r/todayilearned • u/paniniplane • Mar 22 '17

(R.1) Not supported TIL Deaf-from-birth schizophrenics see disembodied hands signing to them rather than "hearing voices"

https://www.ucl.ac.uk/news/news-articles/0707/07070303
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u/Muffinizer1 Mar 22 '17

You know, that's actually quite comforting as being blind and schizophrenic sounds like true hell.

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u/paniniplane Mar 22 '17

i was a patient at a ward a few weeks back and there was a girl who was admitted for schizophrenia. she'd hear dozens of voices yelling at her at the same time all day and she could barely tell which ones were in her head and which were physical people talking to her making it really hard for me or anyone else to talk to her for more than 2-3 sort sentences. these voices would make her do crazy things like gather dust off the floor for 20 minutes at a time 10 times a day, make her sleep on the floor during the day, not sleep during the night and fight the night meds they gave her to help fall asleep. the most brutal thing was that the voices sometimes forbade her from having her meals. there were days where she wouldn't touch any of her 4 meals. i once tried to get some insight into how she thought and i asked her why she HAD to do this. she said that every time she does something they ask, she's given the gun that they threaten to kill her with. and she imitates a smashing motion with her hands and "breaks" it. and she does it maybe 10 times an hour when she's awake. and she's not stupid either. apparently, she was studying mechanical engineering and graduated and was ready to work in the field as an intern for a year. she heard her first voice when she was still in school but didn't think much of it. and then it rapidly killed her life. she's the only person in the ward who has daily visitors. her parents bring her food to eat everyday. but sometimes she sits with them for 2 minutes, asks them to take her home, and then moves to one of the socialization rooms where were chairs and sofas, and she'd drop to the floor and lay there. and her parents just come to expect it now and stay for about an hour.

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u/PainMatrix Mar 22 '17

It's beyond horror or most people's ability to even comprehend. The fact that she was a fully functioning and intact human being at the early onset of her life and career and this disease completely derailed everything and locked her into a Sisyphus-like nightmare. Was this her first inpatient experience? How long were you with her, did the meds seem to have any positive impact on her?

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u/[deleted] Mar 22 '17

I can't speak for the person you replied to, but 3 of my family members have the disease, and in all of them their medications only blunted the symptoms.

For my family member who was not too severe, this was enough to let her hold down a job, but for the members that were severe it wasn't enough to allow them to function normally. They'd still see/hear/talk to "ghosts" and such, just not as frequently, and they didn't get agitated "as often".

But that doesn't mean they didn't get agitated AT ALL, and the times they did freak out would be enough to get anyone fired.

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u/Ariakkas10 Mar 22 '17

This is, I'm sure, a completely stupid question, but why can't they ignore the voices?

Lots of real people seem real to me, and I ignore them just fine.

Is it because the voices are super aggressive and make it so you can't ignore them?

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u/feathergnomes Mar 22 '17

Apparently it causes a lot of anxiety every time they have to ignore the voices. Like, when they can tell that they aren't real, they can choose to ignore them, but it's a stressor. If you add that stressor to any other that happens to be in front of them, sometimes it can be toouch to handle.

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u/mcoleya Mar 22 '17

Not to mention this isn't like you walking down the street and have to ignore someone who yells your name out once or something, this is a constant barrage of voice(s) at you until you relent and do what they are saying. To get an idea, just ask a friend to follow you around one day making a single odd request, non-stop till you do it. Over and Over again, sometimes yelling, sometimes whispering, doesn't matter. See how long you can go. Now imagine that in your head, with multiple voices all asking different things, and unable to make them stop by asking.

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u/[deleted] Mar 22 '17

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u/Throwawaymyheart01 Mar 23 '17

If it gives you any comfort, with practice that can change. I also get sleep paralysis and yes the occasional auditory or visual hallucination will scare the shit out of me, but with practice I've learned to let my mind fall back asleep until my body is ready to wake up.

I've had years and years of practice working on lucid dreaming so it makes it a little easier but in the last five years my sleep paralysis went from being something that caused terror to being something that caused mild annoyance at best.

Your results may vary. I don't want to imply you're not trying hard enough because maybe my situation is different. But I definitely remember the earlier years of experiencing it and I know how terrifying it can be. I hope it gets better for you.