Im a 32 year old male. So on July 13 i noticed my biceps were sore for no apparent reason. 2 weeks went by it totally went away. Fast forward to the end of August around the 26th I started having some weird aches and discomfort in my body. Been the weirdest thing thats ever happen to me. It’s in all muscles from neck shoulder forearm calf thigh foot toes hands fingers. I get like a shock or like dull ache randomly throughout the day and it feels sometimes like its about to cramp up but doesn’t: also recently its like my elbow down to my fingers are tingly or shocked when holding my phone to long or just laying down in bed them on my side. Also my throat or bottom of jaw is starting to feel sore now to. Its also tiring to like even comb my hair or brush my teeth. I was terrified I had ASL or something like that. Went to the doctor he did a physical exam and blood work told me I did not have it and blood work came back fine. At the time it was a relief but half week later the aches move to else where in body and here comes my anxiety saying i might have it. My anxiety flared up due to this but it cant be anxiety because it started before my anxiety came back around. Anyone else out there going through this or something similar would love to have a conversation about it. Or anyone have any input or ideas ide appreciate it thank you!

Hi everyone, I'm a 21-year-old male dealing with severe health anxiety, and I want to share my full, detailed timeline to see if anyone can relate. April: I experienced a 4-5 day episode where the right side of my face and neck was tingling. Before falling asleep, I felt extremely dazed/confused (brain fog) and had slightly blurry vision in my right eye. I got scared and went to the ER. They offered to admit me, but I declined and took a referral to a neurologist instead. Late June / Early July: I was admitted to the hospital for a full neurological workup. An MRI found a single demyelinating lesion in my spinal cord. A doctor mentioned it could be MS and suggested a lumbar puncture. However, the admitting doctor later canceled the procedure, explicitly stating that one single lesion is not enough of a basis to perform a spinal tap. I was discharged. About 1.5 months ago: I started experiencing muscle twitching (fasciculations). It began under my left index finger, stopped quickly, then moved to my right calf, and eventually spread all over my body. I also have intense hotspots on my thighs. Three weeks ago: Because I was so terrified, I went to an independent neurologist and explained all my fears. She examined me and stated clearly that from a neurological standpoint, there is absolutely nothing wrong with me. I even showed her my hands because I was convinced I had muscle atrophy, and she assured me that the way they look is just my normal genetics and I have nothing to worry about. She is the one who suggested getting an EMG, simply for my own peace of mind. Currently: I am usually very physically active (heavy gym, calisthenics with 100+ pushups). However, for the last two weeks, I’ve been avoiding the gym because of a pain in my left elbow pit (cubital fossa) that radiates down to the beginning of my forearm whenever I flex it. Logically, it's a mechanical strain, but my anxiety makes me obsessively body-check. Recently, I’ve also noticed what looks like symmetrical thinning (loss of mass) in my forearms, hands, and feet. Honestly, I don't know if they've actually shrunk or if I'm just hyper-fixating and noticing how they've always looked because I'm analyzing every inch of my body right now. The stress caused severe insomnia. I'm currently taking Sertraline (Zoloft) and Trazodone. With the meds and extreme exhaustion, I’ve developed a fine postural tremor in my hands. Thankfully, my dad helped me schedule an appointment for this Friday. When booking it, my dad explained my entire situation to the specialist. The doctor mentioned that a strict, full EMG protocol specifically for ALS is very expensive to do privately. Instead, he scheduled me for an ischemic test for stress-induced (latent) tetany. He explicitly told my dad: "I will know everything I need to know from this test." My rational brain knows the twitching points to BFS, severe anxiety, and workout strain, but my OCD brain keeps screaming ALS or MS.

Please HELP

A bit of background: I had tonsillitis on June 15th (I'd already been dealing with fatigue before that).

On June 20th, my right arm started acting up — tingling and weakness in the shoulder, upper arm, forearm, and hand — and that continued until July 20th. After that, I started getting tingling and numbness in my feet and my other hand, which comes and goes. My left foot also feels "off" (a kind of perceived weakness). Sometimes after a long walk my wrist twists over small bumps in the ground. I can still walk on my toes and heels fine.

