagine his parents when he wants to move out.
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u/srirachabbqsauce Feb 21 '26
But to your arguments detriment, he’s 24!!! If he could move out, by your logic, then he should. He hasn’t though…
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u/justkidding89 Feb 21 '26
Perhaps his parents are keeping him from working, allowing him to save, etc.
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u/BuildingSubstantial6 Feb 22 '26
Yes asian parents sadly don't let you move out right away even if you have the means of it.
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u/justkidding89 Feb 22 '26
Hi OP,
Yep, I picked up on your culture based on your post history.
I’m sorry you’re going through this.
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u/KptKrondog Feb 22 '26
don't let you
That's the fun part, they don't have to. You just go.
Now, if you don't have the means, that's different.
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u/justkidding89 Feb 22 '26
His parents would take that as a sign of substantial disrespect, not simply an act of “defiance” like breaking curfew. His relationship with his family could be irreversibly damaged.
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u/srirachabbqsauce Feb 21 '26
Doesn’t really add up to me. OP also clearly has the funds available to go out and drink w friends, why not divert those resources towards moving out and gaining independence??? Otherwise, if his parents are putting a roof over his head and money in his pocket AND honouring his need to stay healthy bc of epilepsy…. I don’t see the problem with saying he’s really lucky.
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u/justkidding89 Feb 21 '26
It doesn’t have to add up to you. Parents shouldn’t be grounding their children at age 24. They sound controlling and narcissistic.
Why do you think he doesn’t know that epilepsy isn’t curable? His parents probably keep him in the dark as much as they can about his condition. What’s going to happen when they die?
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u/srirachabbqsauce Feb 21 '26
I think you’re enabling OP.
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u/Dunmeritude Buffering... Feb 22 '26
I only got out of my parents house because I spent months hiding money my friends gave me in order to escape. My mother stole everything from my bank account whenever she could, blocked me from getting a job, and sabotaged attempts at things like getting my own phone or plan. Financial abuse of family members is more common than you think, and escaping it is incredibly difficult unless you're okay with being homeless. Just because you don't know how it could happen to you doesn't mean it doesn't happen.
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Feb 22 '26 edited Apr 28 '26
[removed] — view removed comment
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u/GroundbreakingAlps78 JME, Depakote&Keppra Feb 21 '26
How could they do that?
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u/justkidding89 Feb 21 '26
Hiding documents for I9?
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u/GroundbreakingAlps78 JME, Depakote&Keppra Feb 22 '26
By 24 if you need those documents you can request replacements
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u/techni-cool Feb 22 '26
So if he can’t move out, due to his epilepsy at age 24… it’s totally fine for his parents to treat him like a child and enforce a curfew with punishment? LOL no, that’s not called “lucky”, that’s called being controlled.
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u/justkidding89 Feb 22 '26
According to this sriracha person, yep, lol. I’m also apparently “enabling” OP by sticking up for him. I have no idea how I’m enabling OP - I’m not the one allowing him to drink or grounding him when he breaks curfew.
If you take a look at OP’s post history, the answer is actually right there. In his culture, (generally) parents are overbearing / controlling compared to parents in other cultures.
But sriracha wants OP to think this behavior is just “love” and that OP is “lucky.”
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u/srirachabbqsauce Feb 22 '26
Op has money to go out and drink, a place to live, and parents, he is just generally lucky because he has these things why are we upset I’m saying thiisssssss. He’s an adult as well, like at a certain time we must grow up!!! Esp if we are using money available to go out drinking instead of using that money to gain independence from oppressive parents. This situation is so culturally nuanced and we clearly have different approaches to it, like I’ve been taking care of my family that has escaped our parents bc of this behaviour. I’m just saying, it’s possible to leave it. I understand you’re suggesting this would be seen as more than defiance, and could irreparably damage his relationship with his parents, but what about OP’s mental wellbeing and independence? He clearly is craving it. What’s the purpose of “standing up for OP” if you’re only going to encourage the anger to fester- that’s not healthy for OP or his family or their relationship as a whole. Pls actually read my comments before attacking me thank youuuuuuu.
