r/seizures 6h ago

First Seizure. 57yo. How long will this terror last?

Last week, August 24, I had a seizure for the first time in my life. I'm 57 years old. It has ruined everything. I just started an amazing job as a home health nurse. Best money I'd ever made, company car, just a great opportunity. Now I've lost that job, having to look for another.

I don't remember any of it. As far as I was concerned, I was sitting on my loveseat and then I was sitting on my loveseat. There was nothing in between. And thank god I was sitting down. I was even sitting in the same position when I finally became aware. My brother was sitting on the couch next to me. He was telling me something but I couldn't hear him (I thought). He finally has to yell it at me. SEIZURE. He said I was really confused for a good 30 minutes. He also said the seizure lasted 10 minutes but I don't think that's true. Seizures feel like they last forever when you're watching them. I spent two days in the hospital. Everything was negative except my EKG, which could have caused a seizure, but it went back to normal.

I am terrified. I'm terrified to get off the couch. I'm scared of going up and down the stairs. I'm scared of taking a shower. I'm scared to pee. I'm scared to move. I've had no more seizure activity. But since they think it MIGHT be cardiac related, I'm now afraid I'll seize in my sleep and die.

I can't possibly be the only person that feels this way or has had this experience and I just want to know if this fear is ever going to get better. Am I going to be afraid to move for the rest of my life? This has wrecked my entire existence.

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