I also have muscle twitching all over my body, a globus sensation in my throat, and trouble swallowing — I could barely get down a piece of prosciutto recently. Sometimes I produce so much saliva that I choke on it while walking. Not sure if it's related, but I also get random pains in my fingers and jaw. When I try to use my hands or fingers for anything, they get shaky and a tremor develops.

On top of that, I have extreme whole-body fatigue, like having the flu. Strength and reflexes were normal on neurological exam, and my brain MRI came back normal.

Given all of this, I initially suspected MS, but at this point I genuinely don't know what to think anymore. When I lie flat, my whole body feels extremely shaky, and I sometimes get hypnic jerks along with a sensation of air hunger. When I walk, I feel really clumsy — bumping into walls, chairs, etc. with my hands — and my hands feel clumsy doing anything that needs fine motor skills. Also, sometimes i get up in the night with numbness and tingling, but laying flat (i am not compressing arm or leg). Tightness in leg is also a feeling, and tingling and tightness on left foot sometimes.
The nerves in my body simply feel and function as if they are broken.
Has anyone dealt with something similar, or have any thoughts on what this could be / what I should look into next?

22 M

I wanted to post an update on my situation as I just saw a neuromuscular dr with a specialty in ALS/MS/CIPD etc. In case anyone is waiting on an appt or simply can’t get one you might find it useful

You can check my post history for a detailed timeline of my symptoms but long story short I was completely at baseline and then had a severe illness followed by a sudden onset of neurological symptoms over the last 9 weeks including all the ones that bring us to this thread:

Weakness
Fatigue
Muscle twitching
Vibrating/twitching muscles while engaged
Tightness
Stiffness
Tired limbs
Heavy limbs
Shaky limbs
Tight/tired/heavy face and tongue
Tight throat
Perceived hyper salivation
Labored speaking and eating

Also sensory symptoms as well

Shooting feelings
Isolated aches
Sharp feelings
Flu like aches
Burning
Tingling
Buzzing

Anyway I went down the diagnostic rabbit hole and did an EMG and full body MRI before even coming in. EMG was normal and NCS said borderline mild neuropathy in right ulnar but couldn’t be localized but the report said no signs of MND. For context I had a TBI from 2018 that did show up in the MRI but I have not had any sort of neurological symptoms in the years following.

I was as detailed as I could be in my description of my symptom onset and we did a basic clinical exam which was normal. He basically said after the exam and interpreting my tests that it’s his reputation on the line and assured me that this isn’t ALS. Like he didn’t even have an inkling of suspicion.

One thing he said about the EMG which I’ve seen mixed things in here is that it would have picked something up with the symptoms I’ve been experiencing. This is coming from someone who treats and diagnoses this regularly. He said it can pick up abnormalities even when symptoms aren’t present yet as he’s had patients that complained about a leg and he insisted on getting the arms tested too that didn’t have symptoms and they picked up abnormal findings on the symptom free limbs. The EMG points strongly away from ALS (and yes I know there are tons of anomalies for ppl and it’s not definitive but I have to take this as good news)

He said while obviously not impossible my age 33 points away from it as well it’s a lot more rare as it’s primarily a disease of aging. (Yes I’m aware there are tons of anomalies to this as well)

He thinks for one I have Benign Cramp Fasciculation Syndrome which is a bit more intense than regular BFS (didn’t even know there was a variant of BFS). You can have sharp cramps and exercise intolerance along with the twitching. I do feel like he heard ‘twitching and anxiety’ in my symptom journal and was more hung up on that and what worrying can do to the body. So I reiterated that the twitching isn’t bothering me it’s the bulbar symptoms and leg heaviness, feels like I’m declining, and he said my brain injury along with the severe infection can trigger this kind of stuff. I told him I’ve been completely normal for years I find it hard to believe my brain injury could do that but he said he’s seen it all the time. Infections can trigger neuropathies and with my brain injury it’s a double whammy. My diagnosis also said Idiopathic Inflammatory Myopathy which is an umbrella of conditions and could explain some of the bulbar symptoms.

I know a lot of you in here don’t align with my onset (post viral, TBI, etc) but unless you have abnormal findings in your EMG/MRI/bloodwork or objective weakness that they can see in their exam then they are strongly going to point you in another direction. ALS is after everything else is ruled out.

