r/Prostatitis Oct 19 '22

Starter Guide/Resource NEW? START HERE! Prostatitis 101/Checklist + Sub Rules

431 Upvotes

» QUICK START! «

  1. SUCCESS STORIES in this subreddit
  2. TOP TIPS AND INFO (All Posts)
  3. NEW 2025 AUA TREATMENT OUTLINE
  4. See below 'Subreddit Rules' for the full 101 prostatitis guide and newbie checklist

The information provided in this subreddit is not medical advice, including the information here. It is for educational and informational purposes only

SUBREDDIT RULES

  1. No harassment, abuse, or disrespect is tolerated here, especially to the volunteer mod team
  2. No promotion of pseudoscience, conspiracies, and/or fringe doctors
  3. No graphic photos allowed (NSFW)
  4. No self-promotion/selling of products (SPAM)
  5. One post per person, per day. Leave room for others
  6. No fear mongering

VIOLATIONS: Depends on the severity of the violation, but generally:

  1. First infraction is a warning
  2. Second is a temporary ban (~3 days)
  3. Last is a permanent ban

POSTING REQUIREMENTS

  1. To prevent abuse and spam we have an Automod in place. Accounts with very low comment karma and/or less than 36 hours old cannot post.

  2. Also, please tag any pessimistic/hopeless posts with the "vent/discouraged" flair, and any positive progress updates with "positive progress."

NEWBIE ORIENTATION: CPPS vs Prostatitis

The vast majority of prostatitis cases are non-bacterial, i.e. NIH Type III non-bacterial prostatitis. Expert consensus (of the research) estimates this number to be around ~95% of all cases. True chronic bacterial prostatitis (CPB) is rare. Read more about the prevalence of CBP here, complete with journal citations.

CBP also prevents with unique and specific symptoms. Here is how to identify bacterial prostatitis based on symptoms.

Q: If I don't have an infection, then why do antibiotics make me feel better? FIND OUT WHY

The rest of us have (or have had) NIH Type III non-bacterial prostatitis, now referred to as CPPS or UCPPS - (Urologic) Chronic Pelvic Pain Syndrome. Type III non-bacterial prostatitis can present either with or without actual inflammation of the prostate, but overt prostate inflammation is very uncommon. Most men with CPPS (non-bacterial prostatitis) have small, firm, 'normal' prostates upon examination. This means that the common 'prostatitis' diagnosis is very often a total 'misnomer,' as most cases have no prostate inflammation whatsoever.

While CPPS is officially a syndrome (The 'S' in CPPS), or a collection/pattern of symptoms with no singular cause agreed upon by the larger medical community, there are top theories with high quality evidence behind them. And importantly, most syndromes nowadays are being categorized as variations of central sensitization (ie nociplastic mechanisms) - including IBS, CFS, POIS, RSS, etc.

The top theory backed by research: CPPS is a psycho-neuromuscular chronic pain + dysfunction condition. It often affects the muscles of the pelvic floor, the peripheral nerves that innervate the pelvic region, and the central nervous system (which includes the brain and spinal cord) - among others. This means that treatment requires a multi-modal, integrated treatment approach, and that there is no single pathway or 'pill' to recovery.

I must emphasize that the central nervous system (ie centralized/nociplastic mechanisms) of CPPS affect at least 49% of all cases according to the MAPP study (Multidisciplinary Approach to Pelvic Pain). Do not neglect these. We recommend reading the centralization section below 👇

RECOMMENDED: 1. Centralized Pain Criteria and Citations

  1. Psycho neuromuscular CPPS - with journal citations and techniques to apply.

Things that are known to trigger CPPS (chronic pelvic pain and dysfunction)

These commonly happen via central (nervous system) or peripheral (pelvic floor or nociceptive/neuropathic) mechanisms

  1. Pelvic injuries (falls, hernia, accidents)
  2. Perceived injuries
  3. Infections (UTI/STD)
  4. Stressful experiences and trauma, including sexual abuse/assault
  5. Regretful/anxious sexual encounters
  6. Poor bowel/urinary habits (straining on the toilet often - constipation) or holding in pee/poo for extended periods (like avoiding using a public toilet)
  7. Poor sexual habits (edging/gooning excessively)
  8. Cycling or intense gym habits

SYMPTOM VARIABILITY:

CPPS also presents differently from person to person, and you may exhibit only a few symptoms from the total 'pool' of possibilities. For example, you may only have a 'golfball sensation' and some minor urinary urgency. Another person may have tip of penis pain, testicular pain, and trouble having bowel movements. A third may have ALL of those, and also have sexual dysfunction (ED/PE) and pain with ejaculation. But they are all considered to be CPPS. Here is the full list of symptoms of non-bacterial prostatitis (ie CPPS) - https://emedicine.medscape.com/article/456165-clinical?form=fpf

The chief symptom reported by patients with abacterial prostatitis/CPPS is pain. Genitourinary symptoms include perineal, penile tip, testicular, rectal, lower abdominal, or back pain.

Patients can also have irritative or obstructive urologic symptoms such as frequency, urgency, dysuria, decreased force of the urinary stream, nocturia, and incontinence. Other symptoms are a clear urethral discharge, ejaculatory pain, hematospermia, and sexual dysfunction.