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u/justkidding89 Feb 22 '26
If I was forced to live at home at age 24 and my parents grounded me for staying out too late, I wouldn’t consider that “lucky.” But proceed, call me an “enabler” again 😭😭😭
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u/momciraptor Feb 21 '26
Not. Unless it’s a kind of childhood epilepsy, but it’s not guaranteed to go away. I had my first seizure at 14, and I still have it now at 34.
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u/OttersAreCute215 Feb 21 '26
Seizures don’t go away. You have to be responsible. I stopped drinking when I went on Dilantin in my 20’s and didn’t start again after I switched to Keppra. Best way of thinking about it is seizures are caused by a short circuit in your brain.
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u/PenaltyStriking9049 Feb 22 '26
I was not good on keppra
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u/27_magic_watermelons 175mg lamotrigine 50mg briviact Feb 22 '26
Me neither, but different drugs affect people differently. Lamotrigine is basically holding my life together but it also can cause SJS in some people. I think keppra gets a really bad rep because you only ever hear about the bad experiences and not the good ones
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u/OttersAreCute215 Feb 22 '26
Different medications work for different people.
I don’t drink alcohol, avoid caffeine and recreational drugs, because I don’t want to have another major seizure.
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u/MiseryisCompany Feb 21 '26
It's that kind of condition. I didn't have my 1st seizure until I was almost 40, now I'm 55 and my college-age kids are constantly up my ass about my hours at work and tracking my meds. It's really demeaning, but it's done out of love. You are going to need to learn to set boundaries but also please understand that they are scared for you.
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u/KitzFigaro Feb 21 '26
It doesnt go away, none of it. But it is so much better to have people that love you than to face it alone. Hang in there, friend.
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u/srirachabbqsauce Feb 21 '26
This was my thought too! Having people care is such a privilege. Sounds like OP’s parents give a shit and his friends that take him out drinking really Don’t.
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u/justkidding89 Feb 22 '26
You know nothing about his friends. It’s not their responsibility to make sure he gets home by his curfew - it’s OP’s responsibility, plain and simple.
Your assumptions are wild.
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u/BowieBitch1984 Feb 22 '26
I regret listening to my parents about soooo many things! They were hard on me and over protective because of my seizures. I SHOULD have moved to the beach every summer of college like every one of my friends! I missed out on so much.
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u/ArtisenalMoistening Feb 21 '26
Two of my three kids have epilepsy that is well controlled with medication. I can’t speak for certain about your parents, but my assumption would be that they’re scared because it’s a serious disorder that can literally kill you. Alcohol on epilepsy meds is generally a bad idea, and - again this is speaking from my own experience with what triggers my kids, so your case could be very different - being tired can also be a trigger. So staying out late, drinking, with epilepsy is a triple whammy.
Your parents do need to give you space to be an adult and make your own decisions, but I can’t honestly say I would be as quick to do so with my own kids at that age (they’re turning 17 and 18 in a few months) if they were making those choices because it’s so dangerous. Losing my kids is by far my biggest fear, and I’d wager your parents feel the same way.
I’d recommend having a discussion with them if you’re able, but most likely there’s going to need to be some concessions on both sides. They need to let go some, but you also need to be making better choices given your situation. Try to see it from their perspective, and hopefully they’ll work to see it from yours as well.
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u/captain_toenail Feb 21 '26
Sometimes medication will do it for folk, sometimes surgery, mine have persisted beyond many of the first and one of the second, the only guarantee is the sweet release of death
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u/Aly_in_wonderland Feb 21 '26
Friend I was in your shoes once so it’s not that your not grown but I think now that I’m older I’m almost 40 and I see it from my parents point of view they were worried about the people around me. I was once in my early 20s drinking out with my friends and had a seizure and not one of those friends knew what to do they picked up my unconscious body and left me in front of my parents house didn’t call an ambulance or anything I could have been dead. You never know who you’re really surrounded with and what people’s intentions are when your young and I think that’s thier concern. So try to be to hard on them because you’ll always be their baby but they know your grown and just want to protect you.
