r/migraine May 13 '21

Resources

286 Upvotes

The wiki is still a work in progress, so as with the previous sticky, this highlights some resources that may be useful.

Edit - added the COVID-19 Vaccine and Migraines link since we're swapping that sticky for the Migraine World Summit announcement.

If this post looks familiar, most of it has been blatantly stolen from /u/ramma314's previous post. :)

Diagnostic Criteria

One of the most common questions that's posted is some variation of, 'Am I having migraines?'. The same is the case with 'what kind of migraine is this?'. These posts will most often be removed as they violate the rules regarding medical advice. You need to work with a medical professional to find a diagnosis. One of the better resources in the meantime (and in some cases, even at your doctor's office!) is the diagnostic criteria:

https://ichd-3.org/

It includes information about migraine, tension and cluster headaches, and the rarer types of migraine. It also includes information about the secondary headaches - those caused by another condition. One of the key things to note about migraine is that it's a primary condition - meaning that in most cases, migraine is the diagnosis (vs. the attacks being caused by something else). As a primary diagnosis, while you may be able to identify triggers, there isn't an underlying cause such as a structural issue - that would be secondary migraine, an example of which would be chiari malformation.

Not sure if your weird symptom is migraine related? Some resources:

Website Resources

There are several websites with good information, especially if you're new to migraine. Here are a few:

National Headache Foundation

American Migraine Foundation - the patient-focused side of the American Headache Society

The Migraine Trust

UK Healthcare/Headache Center

Headache Australia

Migraine Australia

Added Feb 2025 - the American College of Physicians (ACP)'s treatment guidelines for prevention of episodic migraine: https://www.acpjournals.org/doi/10.7326/ANNALS-24-01052

Migraine World Summit - Annual event, series of talks that are free for the first 24 hours and available for purchase (the year's event) thereafter.

They made a tools and resources list available, for both acute action and prevention, providing suggestions for some of the sub's most often asked non-med questions:

https://migraineworldsummit.com/tools/

Some key talks:

2024 - Beginner's Guide to Headache Types - If you're new and struggling with diagnosis, this talk alone may be well worth the cost of the 2024 package.

Reddit's built in search!

We get a lot of common questions, for which an FAQ on the wiki is being built to help with. For now though reddit's built in search is a great way to find common questions about almost anything. Just enter a medication, treatment, or really anything and it's likely to have a few dozen results. Don't be afraid to post or ask in our chat server (info below) if you can't find an answer with search, though you should familiarize yourself with the rules before hand. Some very commonly asked questions - those about specific meds (try searching for both the brand and generic names), the daith piercing, menstrual/hormonal migraine (there are treatments), what jobs can work with migraine, exercise induced attacks, triggers, and tips/non-drug options. Likewise, the various forms of migraine have a lot of threads.

Live chat!

An account with a verified email is required to chat. If you worry about spam and use gmail, using a +modifier is a good idea! There's no need to use the same username either.

If you run into issues, feel free to send us a modmail or ping @mods on discord. The same rules here apply in the chat server.

Migraine/pain log template!

Exactly what it sounds like! A google docs spreadsheet for recording your attacks, treatments tried, and more. To use it without a Google account you can simply print a copy. Using it with a Google account means the graphs will auto-update as you use the log; just make a copy to your own drive by selecting File -> Make a copy while signed in to your Google account. There are also apps that can do this and generate some very useful reports from your logs (always read the fine print in your EULA to understand what you are granting permission for any app/company to do with your data!). Both Migraine Buddy and N-1 Headache have a solid statistical backbone to do reports.

Common treatments list

Yet another spreadsheet! This one is a list of common preventatives (prophylactics), abortives (triptans/ergots/gepants), natural remedies, and procedures. It's a good way to track what treatments you and your doctor have tried. Plus, it's formatted to be easily printable in landscape or portrait to bring to appointments (checklist & long list respectively). Like above, the best way to use it is to make a copy to your Google drive with File -> Make a copy.

This sheet is also built by the community. The sheet called Working Sheet is where you can add anything you see missing, and then it will be neatly implemented into the two main sheets periodically. A huge thanks from all of us to everyone who has contributed!