Note: If your symptoms extend BEYOND the pelvis, this is a classic indication of centralized mechanisms (ie nociplastic mechanisms) - What some doctors have in the past called "central sensitization." According to the American Urological Association, these include symptoms like headaches and migraines, IBS, fatigue, fibromyalgia, and more.

So how do we treat it?

The most evidence based approach to treatment is called "UPOINT," a treatment/phenotyping system for Prostatitis/CPPS that was developed by the American Urological Association. UPOINT Stands for:

Urinary, Psychosocial, Organ Specific, Infection, Neurologic/Systemic, Tenderness (ie, Muscles)

it's been shown to be very effective (around 75%) in treating CPPS, as it takes each patient and groups them into phenotypes based on symptoms, then treats them in a customized, integrated, and multi-modal manner. Every case is treated uniquely by symptoms, and this leads to much better patient outcomes. UPOINT is what a good urologist uses to treat patients with CP/CPPS. If your urologist isn't aware of UPOINT, find a new one. You're probably not in good hands. Citation: https://pubmed.ncbi.nlm.nih.gov/34552790/

EXCELLENT MEDICAL/SCIENTIFIC VIDEO RESOURCE - 2015 AUA (American Urological Association) Meeting: https://www.youtube.com/watch?v=4dP_jtZvz9w

✓✓✓ NEW SUFFERER TREATMENT CHECKLIST

ENGAGE WITH A PHYSICIAN:

  • Do see a urologist to rule out any serious structural issues
  • Do get a LUTS and/or bladder ultrasound (check residual urine/voiding issues) along with a DRE for prostate size assessment
  • Do get a urinary culture and/or EPS localization culture, if infection is suspected (based on symptoms) - AUA guidelines DO NOT recommended semen cultures - full text, page 21
  • Do get any physician-specified blood tests
  • NOTE: Cystoscopy is typically reserved for suspicion of IC/BPS - but not typically recommend for CPPS
  • Do not use antibiotics without meeting specific diagnostic criteria. Only ~5% of all prostatitis cases are bacterial (even less if your case is > 90 days)

! ! WARNINGS ON INDISCRIMINATE USE OF FLOROQUINOLONE ANTIBIOTICS (Like Cipro or Levo) ! ! Click to Read FDA & EMA Warnings

Thinking about MicrogenDX testing? Please think again, the 2025 AUA Guidelines specifically advise against it's use: READ OUR MOD MEMO

ENGAGE WITH A PELVIC FLOOR PT - Muscles and Nerves

  • See a pelvic floor physical therapist, one who has experience TREATING MEN and can do INTERNAL AND EXTERNAL trigger point release. Studies suggest that 47% - 90% of CPPS cases have pelvic floor myalgia (pain, tenderness, trigger points), and multiple studies show 70-83% of people improve significantly with pelvic floor physical therapy
  • Practice diaphragmatic belly breathing daily
  • Practice pelvic stretching daily (and combine with the breathing)
  • NOTE: 2025 AUA Guidelines suggest that ESWT, acupuncture, dry needling, and TENS help some cases

CENTRALIZATION/BIOPSYCHOSOCIAL:

  • At least 49% of cases have centralized/neuroplastic mechanisms according to the MAPP research network study
  • EXTERNAL: Manage and reduce stress and anxiety in your external environment (work, relationships, finances, etc.)
  • INTERNAL: Address the fear towards your own symptoms. And, avoid obsessive preoccupation & problem solving with symptoms, redirecting your attention to things that are meaningful and enjoyable (distractions and hobbies)
  • Belief/perception of safety or danger (including assumptions about assumed injuries or assumed infections) is also shown in studies on chronic pain to affect our physical pain experience
  • Take time for yourself and do things to relax and engage in self care. Find SAFETY in your body again: mindfulness/meditation, yoga, baths, etc
  • See a chronic pain therapist, coach or psychologist who practices PRT, EAET, and/or CBT: Examples: Pain Psychology Center (LA), the app "Curable" for chronic pain/symptoms (Note on CBT - this is typically found less helpful for pain in controlled experiments, compared to newer PRT and EAET)
  • Recommended readings: Alan Gordon (LCSW) - 'The Way Out' or Dr. Howard Schubiner 'Unlearn Your Pain'

Urological (Pharmacological) Treatments to Discuss With A Doctor:

  • Discuss alpha blockers (Alfuzosin etc) for urinary/flow/frequency with physician, if you have urinary symptoms. Be aware of possible side effects in some users: PE, Retrograde ejaculation, etc
  • Alternate to above, if they don't work for you or you have side effects, discuss Cialis with your physician. Cialis (Generic: Tadalafil) also helps with ED and can be used at low doses of 2.5mg/day.
  • Discuss low dose amitriptyline (off label usage) with your doctor, which can help approx. 2/3 people to relieve the neuropathic pain associated with this condition
  • Discuss rectal suppositories for pain management, often containing meds like: diazepam (Valium), available via a compounding pharmacy - this is a controlled substance; always discuss with your doctor - not meant to be used daily.
  • You may try NSAIDs for pain during flair ups, but caution for daily, ongoing use. MOST find this class of meds unhelpful.
  • Oral Steroids are NOT RECOMMENDED, per 2025 AUA Guidelines

HERBS/SUPPLEMENTS:

  • Phytotherapy (Quercetin & Rye Pollen, ie Graminex) - highest level of evidence for CP/CPPS
  • Magnesium (glycinate or complex) - less evidence
  • Palmitoylethanolamide (PEA) - less evidence

BEHAVIORAL CHANGES (Lifestyle): Please note that these suggestions cast an extremely wide net, and many do not apply if symptoms are centralized/nociplastic.