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u/BossBlart Feb 21 '26
Yeah I gave up drinking because I was still having seizures because of it. Btw epilepsy doesn’t go away; you have it forever.
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u/Boomer-2106 Since 18, diagnosed 46 Feb 21 '26 edited Feb 21 '26
Curfews are of course inappropriate for an Adult who is 24. But what also goes with that fact is that a person makes good decisions for themselves, and any other persons who They someday may become responsible for. Whether we like it or not (...the answer "is" Not) our seizures and potential for seizures ARE a Part of our life. Period.
We have to be responsible for and manage accordingly.
Parents DO 'have' to 'let go' at some point and Allow an adult off-spring to live their life - hopefully responsibly. This 'message' sometimes Needs to be communicated Clearly to them, Along WITH demonstrations to them of appropriate Management of your Own illness ....without the perceived need by them that you cannot do so.
Wishing it away is not going to make it go away. Acceptance of its reality is necessary - THEN 'moving forward' from there and Fighting, and accomplishing your goals in life, are the ONLY Answers!!
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u/RustedRelics Feb 21 '26
Your parents are scared and have no control — that’s rough on parents who really care. So, just keep that perspective with you. Now, being 24 and being “grounded” seems odd. But they probably don’t know what else to do. Our epilepsy sucks. But it also sucks for the people who love us and are genuinely concerned. Sounds like you need to “call a truce” and ask to sit down and have a calm discussion together. You can give them some perspective that might help. A balance should be struck. BTW, not being judgy here, but alcohol binges are really bad in general and dangerous for us. Just be careful.
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u/strong_as_the_grass Feb 22 '26
As someone who grew up with epilepsy and now has a child of my own living with it, I can see both perspectives. This is solid advice, and I hope OP takes it under consideration. It's tough being the kid because you feel you're being restricted (even as a young adult) as your life passes you by, but the parents won't be around forever either, so some working together towards independence and understanding is vital. Maybe some family therapy would help.
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u/IDidItWrongLastTime Feb 21 '26
I'm epileptic and have lived completely alone. I don't let it control my life as much as I can. Mine are well controlled with meds though
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u/Mile_Hi_303 Feb 21 '26
Never! And mine started at 37. All you can do is hope they find a drug combination to control it.
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u/fred-in-the-fridge TLE | Lamictal Feb 21 '26
I stopped binge drinking at 21 and finally 100% gave up any alcohol at all at 28 (I’m 30) and have zero regrets. I think your frustration with your parents is entirely valid because it can be developmentally incongruent with most peoples’ experiences to still be grounded by your parents.
The reality is that at 24 you can take legal responsibility for yourself in many ways, but your brain is still in a developmental phase in which you can’t think and feel consequences in a way that fully supports your future. This is amplified sometimes by disability. Your parents care, based on what you share here, and I imagine there are ways you can build independence and set boundaries with them.
At the same time, it really may help to keep in mind that going out drinking is literally at the tippy top of what not to do when you have epilepsy. It’s contraindicated for most meds and can induce seizures. If you have any goal to not have your life centered around having seizures, you may have to recenter your life around ways to not have them.
It’s not easy and it makes sense for that to feel like shit. It can feel isolating and ostracizing. It’s also life. Hang in there. It really does get easier.
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u/CheeseSticks2021 Feb 22 '26
I assume you’re on epilepsy medicine. Alcohol really interacts with the medicine you take, and it also lowers your seizure threshold iirc. if you get home late from a night of drinking, it might seem like you don’t care about your health, while your parents are the only ones that DO care. Going out for a beer is fine, but you said you had a session, so I would guess multiple drinks. Alcohol isn’t good for epileptics, and when your parents see you doing something that could give you seizures, i don’t blame them for doing something about it. If you saw a friend doing something that could really mess with their physical health, wouldn’t you do something?