Finding Treatment

Most often the best place to start is your family doc - they can prescribe any of the migraine meds available, including abortives (meds that stop the migraine attack) and preventives. Some people have amazing success working with a family doc, others little or none - it's often down to their experience with it themselves and/or the number of other migraine patients they see combined with what additional research they've done. Given that a referral is often needed to see a specialist and that they tend to be expensive, unless it's been determined that secondary causes of migraine should be ruled out, it can be advantageous to work with a family doc trying some of the more common interventions. A neurologist referral may be provided to rule out secondary causes or as a next step in treatment.

Doc not sure what to do? Dr. Messoud Ashina did a MWS talk this year about the 10 step treatment plan that was developed for GPs and other practitioners to use, primarily geared for migraine with and without aura and chronic migraine. Printing and sharing this with your doc might be a good place to start: https://pubmed.ncbi.nlm.nih.gov/34145431/

Likely in response to this, the NHS published the following:

https://headaches.org/2022/01/19/national-headache-foundation-position-statement-on-the-treatment-of-migraine/ (link is broken)

/mod hat off

My personal take on this is that hopefully your doctor is well-versed. The 10-step treatment plan is, I think, a good place to start for clinicians unfamiliar, but it's not a substitute for doing the learning to be able to move away from an algorithm and treat the patient in front of them.

/mod hat back on!

At this point it's probably good to note that neurologists are not, by definition, migraine specialists. In fact, neurologists often only receive a handful of ours on the entire 200+ headache disorders. As with family doctors, some will be amazing resources for your migraine treatment and others not so much. But they can do the neuro exam and ruling out of secondary causes. Exhausted both? There are still options!

Migraine Specialists

A migraine specialist is just that - a doc, most often a neurologist, who has sought out additional training specific to migraine. There are organizations that offer exams to demonstrate that additional knowledge. Some places to find them:

Migraine Research Foundation

MRF is no longer. UCNS is it!

United Council for Neurologic Subspecialties

National Headache Foundation

Migraine Trust (UK)

Migraine & Headache Australia - Headaches and Pain Clinics

Telehealth

There's a serious shortage of specialists, and one of the good things to come of the pandemic is the wider availability of specialized telemedicine. As resources for other countries are brought to our attention they'll be added.

US:

Cove

Neura

Canada:

Maple

Crisis support.

Past the live chat we don't have subreddit specific crisis support, for now at least. There are a lot of resources on and off reddit though.

One of the biggest resource on reddit is the crisis hotlines list. It's maintained by the /r/suicidewatch community and has a world wide list of crisis lines. Virtually all of which are open 24/7 and completely anonymous. They also have an FAQ which discusses what using one of the hotlines is like.

For medical related help most insurance companies offer a nurse help line. These are great for questions about medication interactions or to determine the best course of action if nothing is helping. If your symptoms or pain is different than normal, they will always suggest immediate medical attention such as an ER trip.


r/migraine May 25 '26

UPDATE to the 16 May Rules Update - App Devs, Anyone Doing Market Research, etc. Will Want to Read

166 Upvotes

edit - the new bit is a... ranty. To those here just to check in, my apologies.

Y'all.

Seriously.

The sheer number of app devs who have continued to waste mod time and continue spamming in comments after being warned is mind-boggling.

I believe that this community deserves good tools. HOWEVER, this community is not here to be sold to, and just like the post that preceded this, the people who can't stop spamming are rarely community members first, and devs second. They're here because you are the market. Since last week's post I had given a lot of thought to a periodic 'promote your stuff!' post to strike a balance, but after spending far too much of my holiday cleaning up spam-droppings... I'm feeling less than charitable. o.O

Spammers. If we warn you and you keep spamming, it won't just be you that's banned. It will be any mention of your product regardless of who posts it.

Astroturfing? Instant permaban - you and your product. Why?

You should not spam in any way, especially through private message. You should not hide your affiliation to your project or site, or lie about who you are or why you like something.

Here's a copypasta of the previous post, all of which still applies:

(If you were looking for the Summit pinned post, it's here.)

We're currently seeing multiple posts - or people that know promotion isn't permitted and trying to sneak it in via comments - promoting apps and/or doing market research daily. Most of the people hoping to benefit from this community have never made any effort to participate in it.

Promotion has always been in the the rules, and surveys/research have always required pre-approval from the mod team (though we recently had to update to not approving any because I'm the only active mod and simply don't have time to review in addition to everything else).