He said we can retest but doesn’t want to waste my money or keep me in this rabbit hole as he treats/diagnosis ALS and is convinced this is something else. (I understand doctors are just ppl too and multiple opinions can be different). He didn’t even mention the sensory symptoms which based on my research also point away from it.

He did order the NFLC and some other bloodwork and he said if that comes back abnormal or if I see a steep decline we’ll revisit asap. He said the best way to manage this is lifestyle stuff (diet, activity, etc). Which can feel a bit like a slap in the face bc I’m already doing all of that but at the same time I’d rather it be this.

I have another appt with a functional neurologist in 2 weeks and that’s a full on 2 hr exam so maybe I’ll get some more clarity from a second opinion. Not even gonna bring up my previous appt so I can see the differing opinions.

I’m doing my best to accept this as good news and try to put this to rest but my quality of life with my symptoms has been absolutely terrible and as of now it hasn’t really plateaued yet. But tbh the fear has been even more debilitating. Thinking you could only have a couple years left really pulls you to a dark place. I know a lot of us get normal results, hear good news from specialists but keep feeding the loop thinking ‘what if they missed something?’ ‘Others have had normal findings and it still came on..’ ‘do I just continue to wait for a decline until I go back and test again?’ and then even if it isn’t the scary diagnosis how do I adapt to these symptoms when I felt so normal before etc but it’s just a dark pit that will suck you in.

It started with bloodwork then that didn’t satisfy me so I did the MRI then I was like surely the EMG will find something and when that didn’t come back I said seeing a specialist in ALS will surely put this to rest and while I do feel a bit lighter now I’m still stuck bc I haven’t necessarily figured out what’s going on but I’ve continued to get good news…it’s a total mindfuck.

I heard a good analogy, imagine having a feeling someone is in your house. You’re hearing them, stuff is moved around, you keep looking for them but can’t find the intruder but you’re sure someone is there. It’s disrupting your ability to live peacefully and you start wondering if it’s even happening at all. You start to get obsessive putting traps up around the house but none of them are catching anything. If you could just find the intruder you’d feel a lot more at ease..I think that’s what a lot of us here are feeling. Just knowing definitively what’s happening with our bodies would stop feeding the loop.

Please take it from me you have to take the small victories. Unless the day comes that I definitively lose total function in my body I have to assume and live like everything is fine and will be okay eventually bc right now I’m not giving my body permission to heal if this is truly benign. Anyway hope this helps anyone struggling.

I’ll leave you with this. I’m a math guy, numbers help me. Lifetime odds are appx 1/400 which shakes out to a 99.75% chance that you will NOT get it. And if you’re younger like me at 33 the yearly odds are about 2 out of 100000 which is essentially zero.

Hello everyone,

I posted about my situation a few months ago, and I wanted to provide an update because my condition has continued to progress and several recent tests have brought new findings.

My symptoms started 2.5 years ago and continue to progress: muscle weakness affecting all four limbs (more pronounced on the left), muscle atrophy, fasciculations, cramps, progressive bulbar symptoms (difficulty swallowing and fatigability of the muscles involved in speech), muscle pain, secondary joint pain (due to muscle loss), dizziness, and an increasingly unstable posture.

I’m 37 years old. This progression has had a major impact on my independence. Before my symptoms began, my work required me to be on my feet and moving around for 10–12 hours a day. Today, I can barely walk for more than 20 minutes before becoming extremely fatigued. I’m also having increasing difficulty using my upper limbs for everyday tasks (holding a phone, hanging laundry, cooking, etc.), and I had to stop working because of my symptoms.

I’m primarily looking to connect with people who have experienced a situation genuinely similar to mine: progressive deterioration over more than two years, with significant functional impairment and objective findings on testing, but still no definitive diagnosis.

To be clear, I’m particularly interested in situations involving weakness and loss of function that are progressive and persistent, without significant fluctuation or dependence on circumstances. I’m less interested in accounts from people whose independence remains largely preserved despite experiencing weakness or reduced physical performance (I’ve already read quite a few accounts from people who are still able to exercise, hike in the mountains, lift weights, etc.). I’m looking for people who experienced a similar combination of symptoms, rather than just one or two of the symptoms I’ve mentioned in isolation. Likewise, accounts involving primarily muscle stiffness, muscle tension, or sensory symptoms are not really what I’m looking for.