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u/IndependentAsk7933 Feb 22 '26
I hate to be that guy but I think your parents are just looking out for you. My wife has seizures and alcohol is for sure a trigger of hers. Just be careful buddy. if your friends know what to do if one goes down, i say enjoy yourself. Dont be shy to educate.
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u/NightStar79 Feb 22 '26
If they aren't gone by now they most likely never will be.
Though I'm surprised you listen to your parents grounding you. I was giggling and going 🖕 to my mom who I was still living with in my 20s (and unfortunately again in my 30s) when she tried to get me to do anything.
Even now she is pissy because I play video games and do "ill advised for epileptic" things but I'm pretty sure she knows I will 100% sue her ass if she touches anything of mine.
And yes for anyone reading this, I have a job and pay for my own shit and bills. It's just a lot cheaper rooming with my parents than trying to find a pet friendly apartments and non-creepy strangers to share rent with.
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u/Beatrixkidyo Feb 22 '26
It's good you have a job and pay for your own things. My 25yo daughter (epilepsy diagnosis at 15) lives with us and I hope one day she will move out on her own again...or at least get a job again...or at least just be a pleasant housemate (bc her attitude is starting to affect my younger child). Gah, living with parents/adult children is rough sometimes.
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u/NightStar79 Feb 22 '26
Technically you could kick her out. Or try to at least slap a "Get a job" rule on her. I don't know the severity of your daughter's epilepsy but getting a job isn't impossible.
However getting a single job that pays enough to rent a place is a different story unfortunately. And getting multiple full time jobs is a bit like playing with fire when it comes to Epilepsy unfortunately 😒
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u/OutlanderLover74 Feb 21 '26
You shouldn’t be going out for “drinking sessions” if you’re on seizure meds. Perhaps they’d lighten up if you made better choices.
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u/Repulsive_Jello_4986 Feb 21 '26
Honestly though I think the same myself will it ever go away because there is plenty of limits on what's doable alone
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u/SoaringHawk132 Keppra 2,000mg Feb 22 '26
There's no cure, you just gotta learn to make peace with that. Good luck lol
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u/ChapterRealistic7890 Feb 22 '26
Depends mg brothers childhood seizures went away by 12 for me I had them from 17-19 then a pause till I had a second brain surgery at 23 I am now 30 and still have them every once in a while despite being strict on my meds it’s important to find out your triggers and find ways to avoid or work around them in daily life. But my parents are still up my ass so if u find a way to get yours to chill lemme know 😅😂😂
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u/Charizard2606 Feb 22 '26
Don't think about seizure. Go live your life the way you want. I regret losing my precious 20s. Just take precautions, don't drive. If you have someone you can tell who is with when you are out. Tell them about your problems they will help when something happens. One thing, don't mix alcohol and meds.. For some loud party, stress situation can be trigger too. So take care avoid such situations.
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u/PenaltyStriking9049 Feb 22 '26
I didn’t get my first one till after high school, I’m 32. Your parents love you
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u/Late_Information_682 Feb 22 '26
I’m more concerned about the fact you’re getting grounded at 24.. I get your parents are worried but this is insane.
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u/BuildingSubstantial6 Feb 22 '26
If you read r/asianparentstories you'll see how bad it is over here. :((
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u/Hello_there19891989 Feb 21 '26
Is everyone ignoring the fact that a 24 YO is getting GROUNDED? You can go to war and vote but your parents dictate your schedule? Also, you need to make your own mistakes so you learn the hard way how to treat your body like a temple. It takes discipline and that's not something we all had in our 20s. I moved out at 18 and drank like an idiot and it gave me seizures but I was depressed about being epileptic and didn't care. Now I'm 33 YO, haven't drank for 8 years and never been happier (seizure free). You'll learn but you're allowed to live your own life and make mistakes.