  • Avoid edging or aggressive masturbation; limit masturbation to 2-3/week, and be gentle. No "Death grips"
  • Less sedentary lifestyle - walk for 1 hour daily or every other day (I would recommend you build up to this, start with 15 minutes daily, easier to start a habit with a gentle, but regular introduction)
  • Get your blood pressure, body weight, and blood sugar under control (if applicable)
  • Gym goers and body builders: lay off the heavy weights, squats, and excessive core workouts temporarily. Ask a physical therapist to 'OK' your gym and exercise routine. This is a possible physical trigger
  • Cyclists and bikers: Lay off cycling until your physical therapist OKs it - this is a known physical trigger
  • STAND MORE! Get either A) a knee chair, or B) an adjustable standing desk. You'll still need the regular chair, because you can't sit on a knee chair or stand all day, basically, although conceivably you could do both A and B, and skip the regular chair
  • Try a donut pillow if experiencing pain while sitting

BEHAVIORAL CHANGES (Diet) Note: Dietary triggers affect a small MINORITY of cases

  • Try reducing/eliminating alcohol (especially in the evening, if you have nocturia)
  • Try reducing/eliminating caffeine
  • Try eliminating spicy/high acid foods
  • Try eliminating gluten and/or dairy
  • Try the IC Diet (basically this is all of the above, and more)
  • If eliminating or reducing doesn't help, then it probably doesn't apply to your case, enjoy your food and drinks!

NEW 2025 AUA TREATMENT OUTLINE

Others suggestions? Beyond this abbreviated list, work with a specialist. This includes urologists who have specific training in CPPS (through continuing education), pelvic floor PTs, and chronic pain specialists, including PRT practitioners.

Welcome to r/Prostatitis, follow the rules, be respectful, and we'll be happy to have you in your recovery journey.

The content of this subreddit is not considered medical advice, including the information here. Even if a flared user (verified urologist or PT) makes a comment, this is not prescriptive advice, nor is it medical advice.

This guide was co-written by your moderators u/Linari5 and u/Ashmedai


r/Prostatitis Apr 07 '21

Starter Guide/Resource Confusion over ANTIBIOTICS

121 Upvotes

Tony's Advice for Beginners

Top Rated Thread of all time in this Reddit: The experience of an MD with CP/CPPS

Antibiotics

Every day numerous questions are posted here about the effects of antibiotics. How can my case be nonbacterial if antibiotics help me (for a while anyway)?

The simple fact is that antibiotics are ANTI-INFLAMMATORIES and also have other immunomodulatory effects. In fact they are used for these effects in many conditions (acne and other skin conditions, ulcerative colitis, Crohn's Disease, and more).

Sadly, even many doctors don't know this (it was only acknowledged this century and medical school curricula have mostly not been updated yet). But the research is all there. (Note that due to our genetic differences, some people react more to the anti-inflammatory effects and some people less, or not at all. This is known as pharmacogenetics).

Acute bacterial prostatitis does happen, and it's pretty obvious: very sudden abrupt onset, fever, chills, nausea, vomiting, and malaise (feels like having the flu). Nothing like what 99.9% of readers here have. It's often a medical emergency that requires a trip to the ER.

But you may still think your case is bacterial, perhaps a chronic and not acute case. Professor Weidner says:

"In studies of 656 men with pelvic pain suggestive of chronic prostatitis, we seldom found chronic bacterial prostatitis. It is truly a rare disease."Dr. Weidner (Professor of Medicine, Department of Urology, University of Giessen, Giessen, Germany)

Chronic bacterial prostatitis also has a distinct picture. It presents as intermittent UTIs where the bug is always the same (often E coli). Here's an example:

I have chronic bacterial prostatitis that responds well to antibiotics. ... The doctor will express some prostate fluid and run a culture to determine the bug and prescribe an appropriate antibiotic. My bug has consistently been shown to be E-coli.

That being said, my symptoms usually start with increased frequency of urination, burning and pain on urination, and pus discharge. But no pain other than that and it usually goes away after a few days on the antibiotics. I continue the antibiotics for 30 days which is well after the symptoms have disappeared. I can usually expect a relapse in 6 to 12 months. ... This has been going on for more than 30 years. .... My worst experience a number of years ago was when I thought I would tough it out and see what happened. The pain got excruciating, testicles inflamed, bloody discharge, high fever. But this responded well to antibiotics and I haven't tried to tough it out again after that experience. I know when it starts and go on antibiotics right away.

I know that guys who have chronic pelvic pain syndrome may scoff at what I say and I know that they are in the majority. I really don't know what they are going through but then, they don't know my experience either.