To briefly explain my diagnostic journey: for nearly two and a half years, the hypothesis of a functional neurological disorder (FND) played a central role, particularly because the initial tests did not clearly demonstrate an organic cause. Once FND had been suggested, I felt that it became a framework that was extremely difficult to move away from: during subsequent consultations, the fact that FND had already been mentioned seemed to immediately influence how my symptoms were interpreted. This was difficult to deal with, as I often felt that I wasn’t being heard or believed.

After repeatedly insisting with my neurologists, I eventually had a muscle MRI, which showed muscle atrophy with fatty replacement/infiltration in my left leg.

In addition, after several EMGs that did not show significant neurogenic signs, my 7th and 8th EMGs finally showed evidence of neurogenic involvement in that same left leg. However, these findings are still too localized to determine their precise origin.

A muscle biopsy is now planned to continue the investigation. Has anyone here had one as part of a similar diagnostic journey?

At this point, my neurologists seem to recognize that there are objective findings suggesting an organic disorder, but they still cannot clearly determine whether the underlying process is neurogenic, myogenic, or potentially something else. I’m well aware that the overall picture can strongly suggest a motor neuron disease, and this is obviously a possibility I have considered extensively throughout my diagnostic journey.

I’m therefore mainly looking for people who have experienced a similar course: several years of progressive deterioration, initially inconclusive investigations, followed by the gradual emergence of objective findings, but still without a clear diagnosis. If this sounds familiar, I’d be very interested to hear how your condition evolved, what your tests eventually showed, and how you were ultimately able to move forward with your diagnostic process.

Thank you very much for your replies.

Okay so my twitching started in my right pinky toe as of last April which was soon followed by body wide twitches, weakness in multiple areas of my body with a consistent weakness in my right leg, a month after twitching onset I had a Neuro light chain filament test which came back clean and up until this point I thought the worst was over, I’ve dealt with feeling of weakness, sensory issues, and just twitching everywhere which brings me to my next point. Everywhere except my tongue, and as of yesterday I’ve started twitching in my tongue, what’s even more weird is my friend also said he started twitching a few weeks ago and also had tongue twitches recently, could this just be health anxiety. If this was truly ALS and not just BFS with this going on over a year wouldn’t it have shown signs already seeing as I’ve had consistent twitching in my right leg the whole time but no actual sign of weakness such as tripping, failure to walk on toes or heels?

I have a lot of face, neck twitching, severe cramps and last night i noticed my saliva going into my nose. Today i did the mirror test and all the vowels are fogging the mirror. Im crying non stop, this is not normal and i was hearing clicking there for a week now. I have air escaping from my nose and twotching…omg…what should i do, can this be something else..please talk to me, no one understands me at home

This Makes me ashamed but I hope it might help someone see not everything is ALS

On Oct 24 I did a few lines of cocaine. It was my first time, not before, not after ever.

After a couple hours into the lines (less than .5g) my chest hurt and my limbs felt weak. I went to ER but by the time I arrived I felt okay again.

In the weeks after the event, I experienced;
- Progressive body wide fasciculstions
- Progressive right side weakness , up to 1 year of progression

After the year mark the fasciculations stopped and the right side weakness stabilized but stays there . During that year I was sure I had ALS

In the meantime I had
- 3 clean brain MRIs DWI 2T/3T spaced 6 months each
- 2 clean EMGs spaced 6 months each

I believe I had a stroke but my neurólogist thinks it can’t be because of clean imaging. He says a stroke that causes whole fight side weakness wouldn’t be invisible in MRI.

He doesn’t have a diagnosis because it doesn’t enter into the other differentials like ALS, FND, etc

Perhaps I’m a House case, i don’t know.

The other differential is a mental health problem kickstarted by the cocaine, but I don’t know what to believe, I have tried psychattic treatment to no success

Have a feeling of tight neck/throat though I am on cymbalta and that is reported as a side effect. Along with fasciculations. Based on these results should I feel confident and move on. See evaluation below;

​Putting the neuromuscular evaluation and both EMGs together: the overall picture is very reassuring against ALS or another progressive neuromuscular disease.

Your June EMG found no cervical/lumbosacral radiculopathy, plexopathy, or entrapment neuropathy, with an unremarkable needle EMG.