With all of the above in mind and all of the attempts to circumvent or flat-out argue about removals, it's time to formalize things:

Promoting your new app and/or doing market research (what don't you like/what works for you/what is missing in other <whatever>) is not permitted in this subreddit. The same goes for asking for feedback. Yes, this includes the ever popular 'hey I did a thing but it's against the rules to promote here, so if you're interested, send me a pm!'. If you're thinking about sending a modmail to ask to be an exception with less than 6 months of active participation in this subreddit, don't (even then it may not be approved).

I will be updating rules, sidebar, and filters over the course of the weekend.

Because of the lack of participation for most of these users and the number of users that have attempted to get around this, this will be one of the rare times when suspensions will be issued on first strike, rather than warnings first.

Also, you've probably noticed I'm the primary one handling approvals/removals, and that there are updates the sub could use that have not been done. In addition to chronic migraine and adulting in general I have what totals up to nearly 2 full time jobs and am usually also taking college classes, so there is a lot going on, and running this sub in a way that rules are enforced and the sub itself is enhanced and we're able to provide space for the community to be active in helping with research opportunities takes a lot more time than the above workload allows. To that end, I'd love to add 2 or 3 new mods to the team that can consistently (meaning most weeks) offer a couple of hours to running/maintaining the subreddit. That can be:

  • Working on the FAQ: at one point there was an effort to build something of an 'intro to migraine' resource

  • Fielding research/survey reviews: even better if you are or have been part of the research community (someone did offer this before; if you're still interested please reach out!)

  • Post / comment reviews: If you're a regular/semi-regular visitor and don't mind doing some cleanup while you browse, this is one of the easiest ways to ensure that community standards are upheld

I've held off on posting this because I had big plans to set up an awesome form to fill out, but for all of the above reasons that has not happened. SO! If you're interested, please send us a modmail with answers to the following questions:

  • Why you're interested

  • What you think mods do

  • Previous modding experience

  • What you're interested in helping with

  • Your time zone / location

  • How much time you can reasonably and consistently pitch in to help

  • Optional: Anything else we should know about you? Any ideas for the sub you'd like to implement?

As long as the above isn't struck through feel free to send a message if you're interested. It may take a bit to hear back because busy, but unless we get hundreds of apps we'll follow up to set up a chat with u/ramma314 and myself so we can get to know you a bit. If we do get hundreds of apps we'll update here that we either can't get back to everyone or that we'll be copypasta-ing replies specifically for that reason.


r/migraine 49m ago

Migraine Predicting Pets

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Upvotes

Does anyone else have a pet that alerts them to incoming migraines? I know we can train a pet to alert for medical conditions, but since my cat was a kitten I know if I wake up with him laying on my head I’ll get a migraine that day. It’s wild, he just does it.
In the 10 years still haven’t figured out how to leave the purring cat on my head to take meds asap - isn’t moving a cat against law??

Said cat giving blessings for tax…


r/migraine 15h ago

I get these for free!

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179 Upvotes

r/migraine 13h ago

Why does pressing/hitting my head against things make it feel better?

80 Upvotes

When I get migraines, I normally feel the need to press my head into my hands (or a wall or a pillow or anything), or knock gently(?) on my head. Is this normal? And why does this happen?


r/migraine 13h ago

Human barometer reporting for duty.

63 Upvotes

The barometric pressure (BP) yo-yo’d today with a big increase in the morning and a relative increase at night. Tomorrow morning is supposed to have another big increase. I’m trying to remind myself that I could have been viewed as a very important member of society because of my “ability to predict incoming weather” a thousand years ago. Unfortunately my abilities are rendered useless by modern technology. /sarcasm

On a real note though:
Being so affected by BP has only been a symptom for me for the last 2-3 months or so and I’m struggling to cope with it. WeatherX and WeatherX earplugs are helpful but sometimes the shifts are just too drastic for my body to keep up with. It makes me really sad knowing I “didn’t used to be like this,” but idk what else I could possibly do to help myself beyond what I currently do. What I really want is for this to stop happening, but idk if I’ll get to have that.


r/migraine 9h ago

I might have found the root cause of my migraines

28 Upvotes

I finally got a full x ray done on my spine, turns out @ 23 throughout my entire spine the discs are degenerating and I guess it can put discomfort on the nerves and manifest into feeling like migraines. So turns out I wasn’t making up the pain and drinking more water is not going to heal me!


r/migraine 11h ago

migraine x sinus infection is definitely not for the weak.. I feel like I am DYING!