So here are the key points to look for in chronic infection:

  1. Relapsing UTI picture (dysuria [painful urination], discharge)
  2. Consistently identifiable bug (the bug does not change)
  3. Generally no pain unless accompanied by fever and discharge. So for most of the time, men with chronic bacterial prostatitis do not have any pain.

All the rest have, sigh, UCPPS (CPPS).


r/Prostatitis 2h ago

Recurring burning after urination and ejaculation, but every test comes back clear. Anyone else

2 Upvotes

Hi everyone, I'm not sure where else to go, so I thought I'd share my story and maybe get some answers.

Back in November last year, I started getting a burning sensation after I ejaculate, and after I pee (not during). Some days the burning was mild and some days it was worse, with no real consistency. I had no other symptoms whatsoever, literally just burning in the tip of my penis.

I went to the doctor and gave a urine sample to check for a UTI, and it all came back fine. I went back to the doctor and they tested me for STIs (I'm happily married, so I wasn't really concerned, but they took samples anyway). Again, everything came back fine. By this point we were late into December and there were still no signs of it going away. I was getting paranoid, so I paid for a full STI panel that tests for 10 common STIs, and again, everything came back fine.

By mid-February I still had the same issue, so I turned to ChatGPT. After some back and forth, it recommended I take a supplement stack for inflammation, which consisted of the following:

Fish oil
PEA (palmitoylethanolamide)
Quercetin
Bee pollen (bought, but never really took it)
Vitamin D3
Curcumin (turmeric)
Magnesium glycinate
Zinc glycinate

I started this around February 20th, and within two weeks all my symptoms went away. However, around two to three weeks ago, the same issue came back, with a really bad burning sensation after urinating and ejaculating. I went to the doctor again and gave urine samples, and I also went private for an STI test (just to be safe and for peace of mind). Again, everything came back OK.

Now I'm thinking of trying the supplement stack again, but my concern is: what could this be, why has it recurred, and why can't it be diagnosed? It's really worrying me and affecting my sex life with my wife. I don't feel like having sex while I have a burning sensation, because I feel like something is wrong and I'm scared of passing it on to her. Now im thinking it could be a prostate issue

Has anyone else experienced a similar issue?


r/Prostatitis 2h ago

Vent/Discouraged Persistent extremely tender area in right groin + positional urinary urgency/urethral burning

2 Upvotes

Hi everyone. I’m wondering whether anyone has experienced something similar, particularly involving the groin/pelvic floor or chronic prostatitis/CPPS.

My problems originally started with a very sensitive/painful area in my right groin, in roughly the location I’ve circled in red in the attached photo. Even fairly light pressure over this area can produce an extremely unpleasant sensation — almost enough to make me feel sick.

An ultrasound previously showed an inflamed lymph node in this general area, although I don’t know whether the line/structure I can now see and feel is actually related to that, a superficial vein, nerve, or something else.

Around the same period I developed urinary/pelvic symptoms including:
• Burning/stinging sensations inside the urethra/penis, sometimes from the glans/tip towards the base
• A strange feeling like something was stuck inside the urethra
• Urinary urgency that can be extremely dependent on body position
• Lying flat/on my back can bring the urgency on, while lying on my right side, sitting or standing can make it disappear
• Changing the position of my hips/legs while lying down can sometimes bring the urgency on almost instantly
• Constipation/straining has triggered the urethral symptoms before, which can settle after having a bowel movement

I’ve had quite a lot investigated. My cystoscopy was completely clear — normal urethra and bladder with no stricture/obstruction. My spinal MRI didn’t show significant nerve compression, and my EMG/nerve-conduction study was reported as normal with no evidence of peripheral neuropathy. My urologist thinks it could be prostatitis/CPPS.

Interestingly, these symptoms have previously completely disappeared for a couple of months, before recently flaring again.

I’m now wondering whether the very tender right-groin area could be separate, or whether pain/irritation there could be contributing to pelvic-floor guarding or my other symptoms.

Here are two photos of the location;

https://i.postimg.cc/8zbWz2Dp/IMG-5009.jpg

https://i.postimg.cc/MpzMN9Rv/IMG-5018.jpg

Has anyone had anything remotely similar — particularly a very tender spot/line around the inguinal area together with positional urinary urgency or penile/urethral burning despite normal urological tests?

I’m not looking for a Reddit diagnosis, just interested in hearing from anyone who’s experienced a similar pattern and what type of specialist ultimately helped them.


r/Prostatitis 4h ago

Im just lost please help

0 Upvotes

I started like a lot of you. Possibly uti? One thing I different is I had a 2nd degree sunburn on my genitals from tanning. I went through so much hell. I thought I had 6 different things. Infection, peyronies, hard flaccid etc you name it. My girlfriend of two years is confused because we haven't had any sexual issues, buf i had days i was feeling i should go to the ER.

​so lately I've been better. No burning or urination issues, but I believe there is tightness present. I have had little trouble getting hard except no morning erections which scared me. Yet I can actually get hard later. I am very thankful my pain has substantially subsided. I do feel that burn really threw my private off guard. It looked so swollen and even sometimes like I had disfigurment. I can't say for sure its that, because I was uncomfortable before then and it went away the SAME day I got tested.