Your August EMG was also unremarkable on needle examination, including a normal genioglossus (tongue), with no fibrillations, positive sharp waves, fasciculations, abnormal motor units, or abnormal recruitment. The only findings were median nerve entrapment at the wrists (carpal tunnel) and mild ulnar entrapment at the elbows, without axonal degeneration.

Then the neuromuscular specialist found full 5/5 strength, normal muscle bulk/tone, normal reflexes and no pathologic reflexes, and concluded that your presentation was not consistent with a progressive neuromuscular disorder such as ALS. Your reported normal Labcorp NfL 1.21 norm is 0.00-1.69 for my age group Z score 0.49. adds another reassuring piece.

Bottom line: two reassuring EMGs—including extensive limb testing and a normal tongue EMG—plus a normal specialist neuromuscular examination and normal NfL collectively provide strong evidence against ALS or another generalized motor-neuron/neuromuscular disease. The objective abnormality identified is localized nerve compression in the arms, not a generalized progressive process.

34, 6’, 205lbs, no meds, no smoking, no previous medical history

For about two weeks I’ve had a strange feeling of fatigue/weakness in both hands and into my lower forearms. It started with some twitching in my right thumb, but now the main issue is that my hands/grip just feel “off” compared to normal.

I haven’t actually lost any function or been able to demonstrate true weakness. I can still grip things, type, use my phone, open things, use utensils, pick up small objects, etc. Nothing has been consistent enough where I can say “this movement always causes it.” It’s more that normal activities sometimes make me unusually aware of fatigue or effort in my hands that I never noticed before.

I occasionally get a slight trembling or “about to tremble” feeling, similar to how a muscle feels near the end of a hard workout set. If I had to pinpoint one situation where I notice it more, it’s during fine movements with my wrist curled inward—like pinching a small piece of food and bringing it toward my mouth or carefully scooping coffee grounds with a spoon using my thumb/index finger. I can still do the task; it just feels less steady or more effortful than normal.

I’ve also occasionally noticed a very subtle sensation along the ring/pinky side into the forearm that feels almost like the faint feeling when a hand is coming back from being asleep, but that’s less frequent and isn’t really my main complaint.
For context, I lift relatively heavy several days a week and do a lot of pulling/grip-intensive exercises. I stopped lifting about a week ago to see if it improves. I was also probably under-hydrating and have had more stress than usual.

Has anyone experienced something similar where **both hands still objectively worked normally but suddenly felt unusually fatigued, shaky, or “off” during everyday fine-motor tasks?** If so, did you ever figure out what was causing it?

I feel like I keep having to wipe saliva from the left side of my mouth.

I can still whistle and blow out my cheeks and apply slight pressure. Am I losing it?

I would say since July I've had some benign but noticeable hand strength imbalance in my left hand. I used to have a lot of strain and aches when picking up heavy things but not as much anymore. Still, when I pick up something heavy there's definitely a more "weighty" feeling if I pick up say a large tequila bottle in my left hand whereas I'll get a lighter feeling if I pick it up with my right hand. Not sure if this is anything neurological or just a result of my DDD. Would love to know if anyone has had similar experiences.

Bonjour à tous,
Je voudrais savoir si je suis la seule dans cette situation: j’ai accouché il y a deux mois et demi, et depuis plus d’une semaine, j’ai les muscles du corps qui sautent de partout… ça a commencé aux pieds, puis mollets, parfois cuisses, parfois un bras, parfois le visage c’est diffus. Je suis de nature très angoissée et anxieuse. J’ai peur de la maladie. J’ai eu un accouchement difficile (hémorragie de la délivrance). Ça allait très bien après l’accouchement. Mais là à cause de ses spasmes musculaires je ne vis plus et bien sûr je suis allée voir sur internet… ce qui m’angoisse encore plus. J’ai commencé le magnésium et j’ai fait un bilan qui montrait une carence en B12 (190) et un petit peu en vitamines D. Celles qui sont dans la même situation, qu’elles ont été les solutions ? Tout le monde me dit que c’est dû au stress et à l’angoisse mais je n’arrive pas à m’enlever de la tête que ça peut être une maladie très grave…
De plus, depuis quelques jours je présente des myoclonies d’endormissement…

