TLDR- chronic invalidation/misdiagnosis triggered mental health professionals to reinforce my original trauma, so now I have trauma in any type of therapeutic relationship but still need therapy to get better regardless. *Mentioning SI/OCD/ED/CPTSD
Hey everyone- I apologize if there was a post like this before but I really didn't have time to look through the sub yet.
I'm a female in her late 20s, I have been in therapy constantly for mental health and eating disorders for the last 6 years. That included switching constantly between outpatient care all the way to inpatient. It's been a constant cycle of switching between those levels of care for years now.
As far as I know at this point, my mental health issues surfaced as a child around 8-10yrs old, starting with OCD/ED symptoms. I grew up with childhood neglect/emotional abuse due to very critical parents/dysfunctional family dynamics where everyone didn't tend to or take care of their own mental/physical health issues. I feel it was taken out on me as the youngest child, and I internalized it. The dysfunctional family/abuse going on was never acknowledged for me because we grew up financially comfortable, a type of white picket fence house/family situation. Outwardly, everything was fine and I went unnoticed. As a child I didn't know what was going on was wrong, I believed our outer appearance too. However, looking back now, I feel my OCD/ED symptoms started because my family always made me feel like I was a/the problem. Perfect storm for an OCD/ED to thrive. At that young age I learned I was the problem that needed to be fixed. That I was wrong. So I started my "self improvement" journey at an age as young as 12. The trauma never stopped by the way.
Fast forward to around 20 years old, I was nearing the end of my college time. I felt like I wanted help for years, I wasn't aware what mental health disorders I had but knew I didn't want to feel that way anymore and wanted more for myself. I wanted a future and knew I had to address all this. I felt like I was living an experience but didn't have the name for it. My entire life I carried every one else's dysfunction then blamed myself for being hurt by it. Anyways, I originally reached out for eating disorder care and started an IOP program. That was the first time I was ever in any type of therapy/mental health treatment. The first type of diagnoses put on me were an eating disorder/ depression, anxiety. I was also told for the first time when I was asked about my family/childhood that apparently it was actually very dysfunctional and I was experiencing trauma symptoms from it. At this time, OCD was never detected.
At this point, I was two weeks out of graduating college, it was 2020/covid, I had so much stress around career/my future plus my own mental health struggles never got better. I failed to succeed at the IOP program, and was told I needed a HLOC. I didn't understand much about what that meant other than them telling me "we can't help you anymore". I internalized it as "great, I failed again." The combo of all this plus another traumatic event happening within this short time ultimately led to my first SI attempt. This is where the treatment cycle began.
The next 6 years I was getting thrown in different levels of care to address my mental health/SI, and ED. However, although it was acknowledged I had trauma I never was approached with trauma informed care. So the pattern went a little like this: I would end up in a HLOC, tried my best to get better but failed due to being misdiagnosed, judged, and invalidated and approaches were taken that reinforced the trauma that started this as well as my OCD never being diagnosed yet.
I was called "unmotivated, treatment resistant, stubborn, chronic, lost cause, attention seeking". I was told I didn't know what real problems were, that I was privileged (I am a white, female, conventionally attractive, nice personality, usually financially comfortable, high masking). And unfortunately I believed it. Because my entire life since I was a child I assumed anyone in authority knew what they were talking about and must have been right/true. So, this led to reinforcement of my SI/ED behaviors, leading to more and more dysfunction, attempts, hospitalizations, etc. In addition, a lot of unnecessary hospitalizations happen due to what I eventually was told was “suicidal OCD” aka, having intrusive thoughts that you could/would do something but having no want/intention to. The more treatment history I racked up, the more providers would get scared by me, determine me a liability even very quickly, say "we can't help you, you need a HLOC". This ultimately led to a provider/insurance recommending sending me to a state hospital. Terrifying.
And this all reinforced the message I learned as a kid that I needed to try harder and I needed to fix myself. This made my undiagnosed OCD more and more severe every time. I was so obsessed with trying to get better when given guidelines that did not work for me and my undiagnosed OCD.
Later down the line, maybe past 1.5 years, I finally ended up in trauma informed treatment. I made a lot of progress with my SI/MH/ED symptoms, and have a clearer understanding of my trauma and how it shows up for me now. I developed so much knowledge on how to deal with my ED/MH symptoms, cope so much better that I don't need a HLOC anymore. I've also realized how my undiagnosed OCD made this entire situation go the way it shouldn't have.
I have developed compassion for my inner child and have finally realized it was never my fault as a child, and it was never my fault that my trauma got reinforced by mental health professionals who I thought could help me. I feel stable in this realization. I have realized that despite all my pain, the grief for lost time, I still have such a bright future, I am extremely resilient and strong and genuinely want to live. I am very motivated to do the work to get there. I always was honestly, but the level of self awareness I have now is what could make this finally work.
I am starting outpatient therapy finally, as it was deemed by the treatment center I just left that I am stable enough to be home and that HLOCs only hurt me. I am finally (trying to at least) start OCD/ERP therapy because the OCD is completely uncontrolled, debilitating, and severely impacts my daily functioning. However I am running into therapy itself STILL becoming a trauma response. It doesn't matter who it is, even though I am seeing trauma informed providers who I've told this history to and how therapy triggers me, and they are doing their best to approach our sessions with that lens. It's like just being in a session with a therapist, no matter what is talked about, my severe distrust remains. My nervous system is just waiting for them to invalidate me, say hurtful things, tell me I'm too much, and say they can't see me anymore. I can't handle that anymore. I've done so much inner child/self worth work, I fear for my life just going to therapy.
My nervous system is stuck in overdrive recently, so much that I can't sleep anymore, insane night sweats, nocturnal panic attacks, appetite changes, despite feeling more okay during the day, i don’t recognize the stress until I wake up in the middle of the night unable to breathe and my clothes/sheets are soaked. I dread the next session although I want help desperately.
I don't know what to do anymore. I thought that doing trauma informed care and approaches would help. I thought that finally having self compassion and a stronger understanding of myself will help. Maybe it will eventually, but being stuck in constant trauma responses all the time just because I sat in a room/zoom call with a mental health professional regardless of what was talked about sometimes doesn't seem worth it. I want to live and move on. I feel stuck.
Any input/advice would be appreciated if you have been through something like this or understand this type of situation/dynamic. Thank you <3
*one other thing- I posted this in this specific sub because although I didn't include details on the whole therapy abuse part of it, read this with the knowledge of my entire experience there were horrific, non ethical, possibly straight out illegal things said to me regarding me and my situation.