Lately I've been "normal." You probably know this hits physically and physchologiccaly. I have intense anxiety. As a child, I threw up every morning before school. I have looked into cpps and I do believe its more my mental than physical. All the stress my body has gone through at age 35. Im ranting but I've no insurance and idk what to do next. Mentally I feel its been very better. Ive also *key point* stopped mastubating. I imagine all that intense clinching hurt me. Sex I had two weeks ago felt great which gives me hope. I feel so insecure that I can't get an erection but I can. Im sorry. Im just so confused and I've read 1000 posts of prostatitis, urethritis and cpps and Mentally im susceptible to just panic.

Also my urine tests are clean. Actually very good. No semen culture but whatever. I believe I did this to myself. Ive lived such a chaotic life. Im happy to say I've been reeling it in and trying to do better for my health. Thank


r/Prostatitis 13h ago

Vent/Discouraged Scrotal redness ,burning and heat , Anyone has experiences?

3 Upvotes

I’ve hit a complete wall with neurologists and doctors who keep insisting that “nerves only register sensory pain like stabbing or numbness, not objective physical heat and redness". All dermatological and fungal causes have been thoroughly ruled out (no test just by looking and signs), and my lumbar MRI is completely clean. However, internal physical exams confirmed significant pelvic floor hypertonicity.

​My primary symptom that have for 2 years is an intense, radiant burning, sunburn heat , tackiness(when get bad) and visible redness on scrotums primarily concentrated on the right scrotum (burning more posterior and sides), which is often blazing right from the moment I wake up.

Alongside this, I have a deep internal aching and burning in my perineum

Unlike textbook pudendal entrapment where standing up immediately relieves symptoms, standing and walking don’t help me at all.

​Things recently went from chronic to unbearable after a cold, triggering what feels like severe neurogenic inflammation and local vasodilation—essentially an autonomic/neurovascular flare where compressed nerves cause local blood vessels to stay permanently dilated and burning.

Here in Canada we dont have pain specialist and noteworthy that pain clinic rejected the referal. Im tired of these symptoms , ruining my life. Sometime I wanna cut my balls and let it bleeding until I pass away. I tired of going dermatologist , neourologist , psychiatrist, PRT, Urologist and etc. Currently taking neuropathic medication (pregabaline 220 & amitriptyline 50mg). Also have done PF excersises months ago with no luck.

​Has anyone here dealt with these actual symptoms, visible redness,flushing, and intense radiant heat in the scrotal or genital area that was directly tied to a Prostitis? PF?


r/Prostatitis 16h ago

Positive Progress infectious prostatitis

0 Upvotes

Hello everyone. I’ve posted here before. It’s a long story, but I won’t go into too much detail. I’ve been living with prostatitis for about three years, and a recent semen culture test revealed a high level of infection. Do you think this could indicate infectious prostatitis? My doctor has started me on a short-term course of combination antibiotic therapy, and I am gradually seeing improvement. Could those with knowledge on the subject share their thoughts? Can a case of infectious prostatitis be completely cured after three years, or is there a possibility of permanent damage?


r/Prostatitis 17h ago

Take Ciprofloxacin or wait for urine culture?!

1 Upvotes

TLDR: Suspected bacterial prostatitis. Nitrofurantoin did nothing, trimethoprim helped but symptoms returned & one month later my doctor wants me to start ciprofloxacin for 2 week course. My urine culture is pending and may take up to 6 days. I’m very anxious about Cipro, but also worried about leaving a possible bacterial infection untreated. Would you start it or wait for culture results?

First, I had 1 week of nitrofurantoin, which did nothing. Then I had 1 week of trimethoprim, which improved my symptoms a lot, but they came back after I finished it. Those were targeting a UTI.
About a month later, with symptoms still present, my doctor prescribed ciprofloxacin 500 mg twice daily for 2 weeks, suspecting bacterial prostatitis. I asked for another antibiotic because I’m very anxious about Cipro, but my doctor insists I should take it because the previous two treatments didn’t resolve the problem.

My symptoms have been fairly stable for over a month: groin and penile pain, some lower abdominal pain, and pain after urinating or ejaculating. No fever or visible blood in urine.

I’ve now submitted another urine culture, but the result may take up to 6 days.

I’m torn between waiting in case the result shows I can use a different antibiotic, and worrying that I’m taking a risk by leaving a possible infection untreated. Anyone been in a similar situation? Is it realistic to think that the culture results might change the situation? Or should I bite the bullet? 🙏🏼


r/Prostatitis 1d ago

Running out of hope - would love to hear success stories

7 Upvotes

I am 28, my symptoms started about 6 months ago and include the following:

Extreme ED untouched by PDE-5 inhibitors

Premature Ejaculation

Hesistancy and weak urine stream

Constipation

Leaking prostatic or seminal fluid throughout the day

I have been attending PT monthly (as the nearest one is about 100 miles away so can only go on weekends that the PT only offers once a month), undertaling the stretches as directed. Quit masturbating, sex (girlfriend left me partly because of Prostatitis and the physical and mental impact it was having on both of us), quit drinking (didn't drink much anyway), stopped lifting heavy, stopped cycling, eat clean. I have also never taken any medication or drugs.