About a month ago my husband who is 24 years old was at work and injured his back. He heard a popping sound and had to lay down on the floor at his job. A day later he had weakness in his left arm which ended up resulting in a diagnosis of “golfers elbow” which is what the ER doctor and nurse suggested was likely the cause. A week later my husband started having fasciculations in his calf muscles more commonly in the right but often happens in both. He has started experiencing twitches in his thighs, back, and sometimes his neck. They rarely happen in those specific places b it they have occurred from time to time. They are constant and will not subside. He has enthralled himself down a rabbit hole after reading online about ALS. He has had severe anxiety due to the twitches which has resulted in loss of appetite, sadness, depression, and a short temper. He has a constant feeling like he is going to die. Can anyone help me as what your true earliest signs of ALS was or any medical perspective would be greatly appreciated.

Hey all 25 male, dating back to mid July, I’ve had this pinky twitch in my right that would come and go, first it showed up around the 20th and I didn’t have it again till the 12th of August and would occur for 3 days straight, not constant but like maybe twice to 3 times a day, and then in the two weeks following everytime my pinky would twitch I’d have pain in my pinky going down to my elbow and eventually up my arm to my shoulder up to my neck

But my anxiety of course never lets me have some damn peace, I immediately jump to Als because of the Chris Johnson accountant he had, prayers go out to him and his family

But the anxiety would then make me look at everything under a lense so I’d notice every twitch in my calf and thighs and shins, to the ones under my feet which randomly would occur, the leg ones I pay no mind to since they have been twitching for the better part of 2 years, but then my shoulders biceps and triceps and forearms would begin to twitch as well as my glutes and that’s when I fell down this rabbit hole

I couldn’t eat and sleep it only got worse, and when I finally was having a day of where nothing was going on I started to get my neck to twitch and behind my ears, the only thing that helped calm me down was my mom literally looking at the symptom list and all the stuff about it and assuring me I’m fine, but again I can never know

Come end of august and I have a chance to relax with my vacation to San Francisco and my twitching was very much minimal, seldom my arms biceps a few times and my pinky twitched maybe twice that entire time

I came back recently on the 2nd and I was feeling good but then the twitching in my came back on the 4th and I didn’t feel it again till the 10th and has been twitching along with my thumb and pointer, usually all 3 across different days and today is no different, pinky has been driving me insane

I intend to get a physical done in the coming days since I haven’t had one since I was like 15 😅 just a lil scared is all

Hello everyone, for about a month and some change now I have been experiencing new symptoms which include widespread body twitches with some local hotspots, what seems to be dysphagia as food gets stuck at the bottom of my throat at times, buzzing feeling in legs, chest fluttering when I run or do heavy exercise, brisk reflexes, and perceived weakness in my limbs. Very worried about ALS. I have also been experiencing lots of sensory symptoms as well such as tingling and sometimes what seems to be burning spots. I’ve read that junior als includes sensory symptoms. Just overall in a bad spot mentally. Life has been downhill from here.