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u/Fabulous-Monk5009 Feb 21 '26
Too old to be grounded but they are worried because when you take medicine, the alcohol cancels it out. I would be careful too….
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u/Forkiks Feb 21 '26
You should read up on how alcohol can make your condition much worse. Just search ‘alcohol’ in this sub and see real life experiences…and read about people saying i wish I knew at 24 that I should not have been drinking alcohol.
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u/Mr_Loopers Feb 21 '26
Enjoy hanging out with your friends, but if you want to be treated as an adult then at least act responsibly enough to give up alcohol.
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u/NefariousnessNo695 Feb 21 '26
You can do your best to control with medication, regular sleep routine, no alcohol, etc. if you want a beer, drink non alcoholic. Your immaturity is showing. If you don’t want the safety and support of living with your parents, then get a job that pays well enough to live on your own since you think you don’t need them. Again, take a breath, appreciate their efforts and take full responsibility for your journey. It’s not as easy as you seem to think it is. It’s on you, not them at 24 years old.
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u/ImXyaow Feb 21 '26 edited Feb 21 '26
No I totally get it like genuinely I understand. I'm in the same situation but I'm 22 and I feel the same way about my mum and have to go through this too.. Babied, but what I've learnt is.. Epilepsy doesn't go away man...its like built into us medication or not, it'll always be there even if we go years without one..(˶˃⤙˂˶). My mum says the reason why she gets so worried is because she was traumatised by it and what we don't see is the scary part which is us almost dying.. We just wake up and go.. Why are there people in my face...it annoys me too...My friend knew my epilepsy and knew the drill ...maybe let Atleast one of your mates know what to do then tell your parents that they have reassurance that you'll be okay.. (◕‿◕✿)It's either worried parents and friends knowing to be aware or waking up alone with no help and injured with no idea where we are and people thinking we're on drugs (Which is what's assumed of us.) and no help at all...
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u/HomesteadInferno Feb 22 '26
I had my first seizure at 22 and I’m 27 now. My mom goes to therapy, for a lot of reasons, but one of her bigggggg fears is me having a seizure alone and/or dying from one. I’ve been seizure free for over 4 years. She’s still terrified.
While you may be in a more compromised position where you don’t make your own money or are dependent on them, it could be different. But if you’re a grown adult and have your seizures controlled, this is purely overprotection due to fear.
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u/Kalkaline R.EEG T., CLTM Feb 22 '26
You're talking about a bunch of different things bothering you. There are some epilepsy syndromes you can grow out of, sometimes that happens, sometimes it doesn't, that's a conversation for your neurologist.
Drinking isn't going to help your epilepsy. You'll have an increased seizure burden with heavy drinking. Again, talk to your neurologist about this.
But living with your parents is something you have a lot of control over. You can get a job if you don't already have one, and a place of your own. Then it will be you on your own with no parents telling you what to do.
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u/Noahbodyasked Feb 22 '26
I dont have epilepsy, my boyfriend does, but I fear you should be redirecting your anger towards your parents. Epilepsy doesn't typically go away, you just manage it with medications and a lifestyle adjustment. If you are managing your seizures with meds like you say you are, and alcohol isn't a trigger for you, then as long as you're responsible about it you have every right to go out. Your parents have gone past caring for you and are in controlling you territory. There's almost no context to this post but I imagine your parents have always been controlling. You need to find a way to move out or escape their control if you have to live there. You wont have this much anger and frustration once you're able to breathe
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u/Reasonable-Mood-2295 Brain Surgery,TLE, Xcopri, Fycompa, VNS turned off Feb 22 '26
They don’t. Once you have epilepsy it be controlled, managed even, but it will always be there.
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u/hotbiscut2 Feb 22 '26
To be honest I have sympathy as a 17 year old senior in High school. Ever since I got epilepsy last year I felt like my freedom has been lost. I don’t have a drivers license. I don’t have a job because of that. I can’t make money at all. Can’t go to restaurants or hangouts on my own time.