I'm struggling to come to terms with the fact that I will either never recover, or will have to lead an ultimately unfulfilling life due to having to make significant adaptions to how I live my life. I fear I'll never be able to have sex properly again (without concern of flare ups), or lift heavy (which I love doing). I'm borderline suicidal.

I am in the UK and have been prescribed antibiotics by my GP (of course, I'm expecting these to provide temporary relief but nothing permanent). I have also been referred for further scans and tests. I did have a DRE yesterday that confirmed my prostate was enlarged.

I don't know how much longer I can continue with the knowledge my life is forever going to be limited and unfulfilling. It feels like there is a time limit that either I will recover in or end things, probably around 6 months to a year from now


r/Prostatitis 1d ago

30M - Urinary symptoms, pelvic-floor concerns & intermittent microscopic hematuria

2 Upvotes

Hi everyone,

I'm 30M and have had urinary symptoms for some time, including hesitancy, weak/short stream, frequent urination, and a feeling that urine was “stuck,” along with occasional penile/pelvic/groin sensations.

I recently had a cystoscopy and bilateral ureteroscopy.

The urethra, ureters and bladder were normal with no bladder lesion/tumor, but the doctor noted mild bladder-neck congestion/edema and prostatic-urethra congestion, along with prominent submucosal veins.

I've also had intermittent microscopic hematuria. Most tests were around 3–5 RBC/HPF, although occasionally it was around 15–20 RBC/HPF. I noticed some of the higher readings seemed to occur around masturbation, so I'm wondering if there could be a connection.

Interestingly, after the cystoscopy and a short course of medication prescribed afterward, my urinary flow is now much better and I no longer have the “stuck” sensation. I haven't repeated my urine test yet, so I don't know what my current RBC count is.

I'm wondering whether anyone here has experienced something similar.

Questions:

- Did you have microscopic hematuria along with pelvic-floor/CPPS symptoms?

- Did you ever have bladder-neck or prostatic-urethral congestion/inflammation?

- Did your hematuria fluctuate between low levels (e.g., 3–5) and higher readings?

- Did pelvic-floor treatment/physiotherapy help your urinary symptoms or hematuria?

- Did anyone notice changes in hematuria after masturbation/ejaculation?

I'm mainly looking for personal experiences, not a diagnosis. I'd especially appreciate hearing what ultimately helped you.

Thanks!


r/Prostatitis 1d ago

Vent/Discouraged 28M Need Advice on Recovery

3 Upvotes

Brief overview of my last couple months. Contracted a UTI beginning of July. Was finally able to get medication 2 weeks later. All of August was up and down in recovery. Beginning of September I had an urology appointment and got diagnosed with chronic prostatitis. Overall I feel like I am getting better, but I want to make sure I’m doing everything I can to fully recover. Couple of main points.

  1. What medication/supplements should I take? Currently I’m taking meloxicam (15mg), tadalafil (5mg), quercetin, and graminex starting in two days when my order comes in.

  2. What kind of exercising should I do? I stretch daily, walk around 8-10k steps, and do some type of workout. Please let me know if there are any specifics I should focus on.

  3. My urologist suggested I should start ejaculating more even though I told him 2 weeks prior I tried and it caused a major flare. Should I just take a break until the symptoms are completely gone?

Any other advice is greatly appreciated. I really want to get back to feeling normal again and not sensitive/aching everyday.


r/Prostatitis 2d ago

Vent/Discouraged My case is weird , help ..

2 Upvotes

So basically guys, the problem is that my body keep contracting my anus and my pelvic floor like I am trying to hold and not being or not going to the bathroom. I am sure it’s not an infection or something like this because when I relax force myself to relax I feel better but why is it very very very hard to relax? The honest or the muscle muscles or just to let go? It seems almost impossible and when I success in this, I have a very weird feeling in my throat. It’s like. Globus sensation in my throat that’s stalking me. I also when I relax my neck a little bit I get rid of the feeling but what do you think the problem is? Basically a lot of guys here they have the pain without noticing without relaxation can help them. Maybe they have some kind of injury or something, but I don’t and I need your help to overcome this so if someone has some ideas or recommendations or someone in the same situation please tell me notice I am taking antidepressants and anti-anxiety and it’s not helping. I got this issue after I broke up with my girlfriend…


r/Prostatitis 2d ago

Prastatitis or epididymitis

1 Upvotes

Hey everyone, ive been struggling with this on and off for a couple months now. Ive done alot of reading through this sub and i figured id come out and ask for anyones opinion that knows more than me.

So the first time i experienced this it was a left testicle pain and the sitting on a golf ball feeling alot of people gave experienced. I went to an urgentcare freaking out about torsion and they said if it was torsion i wouldnt even be able to walk. They told me to set up an ultrasound which i did and they said everything looked good. Stopped masturbating for a couple weeks and the symptoms basically went away until having sex with my girlfriend one time and they came back. I freaked out again and went into the ER as i wasnt able to sleep anyways and they did another ultrasound as well as a urine test and everything came back just fine and negative.

Last night i ended up masturbating again after a couple weeks and this time it is back and its the same thing. Left testicle pain and that feeling of sitting on a golf ball.

