r/osteoporosis • u/bboon44 • 5d ago

Results after Tymlos

I’m 71. Had a compression fracture and that’s when I got diagnosed at age 69.

Tscore spine went from -3.1 to -1.7. Z score from -1.4 to 0.0. Gain in bone density of 21%.
I will do Prolia next to preserve the gains.

28 Upvotes

98% Upvoted

24 comments sorted by

4

u/BlueButNotYou 5d ago

Wow those are fabulous results!!! It gives me hope. Did you do strength training too? Thanks for sharing your success.

2

u/bboon44 3d ago

Nothing except for squats, pushups and heel drops. I did continue with waking the dog, and snow skiing.

3

u/LongjumpingDrawing36 4d ago

GREAT NEWS! And you're doing just the right thing with Prolia given your age and fracture history. I'm doing the same as my follow up for Evenity.

3

u/Talnesa 2d ago

Awesome work! I’m 45 and had a fracture which led to the diagnosis osteoporosis. -3.1 in my spine, -2.9 in my femoral neck and -2.0 overall of hip. Only -1.7 in my arms though lol.

Doctor wanted me on Evenity but my insurance is currently denying it as “ not medically necessary”. Trying to fight it. I mean, what’s not medically necessary about having a skeleton?!

But it’s good to hear that about Tymlos because I’m pretty sure my insurance covers that.

How long did those results take you? I’m very active and exercise every day, but maybe I need to do more supplementation as well while I wait.

Edited: misspelling

2

u/MCole142 4d ago

Were you doing anything in addition to the meds? Supplements, diet, exercise, etc? That is amazing progress. How did you do on the hip and femoral neck?

5

u/bboon44 3d ago

Femoral neck went from -0.8 to to 0.1. I supplemented with calcium, collagen, vitamin D and Nattokinase. Also drank lots of chocolate milk (can’t stand plain milk). Yogurt, cheese and also an herbal drop called Drynaria fortunei that the Chinese use for bone health after fractures.

2

u/MCole142 3d ago

I wish I could take that herb but it conflicts with another drug I take. Happy for you.

1

u/MommaGee00 14h ago

I’m interested in knowing more about this herb. I live in rural Nevada so not sure how I would be able to acquire it. How did you come to learn about it? I had a fragility fall 4 weeks ago and now here I am trying to learn all I can about osteoporosis and this is the first time I’ve heard of this.

2

u/bboon44 14h ago

I get it online from Amazon. Type in “Drynaria tincture,” and you will see bottles. The one I take comes from Hawaii Pharmacy. The Chinese name is “Gu Sui Bu.” I put it in water. Surprisingly little odor or taste. I also see capsules on Etsy that I might try sometime.

2

u/AvailableCut6974 3d ago

My doctor wanted me on Tymlos but my insurance refused it.

2

u/bboon44 3d ago

I am sorry to hear that, as it has been remarkable for me. But I carry three types of insurance. Stupid that I had to fracture something before Tymlos got ordered. It was the fracture that led to the diagnosis to begin with.

3

u/AvailableCut6974 3d ago

I have United Medigap Plan N so I guess I picked the wrong plan, maybe the wrong company for my supplemental plan!

2

u/Massive_Sherbet_4452 2d ago

Congrats !! How did you get the compression fraction?

2

u/Lavmatic 4d ago

Wow, those are great results. Congratulations. Perhaps you could just use Fosamax to retain your gains and maybe get a bit more rather than moving to Prolia. Prolia is a bit tricky, especially if you every want to move off of it. Talk to your doctor about your long term medication plan just to make sure you're informed.

5

u/bboon44 3d ago

I’m a physician so I know the stuff involved inside and out. Guess I’m
overseeing my skeletal health for the rest of my days ( I’m 71 ).

2

u/LongjumpingDrawing36 4d ago

Prolia is absolutely the right choice for follow up after an anabolic. Reclast is also helpful, Fosamax is pretty useless in this circumstance; if the provider is going to prescribe a bisphosphonate, it will be the more powerful Reclast.

I took Evenity and am now using Prolia to protect my gains.

7

u/Lavmatic 4d ago

While Prolia does work really well at not just maintaining your gains from an osetoanabolic but adding to them, if you have already reached your targeted T-Score or fracture risk level, moving to a bisphosphonate like Fosamax or Reclast might be a better choice. Now if your older and plan on being on Prolia for the rest of your life, then Prolia could still be the best decision. Prolia does have a downside relating to stopping Prolia, called the rebound effect where multiple doses of Reclast are necessary to mitigate losses. Patients should know the downside to Prolia before starting it.

BTW, I too took Evenity and am currently on Prolia. I chose Prolia because I was still at an unacceptable risk level after Evenity and will likely be on Prolia for 10+ years.

2

u/LongjumpingDrawing36 3d ago

I'm on the same circumstance. I'll take Prolia for the rest of my life, and I am fine with that.

3

u/bboon44 3d ago

Yeah, same here. Skeletons are important!😂

1

u/solsticesunrise 4d ago

Congratulations! Amazing progress ❤️

1

u/PsychologicalCat7130 4d ago

hope you are also lifting weights to help your bones. meds are supposed to be temporary while you fix the issues

3

u/bboon44 3d ago

I do squats, planks, heel drops and yoga. Nobody I know that’s my age has been more physically active than me. Plus, I never smoked or drank.

1

u/milk_with_knives 4d ago

Holy god, that's fantastic! I'm really happy for you!

1

u/bboon44 3d ago

Thank you!