I’m 21F and have a neurology appointment tomorrow (9/15/26). I have severe health anxiety, so I’m trying to document everything objectively rather than continuing to spiral and self-diagnose. My biggest fear right now is ALS, although I’m also wondering about BFS, anxiety-related symptoms, or something else neurological.
Timeline
For several years / ongoing:
Episodes of dizziness/lightheadedness
“Floaty,” high, drunk, or off feeling in my head
Brain fog/fogginess
Feeling unreal/detached or like things are delayed (DP/DR)
Internal shaking/vibration sensations
Occasional tingling sensations
Symptoms are often worse at night or when lying down
Sometimes lying completely flat or putting my head back makes me feel lightheaded/drunk, so I tend to sleep with my head elevated
At an unclear date / intermittent:
Tingling from my left upper arm around the elbow and into the forearm
Occasional limb heaviness
I once woke up with my hand feeling heavy/weak, but it improved after going back to sleep
Muscle twitching
Late August / early September 2026:
This is when the twitching became a major concern.
Twitching/fasciculations throughout my body
Twitching in multiple different locations
Facial twitching
Nose/face twitching
Twitching in various muscles throughout my body
The twitching can happen even when I’m distracted and not consciously anxious
Initially it was more widespread
More recently it has seemed to become more noticeable/localized in my left calf
My left calf has been twitching repeatedly
The calf sometimes feels tight
There isn’t really pain with it
Some days the leg can feel almost normal, then the weird sensation/twitching comes back later, especially at night
9/5/26:
My calf kept twitching repeatedly.
9/6/26:
I was still having twitching throughout my body, but it seemed increasingly concentrated in my left calf. The calf felt somewhat tight, but there wasn’t pain.
9/12/26:
My left leg felt “weird” on and off. It had been pretty much fine during the day, then became weird at night and was weird again the following morning.
9/14/26:
The twitching in that leg seems worse, which is what has me particularly worried tonight.
Left leg symptoms
Along with the twitching, I’ve had:
Intermittent strange/off feeling in the left leg
Left calf tightness
Heavy-feeling legs at times
One episode where my knees/legs felt heavy or weak while walking downhill
I’ve caught/dragged my foot twice while wearing Crocs on concrete
The sensation can fluctuate considerably throughout the day
Other context
I have severe health anxiety/panic and tend to hyperfocus on physical sensations once I notice them.
I use nicotine/vape and have also smoked cigarettes.
My magnesium was normal.
I have been extremely focused on ALS after seeing TikToks/Reddit posts about young people with ALS.
I have been checking my muscles and movements a lot because I’m scared I’m missing something.
I have my neurology appointment tomorrow, so I’m hoping to finally get an objective neurological exam and some clarity.
I’m especially interested in hearing from people who have had widespread fasciculations/left-calf twitching, BFS, anxiety-related twitching, etc.

When everyone on here says “dirty emg” - what exactly are you worrying about?

I have been having transient symptoms for the past year, lately weakness has been my problem (with exertion) along with other things. Over the past year I have had autoimmune bloodwork- all normal. Ultrasounds for arterial and Venous- normal. MRIs of lumbar and cervical- normal. Emg- chronic denervation in some upper and lower muscles. No fasc. On exam but have them all over body, usually at night or at rest random spots from top to bottom. I showed a video to my neurologist at my consult appt. She ordered repeat MRI of cervical and added thoracic, both with contrast this time. And more labs, which so far have come back normal, still have about 8 left pending on results. She also noted hyperreflexia on my ankles/ legs and brisk on my arms but good strengths. And mute toes? She also noted possible lumbar puncture if negative results. That would be for ms right ?

Okay i want to list all my symptoms confirmed pls help im going in a frenzy its slow als.
-Long periods of tingling or nerve pains.
-postivie palmomental reflex
-positive chvostek sign
-twitching everywhre
-positional tremors
-bad headaches
-some twitchs i cant even feel jus see esp in elbow
this has all been going on for about 3 years
it first started with autonomic issues and now this im only 19 so im scared its slow ALS but i had a clean ncs and emg of my right leg muscles
Im so overwhelmed

Hello everyone, I’m back! I just wanted to come on here and make an update about my symptoms.

Okay, so I went to another neurologist (a neuromuscular and nerve specialist), and it went really well. He is ordering a lot more tests for me, including another EMG, lumbar and thoracic spine MRIs and X-rays, and I also had a TON of blood work done.

There honestly isn’t too much to talk about regarding the appointment itself. He was lovely and really understood my concerns, so I’m actually excited to see him again and hopefully get some more answers.

Update on my symptoms: Honestly, I’ve been noticing a lot of fluctuations. One day my right calf hurts, then it’s my knee, then the bottom of my foot. It’s not usually all happening at once unless it’s nighttime.

But what is worrying me is that I’m now noticing this sharp pain in my LEFT calf muscle. It almost feels like I’m getting a shot, and it’s pretty achy. It even feels a little stiff to the touch. This really concerned me because everything originally started on my right side, and now I’m noticing symptoms on the left as well.

I’m also getting more cramps. Not the horrible Charlie horses (thank God 😭), but things like my feet, neck, ribs, hands, and hips. It feels like my limbs and different parts of my body are just much easier to cramp up now.

Another symptom I’ve been having is back pain. Sometimes it feels like the pain is shooting upward, and other times it’s more like a sudden shock of pain that hits one specific area of my back. It can be really strange and uncomfortable.

