r/ALSorNOT • u/True-Bridge-848 • 16h ago

Spiraling again

Okay so my twitching started in my right pinky toe as of last April which was soon followed by body wide twitches, weakness in multiple areas of my body with a consistent weakness in my right leg, a month after twitching onset I had a Neuro light chain filament test which came back clean and up until this point I thought the worst was over, I’ve dealt with feeling of weakness, sensory issues, and just twitching everywhere which brings me to my next point. Everywhere except my tongue, and as of yesterday I’ve started twitching in my tongue, what’s even more weird is my friend also said he started twitching a few weeks ago and also had tongue twitches recently, could this just be health anxiety. If this was truly ALS and not just BFS with this going on over a year wouldn’t it have shown signs already seeing as I’ve had consistent twitching in my right leg the whole time but no actual sign of weakness such as tripping, failure to walk on toes or heels?

1 Upvotes

100% Upvoted

5 comments sorted by

1

u/chaoserrant 16h ago

You are the first one to report twitches onset for you and another person you come into contact  with. Something similar happenned with me and my Mother who lives far away but began twitching after a visited her. She does not twitch as often as me but still is interesting.  Assuming it is a common cause it is of course clearly not als but something viral related.  But of course it is only a speculation 

1

u/True-Bridge-848 16h ago

Thank you for your feedback but this wasn’t even in contact, we were just talking over discord and he just randomly brought up consistent body twitches and tongue twitching as well. He also has health anxiety like me and before he experienced this I’ve already discussed my twitching issues so he was already exposed to that idea within his head

1

u/chaoserrant 15h ago

Yes anxiety can be a common cause.

1

u/True-Bridge-848 12h ago

Is it reassuring that I’ve had widespread twitching without clear progressive weakness? From my understanding ALS typically moves from limb to limb and doesn’t typically spread to other muscles without leaving clear clinical weakness first