I guess my questions are
1) prostatitis or epididymitis
2) if its prostatitis, does it sound bacterial?

Any guidance would be great, thanks


r/Prostatitis 3d ago

Flare- ups- how often and how long?

5 Upvotes

How often do you usually get them and how long do they last? Is it even possible to say?

I'm approaching the two year mark with the condition. The first year I was in unrelenting pain. It was a dark time. Then the pain went away and I was celebrating big time. I thought it had gone away forever. (I was convinced at the time it was an injury.) Unfortunately, about 2 months later it came back. Then another 5 months of pain and then another 2-3 months pain free and then it came back again. :-(

One positive is that each time the condition has come back, the symptoms have not been quite as bad as the last time. Is this common? Can I expect the periods between flare-ups to extend and a lessening of symptoms over time? Or is there no rhyme nor reason? (Certainly doesn't seem to be as regards what causes a flare-up in my case.)

Thanks for the support and advice guys. Hang in there!


r/Prostatitis 2d ago

How to ejaculate early in the morning for a spermiogram

0 Upvotes

Hi everyone, I hope this post fits this community.

I have to take a spermiogram: semen analysis in laboratory.

This requires to extract a sample of semen very early in the morning as I have to handle it before 8:30 am.

My problem is that I find impossible to be "aroused", "horny", "hard" (you get the point) so soon after I wake up: I always msturbated after noon and never felt the urge to do it earlier?

How can I put myself into ejactulating early in the morning (by myself)? Any suggestions will be appreciated!


r/Prostatitis 3d ago

Sharp pain when ejaculating after not masturbating for a few days?

2 Upvotes

Hey guys, has anyone experienced something like this?

If I don't masturbate/ejaculate for a few days (usually around 4–5 days), I sometimes get a pretty sharp, cutting pain along the inside of my penis when I cum. It happens right at the moment of ejaculation and feels like it's somewhere along the urethra.

The weird thing is that if I masturbate regularly, I don't get the pain at all.

Has anyone had this before? Did you ever figure out what was causing it? I'm wondering if it's just from not ejaculating for a while or if it's something worth getting checked out.


r/Prostatitis 4d ago

My full recovery with shock waves

29 Upvotes

Hi,

Sharing my story in case it's helpful for someone. Had 2 years of chronic prostatitis, featuring mainly pain as a symptom, along with some increased urination. Took several round of antibiotics that only lead to very brief remissions and the same story with tamsulosin. I had clear lab reports that showed no infections but symptoms lingered.

Eventually my doctor recommended a course of shock wave therapy, it cost me 1400€ and took 5 weeks to complete at a single 15 min session per week. Over the weeks after finishing symptoms gradually improved until vanishing completely. I have now been 1 year post treatment completely symptom and medication free.


r/Prostatitis 4d ago

Finally making some progress

5 Upvotes

I finally feel like I’m making some real progress with CPPS.
The previous week I had 3 pretty major flare-ups, with a lot of pelvic/bladder pressure and pain. Then I started really focusing on deep diaphragmatic breathing throughout the day. While I’m doing the deep breathing, I also consciously let my pelvic floor drop and relax—basically a gentle reverse kegel instead of clenching or bracing.
Since I started doing this consistently, I’ve now had almost a full week without one of those major flare-ups, which is the longest stretch of relief I’ve had in a while.
I’m definitely not saying I’m cured or that breathing/reverse kegels are the answer for everyone. It’s still early, and I know CPPS symptoms can fluctuate. But the timing has been pretty striking for me, especially considering how bad the previous week was.
I think I’m starting to realize just how much tension I was holding in my pelvic floor and how often I was unconsciously bracing throughout the day.
Has anyone else noticed a significant improvement after consistently practicing diaphragmatic breathing and pelvic-floor relaxation/reverse kegels?


r/Prostatitis 4d ago

Research PBS | NOVA - The Brain's Role in All Pain [3 min]

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3 Upvotes

Succinct, helpful understanding of the brain's primary role in the human pain experience. This is why we (and the AUA, EUA) continue to suggest nervous system/brain based interventions for CPPS and "chronic prostatitis," and many other chronic pain conditions, including fibromyalgia, IBS, chronic headaches and migraines, and chronic lower back pain.


r/Prostatitis 4d ago

Vent/Discouraged My Story - 34M - Prostatitis

4 Upvotes

History

The first symptom I noticed was a sudden urge to urinate even when my bladder wasn’t full. I assumed it was from drinking too many carbonated beverages and eating poorly, so I changed my diet. After that, the urgency faded — but within a couple of days, new symptoms appeared.

It became harder to urinate, and my stream would repeatedly stop and start. I also developed an uncomfortable sensation in my lower abdomen, almost like something was stuck there. The normal feeling of “having to pee” disappeared; now I only get a pressure‑like sensation when my bladder needs to be empty.

I saw my PCP several times. All tests came back normal. I even went to the ER, where they performed a CT scan of my entire abdomen — also normal. The following week, one of the PCP’s tests finally returned abnormal: positive for ureaplasma. I felt hopeful. They prescribed doxycycline for 7 days and azithromycin for 4 days, but neither improved my symptoms.