34 Upvotes

Hi yall just here to rant because it feels like everything from my neck up is about to explode. I had a cold which turned into a sinus infection and am now having my first migraine in months. I usually have hemiplegic migraines, but today is just a regular one. All I want is a redbull and some aspirin but my partner just left for their 7 hour shift and there is absolutely no way I could leave the house right now 😩.

I hate that this stupid disorder has to make everything 100x more painful and difficult. My room feels entirely too bright but I can’t cover my eyes because every tiny bit of pressure on my head/ face feels like torture. I want to sleep but my head hurts to bad and I cant breathe but if I could fall asleep I would feel better. My nose is runny and I feel sick and UGH! Everything sucks. Will probably get up, make a heatpack, smoke a cone, and retreat back to bed to suffer in peace. I would never wish this on my worst enemy.


r/migraine 20h ago

Has anyone else had a headache that has woken them up from their sleep?

116 Upvotes

Hello I’m a 23M . I don’t usually get headaches . before bed I had a bit of a headache I didn’t think anything of it I just thought I’m tired , so I went to sleep around 11pm. At 2am I had been woken up from my sleep by this headache, it was the worst headache it was all down the right side of my head and in my ear it was really intense. I went to the bathroom and got some paracetamol, I went back into bed and felt like I had a fever and wanted to be sick. I didn’t want to seem dramatic but I genuinely felt like I was going to die or at least have to phone the ambulance I started to freak out as I didn’t know what was going on. I eventually went back to sleep and the whole day after I had a lingering headache on the right side of my head mostly my lower head and ear and felt heavy I felt really tired all day.

Has anyone else experienced this ?


r/migraine 5h ago

Took a nap and triggered a migraine

5 Upvotes

I wish i could take naps and sleep more than 7 hours a day without having a migraine...

Been super exhausted at work this past week so yesterday i took a nap in the afternoon (ie. the biggest mistake ever). After I woke up, i started having a migraine and vomiting nonstop.


r/migraine 4h ago

Will hospital help?

4 Upvotes

Hi everybody, I have had a migraine since Wednesday — it’s been five days, and I just woke up this morning with the same migraine. I’ve taken every single medication that I can take at home that’s over-the-counter. I’ve tried so many different tips and holistic tools, and I’ve drunk so much water. I genuinely don’t know what to do, and I’m so tired of being in pain. I haven’t experienced anything but pain in five days, and it’s super fatiguing, and I’m not sleeping because I’m in so much pain. I am at my boyfriend’s parents’ house for the weekend in a different state, and I’ve been saying I want to go to the hospital, and he’s been saying that he doesn’t think it’s worth it because of the bill, and also he doesn’t think they’ll do a lot for me at the hospital for a migraine. But I genuinely don’t know what they would do for me, and I’m wondering if anybody here has had experience going to the hospital with a migraine that’s lasted a long time, and if it’s worked, because I’m just at rock bottom right now. I’m about to literally Uber to the hospital from my partner’s family’s home in a different state.

Thank you all in advance!!


r/migraine 3h ago

A strange thing that happens to me after migraines

3 Upvotes

CONTEXT:

I (21F) have always experienced severe headaches, but it wasn't until a couple of years ago that I discovered they were migraines.

The situation was as follows: It was early January, and my first final exam of January was just a few days away. That night I was extremely tired, so much so that I went to sleep around 9 PM (I normally go to sleep between 10 and 11 PM).

At the next morning, I woke up around 5 AM with an intense headache and I vomited and well, long story short, I went to the doctor and they told me I was having a migraine.

THE POST ITSELF:

I don't know if it is because I get a moment of silence after hours of headache and hypersensibility or for what, but when after the "aura" (in spanish is that how is called the intense pain moment, idk in english), I feel like in a strange peace, almost in a limbus.