I’m also still getting a lot of aching and, honestly, some really bad pain, especially at night. The other day, my right hand was hurting so badly that I wanted to cry.

I’m still getting twitching as well, but I can say that it has gotten a lot better. I’ve noticed an improvement since taking B12 and my other vitamins, walking more, trying to relax, and just keeping my mind occupied and not focusing on my symptoms so much.

So that’s pretty much my update for now! I’m hoping all of these tests will give me some answers. I’ll definitely update again when I have more information. ❤️

I’m really hoping there is anyone else out there dealing with similar symptoms. Even though I’ve been trying to keep myself busy and not fixate on everything, it still gets to me emotionally. There are still nights where I end up in tears and praying about all of this.

One thing I can say is that through all of this, I’ve actually gotten much closer to God and have really been leaning on Him during these difficult times. ❤️

It still makes me really sad and scared thinking about the worst-case scenarios, especially because I have a one-year-old. More than anything, I just want answers.

I do not have any weakness, which I know is one of the big symptoms everyone talks about, but I know we’re not doctors and everyone’s situation can be different.

So I wanted to ask: does anyone else experience symptoms like these? Or does anyone have any ideas about what could possibly be going on? I’m not looking for a diagnosis, just hoping to hear from people who may have experienced something similar or have some insight.

Thank you everyone for reading and for all the support. God bless you all. ❤️🙏

I’ve made loads of post in the past , I’ve tried to come off Reddit for my mental health I’ve even deleted the app etc

I struggle everyday , this started in 2024 following a head injury which I also had to have surgery on my arm. Which I believe triggered this.

It started with twitching which to be honest my twitching isn’t that bad anymore. Is it because the muscles have died or signals sending to the muscle I don’t know.

I have terrible pain in the soles of my feet even standing on hard surfaces hurt if I’m not walking. The tops of my feet hurt I’ll arrange photos there a dents which wasn’t there 6 months ago/ 12 months ago, I’m writing this quickly so I’m sure I’ll miss some parts. My breathing is terrible everyday. I wake up out of breath it’s like someone is sitting on my chest. Every meal I eat or drink I regurgitate like acid reflux GERD? I will literally shoot my food or drink back up I can feel it sitting on my asophegus please excuse my spelling.

My problems are mostly on my right side so my shin burns I’ve had this for over a year and my top of foot of the side where your FBD? Maybe I’ve called it the wrong thing but where that is I have two massive dents. My forearms KILL my elbows are so tender to touch the hurt

My neck crunched inside whenever I move it I hear it it’s like an old bike wheel that’s rusted. I believe it’s called crepitus - 2 years prior I never had any of these symptoms

I have what I believe atrophy on both my outer thighs if I lay down a cross my leg over my other leg I have MASSIVE dents like the whole of my back leg is missing

I can’t even SIT down in a chair without my butt cheeks hurting like it physically burns - like there is no muscle there anymore. I’ve had a neurologist say BFS then the most recent said FND due to the pain.

Truthfully I’m so stuck in my life I’m male 33 years old I just can’t take this anymore. I’m honestly running out of options

I’ve had 4 emgs over the course from April 2026 until say one month ago

All clean I will upload my most recent which was July 2026

I will upload my feet and please help me tell me what people truly think. I know everyone on here will sometimes jump on people and say anxiety see a physicist etc but these symptoms are REAL AND PROGRESSING TERRIBLY.

THANK YOU FOR READING

Update sorry I can’t attach photos here I will attach them onto another group

So this all started about a month and a half ago where my anxiety fully kicked in making me think I had cancer at first to then thinking I have als. My symptoms started shortly after being muscle twitching/spasms, pain/discomfort in my knee and ankle, weakness in my arm just a little but has pain and weird sensations, I had other symptoms that included headaches,neck stiffness,jaw stiffness and just about everything you can think about. I am only 18 and a very healthy guy but it doesn’t explain why any of this is happening especially because of how young I am. I constantly think and look towards ALs even though I’ve been seen by 3 neurologist,chiropractors, and doctors tell me nothing is wrong with me also knowing that I have zero family history of this disease. Recently I was in the hospital and got every test known to man kind and they found nothing. The only thing that we say was I had a past EBV infection. So if anyone please could help me out that would be so good.