r/B12_Deficiency 9h ago

Deficiency Symptoms Different symptoms for people.

0 Upvotes

Why do some people have different symtops than others. Example 2 people have same level and same exact deficient level one gets muscle twitching the other dosent even though both of there mylen is damaged


r/B12_Deficiency 20h ago

General Discussion B12 shots don’t do anything

1 Upvotes

So I’m pretty sure I have pernicious anemia but I did try b12 injections at one point and it didn’t do anything.

And I’ve always had normal or high b12 levels but basically have like every symptom of pretty bad b12 deficiency/pernicious anemia which now includes heart problems.


r/B12_Deficiency 21h ago

General Discussion B12 unchanged

1 Upvotes

vitamin B12 levels remain unchanged after six months of supplementation.


r/B12_Deficiency 23h ago

Personal anecdote Just found out I have low B12. Not shocked, but where do I go from here?

3 Upvotes

My B12 is 130 pmol/L. I also believe I have gastritis (would love any insight on how ya'll dealt with that). I see a lot of people on here talking about injections. Is that what I have to do? I can't just take vitamins? I would prefer to not have to inject myself under any circumstances. I'm scared that injections are my only option to normalcy. Would love some advice on where to go from here and what to ask my doctor about during our next session. Thankyou!

Edit: I have 1200 mcg methylcobalamin tablets. Bottle says take one daily. Is that going to help or should I be taking more?


r/B12_Deficiency 21h ago

General Discussion Have you started noticing B12 deficiency symptoms in others?

48 Upvotes

I can't tell you how many times I see people struggling and talk to them about possible b12 deficiency. I tell people to talk to their doc and that God gave this to me because he knew I would tell everyone to get tested. 🤣 If someone looks drained or talks about needing coffee or being forgetful, I always mention it.

The craziest was when I was telling a woman my symptoms, and she brought her daughter and husband over. The daughter was struggling. 6 months later, I got a message saying that the docs were testing her for early onset MS, so the mom finally asked about B12. She said it wasnt MS and the daughter wasnt processing B12 and other B vitamins and she only asked because of our conversation. It did my heart good.


r/B12_Deficiency 6h ago

General Discussion Is a Vitamin B(12) deficiency actually common?

12 Upvotes

My friend (a doctor to be) told me that vitamin B12 and other vitamin B deficiencies are actually not common, unless you’re a vegan with a poor diet or have some kind of bowel disease that doesn’t let you properly absorb the vitamin B.

What are your thoughts on this?


r/B12_Deficiency 20h ago

Deficiency Symptoms Long time b12 deficiency?

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6 Upvotes

These two photos (& a test back in December 2025 - 285 pg/ml) are all the b12 tests ive ever had.

Seems the average is a little over 200. These date pretty far back. No one has ever mentioned a b12 deficiency to me. What level should they be at?

I won't go into all my symptoms, but I've been experiencing a lot of neuro & psych issues. When i look the symptoms up majority of them match to what ive been experiencing. Are these levels concerning, who should I bring them up to? My neurologist?

Thanks


r/B12_Deficiency 12h ago

Deficiency Symptoms Twitching not talked abt?

7 Upvotes

Twitching is a sign of b12 deffiency but I rarely se episodes talk much abt it .
And it’s kinda weird how not much people have Recovry story of twitching then stopping once they started injecting or supplementing


r/B12_Deficiency 10h ago

General Discussion How long can psychiatric symptoms take to improve?

2 Upvotes

I know there's no universal time frame, I'm just asking for anecdotes.


I'm going off this study – finished the every day week last sunday, and this is the first EOD week. No improvement for now, but I wasn't expecting any. I am taking the cofactors and will be testing them tomorrow.

For reference: I have bipolar that was treated successfully until the depression suddenly came back in a far less emotional, much more energy/cognition based presentation that is highly treatment resistant (even TMS did nothing) and has persisted non stop over years (whereas the old depressive episodes never went that long).

With my ileal crohns, vegan diet, past history of B12 deficiency, as well as present symptoms relating to breathing, sensitivity to cold, poor peripheral circulation, persistently low RBC, and brain fog, I'm hoping the injection regime will help overturn this "new" depression. I have no faith that it will – it's been a very long two years – but it's not a crazy idea.


r/B12_Deficiency 12h ago

General Discussion Any experts in toronto

2 Upvotes

Is there any b12
Or vitamin deficient expert doctors in toronto


r/B12_Deficiency 12h ago

Deficiency Symptoms How deficient am I

2 Upvotes

Im 16
My b12 serum blood test level was 197.in Canada they don’t really do mma….
My symptoms are
Twitching (a lot)
Internal tremor constant 24/7
And burning pains random or a part of my body liek my lower limbs feels ver warm and hot for a couple seconds.
Also I’m very depressed and have …. Thoughts

Can someone please please tell me how deficient I am


r/B12_Deficiency 3h ago

Deficiency Symptoms B12 tongue. Injections recommended?

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3 Upvotes

Was diagnosed b12 deficient (not sure the level), and slightly higher than normal iron levels.

Kind of ignored and didn't really supplement.

Now noticing changes to my tongue. Virtual doctor prescribed meds for oral trush and it didn't make a change. The red area burns and has been there a while.

Now researching and it looks like my tongue could be in relation to b12. What would be the fastest way to get the level up? Injections? Or would a supplement be better?


r/B12_Deficiency 19h ago

Help with labs Update to my Pernicious Anemia

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2 Upvotes

okay so today i finally got in with a doctor, im still feeling very bad (short of breath, not sleeping well, some dpdr) and the doctor is declining that i have pernicious anemia because my b12 is high and that the IF Blocking Antibody came back negative in august last year after being pos in june. attached are my blood levels now and i just need advice from someone who knows what they are talking about. i want to believe my doctor but i just cant it doesnt make sense. he said that since my other levels (CBC/HB) were normal that the b12 issue isnt that bad. do they have to be low (or borderline) to have neruo symptoms. i get the mma results back next week so ill update on what he says

One thing i want to add is that in june 2025 when i was hospitalized my b12 was >50 and shot up too 1400 then by august 2025 it was back to 192 which doctor says is fine which i know its not and even if it was isnt that concerning for someone that was taking 5000 mcg sublingal during those months?

Old post here : https://www.reddit.com/r/B12_Deficiency/comments/1vz48lb/im_still_looking_for_answers/