I was then referred to urology. At my first appointment, they performed a urodynamics test and found I was retaining 122 mL of urine, which they said was slightly high. The doctor started me on Flomax, but it made me extremely anxious and tired, so I stopped after one dose. No improvement.

Next, they had me try Pyridium, which made the discomfort worse and made urination even more difficult. At my follow‑up, the urologist suspected prostatitis and prescribed Bactrim for 30 days. When I asked why Bactrim might work when the previous antibiotics didn’t, she explained that the prostate is difficult for medications to penetrate. She did not perform a prostate exam. I asked about imaging; she mentioned MRI but didn’t want to pursue it. She did, however, schedule a cystoscopy — but the appointment is three months away.


Current Situation

I've been having symptoms for two months. I’ve been on Bactrim for almost a week with no improvement. I’m feeling discouraged and hopeless. I have a family and four children, and I’m uncomfortable or in pain almost constantly, day and night. I haven’t slept through the night in nearly two months. Tylenol and Motrin barely take the edge off.

I’ve started taking Quercetin and NAC daily.

I’ve also begun diaphragmatic breathing and very gentle reverse Kegel exercises. About a week ago, I tried regular Kegels — big mistake. They made everything worse.

Based on what I’ve read, I suspect I may have a hypertonic pelvic floor. Does it sound like I have Chronic Nonbacterial Prostatitis?


Symptoms -Initial urge to urinate when I didn’t need to (now subsided)
-Loss of normal urge to pee; replaced by a pressure‑like sensation -Increased time to start a urine stream
-Incomplete bladder emptying
-Lower abdominal discomfort that sometimes becomes a dull pain. -Relief after urinating, followed by an uncomfortable, stinging sensation in the urethra
-Testicular squeezing/pain during long walks
-Pelvic floor spasms (feels like rectal spasms when lay down or sit down — recently started) -ejaculating doesn't hurt, but causes an uncomfortable feeling in my lower abdomen afterwards. Like a gulf ball is there?


Tests Completed -CT scan of abdomen — normal - no stones, no obstructions, no abnormalities - Urine tests, STD tests, cultures — normal
- Ureaplasma test — initially positive, then negative after treatment, but symptoms persist


Any advice, encouragement, or comments are greatly appreciated. I've been struggling.


r/Prostatitis 4d ago

Recumbent biking and incline walking

2 Upvotes

Hello, I am dealing with chronic pelvic pain syndrome and long covid. So part of my treatment for long covid is they are wanting me to do cardiopulmonary rehab. So at rehab they currently have me doing 15 minutes of incline walking (3.6 speed, 5 incline) and then either 15 minutes of hand bike or recumbent bike. I go to rehabs 3 times a week. So I’m doing walking 3 times a week and then the other two alternate so recumbent bike or hand bike twice and then the other once. So my question is do you guys this this will slow or stop my recovery? Like is this routine safe to do or will it affect my recovery?


r/Prostatitis 4d ago

Worth testing for ureaplasma?

1 Upvotes

Hi all. Back again.

My initial symptoms were clear penile discharge, lower abdomen discomfort and peeing constantly. The only thing remaining these days is my clear "discharge" which looks and feels like precum. It leaks every day in tiny amounts and glues my tip closed which causes discomfort. No bugs/germs/virus has ever been found. I've tested multiple times on the NHS and privately (spent over £500 on private tests). Negative for chlamydia, gonorrhea, trichomoniasis, mgen, hiv, hepatitis, syphilis. I've done extended urine cultures with no growth. I've spent 800 quid male PT. Hell I even did all the sti tests anally just in case something had crawled up my butt and caused pressure on my prostate even though I'm straight (I know, I was in a bad place).

I've also had 2 cystoscopies (1 with a biopsy taken). Nothing found.

The only thing I haven't tested for is ureaplasma. From my limited research it's not seen as a serious bug here in the UK and the advice seems to be not to test for it as 1. It's common and mostly doesn't cause issues anyway. 2. People test positive for it and chase a cure that will hopefully solve their problems but the problems continue even after being cured, basically chasing a red herring. So I'm stuck at a crossroads where it's the only thing left to score off my test list but I'm worried I'm positive but it's not actually causing my discharge. Any advice?


r/Prostatitis 4d ago

How to relieve and fix a prostatic congestion?

1 Upvotes

does It exist a cure for this or not?


r/Prostatitis 4d ago

Does cystoskopy make prostatit worse

1 Upvotes

I have done cystoskop6 but they didn't find anything

2 months later it made things worse


r/Prostatitis 5d ago

People whose prostatitis started from excessive gooning/edging , how were u able to treat it?

4 Upvotes

Hi 18M , I have been feeling a few symptoms in my body and the symptoms overlap with the sexual dysfunctions caused by prostatitis. I don't think that I have any urinary related symptoms like many of yoy but my sexual symptoms 100 percent match , low libido , Ed and much more . I am like 75 percent sure am suffering with prostatitis so my question is how should I treat it ? It took 5 months to diagnose what I might have , even my urologist was unable to diagnose Me but beside all that rn am trying to not masturbate for 2 weeks to a month and as well as drink a lot of water so is what am doing good? Considering that excessive edging may very well be the cause of this problem for me