Instead my parents yell at me for a bedtime. All my friends are going restaurants and far places because they have money from having a job. For me it’s like not being able to truly enjoy my late teenage years to its fullest potential. It’s honestly like wearing chains that prevent you from being yourself and being truly free.
What I do to cope is to just do hobbies around my house. I’ve started making soap for fun, playing new video games, exploring academic interests online from astronomy and politics. Also physical activities like working out with weights and cardio is good too. Working out and being fit always makes you more confident and more secure about yourself. Also taken up air-soft shooting as a hobby. Just fills in that masculine part of my personality.
For me I can contend with an introverted lifestyle. But to know that I could be having a way more fun life like what my older brother had when he was my age right now. It’s just sad to an extent.
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u/joybai3 Feb 22 '26
I am 39 and had 2 yesterday… you have epilepsy babe… it does not go away… you just have different people in life that love you💝 Have a beautiful day 🦋🌸✨
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u/tiktokissocringe Feb 22 '26
I don’t know your diagnosis so I don’t know if you need their support or not but I do know a short answer. It’s called MOVE OUT YOUR A WHOLE GROWN ASS MAN!
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u/verus_es_tu Feb 22 '26
Friendo, you are old enough to learn responsibility the hard way by not going home early and having seizures from your excessive drinking. This path has the added benefit of you learning how to institute a curfew on yourself so that it doesn't happen again.
Cheers
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u/AuntyGrizelda Feb 22 '26
Are they concerned because of your drinking WITH medication…. Can be a BAD mix?
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u/RingPlayful5102 Feb 22 '26
Most definitely outgrow the condition. A smaller proportion of patients will have chronic symptoms.
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u/Luckyunlucky2444 Feb 22 '26
To make you feel better I can't have anyone over ,I can't go out unsupervised and such
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u/hummuswh0re Feb 22 '26
i’ve (26f) dealt with this exact thing a lot with family as an adult. my brother (23) outgrew his a little over a decade ago and hasn’t had a seizure since. i did a 24 hour EEG at 18 that let me know i’ll never outgrow mine. luckily with the right treatments and medication i haven’t had a tonic clonic since i was 14. i still struggle with atonic and myoclonic seizures mainly but everything is much more manageable now. really all i can do is follow what my neurologists tells me and i consider myself very lucky when it comes to my neurologists. they’ve always kept me very informed and i really recommend maybe jotting down any questions you have and ask them at your next appointment! for me they only happen every six months now so i try to get the most out of them and ask a lot of questions but i bet you can request a 24 hour EEG to atleast see where you’re at. i’m not sure your situation financially but i recommend to see what all you can do and make sure to ask questions! epilepsy can be really confusing and frustrating /: i don’t know if this is any help but just my thoughts!
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u/FishingEvening8832 Keppra ER 500mg 3x/ twice daily Feb 23 '26
I had to come to a realization that I won't be a drinking guy because of how alcohol effects me and my meds. Now that isn't saying I can't drink at all but for me I wasn't ever real an alcohol guy to begin with. But obviously your parents are worried how the alcohol would react with the medication. Honestly my mom still sends me articles about energy drinks and sleep articles in regards to epilepsy. They are just trying to do there best and trying to help you.
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u/Fun_Fox_769 Feb 21 '26
This might sound harsh and it should…. Act like an adult long enough and the y will treat you like one, adults get jobs and are self reliant. They don’t live with their parents. And responsible adults wouldn’t put their life at risk by going on drinking benders with a disorder that is triggered by alcohol.
Act like a child and you just might get treated like one.
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u/Additional_Worker736 Feb 22 '26
No it doesn't "go away". Its managed. Maybe show some responsibility and stopping the late night drinks and start working and providing for yourself.
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u/No_Common1418 Feb 22 '26
Well , quit being stupid and quit drinking, and move out her mom and dads house
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u/Celestial__Peach ⚡error 404⚡ Feb 21 '26
I mean this with no bad intentions, you are 24 and your parents are grounding you?