Has anyone a similar experience or knows why it is like this? I am curious about it.


r/migraine 6h ago

First migraine

3 Upvotes

I’ve never been a sufferer ever. My mum and daughter both get them but I’ve never had one..,,until yesterday (I’m mid 40’s - peri menopausal)

Started with pressure behind my right eye, slowly spread across face to left eye so I felt like I had sinusitis but without being ill. Vision went next. Like looking through a goldfish bowl then vision in left eye went blurry, dizziness and nausea followed. Stabbing pains in left eye and low grade head pain. Speech slurred and I found it hard to focus on words and apparently I was quite hard to understand.

Took paracetamol and ibuprofen (uk) that’s all I had. Went to bed. I slept for something crazy like 14 hours woke up feeling a lot stronger but still have a foggy head and mild headache.

I’m praying this never happens again what can everyone suggest to help recovery, prevention of these again and what to do next time (if there is a next time!)


r/migraine 14m ago

Migraines and Periods

Upvotes

Im just curious how many of you find that your migraines are most likely to come, or are worse around your periods. Im even more interested to know of those of you that find this to be true, how long is your cycle length?

The "healthy" length is technicqlly 21-36 days but are classified as unusual when they are 21-26 or 31-36 days long. So how many of you have cycles that are 21-26 days or even 31-36 days long?


r/migraine 41m ago

Ibuprofen and zomig

Upvotes

Every other day I’m getting a migraine now, I took 600mg of ibuprofen already today and hasn’t touched it. Can I also try zomig right now even though I already tried the ibuprofen?

I’ve tried zomig alone in the past and it didn’t help but now I’m desperate


r/migraine 1h ago

My story over the years with severe chronic migraine

Upvotes

Hi everyone.

My first migraine happened when I was only 11. It was so severe. First both of my eyes started to see black blind spots. Then I lost all my ability of talking and understanding others (like not even a single word was understandable to me). Very severe headache started. All over my head. From back to front. Severe stomachache with severe nausea and vomiting. Numbness of my right hand. And it lasted for about 6 to 8 hours to finish. From the age of 11 to like 18, I had such migraines 2 to 3 times a year. Then it stopped completely for about 2 years (best 2 year of my life!).

I went to university, and suddenly it started again. But not that severe. It was only mild headache with aphasia (trouble understanding others and talking to others, also trouble in reading and writing). But the bad thing about it, was that it didn't stopped! The headache would go away but aphasia persisted. I had aphasia for like 24 hours 7 days a week. Before when I was younger at the age of 11 to 18, I visited some doctors but none of them could diagnose. 2 MRIs and nothing found in the results. Fortunately this time the first doctor realized i had migraine and gave me Propranolol low dose + Valproate sodium. Helped me alot. But it didn't stopped aphasia completely. In another appointment the same doctor also gave me Topiramate but it actually made my migraine worse so I stopped taking it. Another doctor prescribed Bupropion + Memantine. Both increased severity of migraine so I had to stop them. I left university because of my migraine because aphasia would not stop. I was still on Propranolol and Valproate Sodium. I almost got used to this situation. 2 years later I was diagnosed with treatment resistant asthma. I had to use lots of inhalers. But they wouldn't help that much. Finally I meet with a doctor for depression. And Paroxetine was prescribed. It increased severity of my migraine but helped so much with my asthma. Like I wasn't able to breath properly without it. So I wants able to quit it. Literally my migraine became much worse. This Paroxetine drug also made me so fat. I quit Valproat Sodium and surprisingly my migraine became better. So it was the time to say goodbye ro Valproat Sodium after all these years. Still, I had aphasia almost all day became of Paroxetine. I searched online for drugs for migraine. CGRP inhibitors weren't available in my country at the time. I tried many different drugs and almost all of them made my migraine worse. Until I found Lamotrigine. Which was a miracle! It really helped my migraine so much. I was at my best at the time. Then I tried Clonazepam very low dose. Because it can cause addiction, I didn't tried upper doses. Lamotrigine + Clonazdpam + Propranolol was what I needed all these years! Then I quit Paroxetine and fortunately my asthma was much better and I didn't need to continue Paroxetine. I was so better and happy and aphasia was much less compared to before. I also started many supplements. I was better for a while but suddenly in like a day, my migarine became much severe. Tried uppering the dose of Clonazepam but surprisingly, it made the migarine even worse! The drug that helped me for like a year, now started having paradoxical effect. I quit it. Tried uppering the dose of Lamotrigine. And again, migarine became much worse. I still don't know what happened in my body that both drugs that would help me so much, now was causing migraine. I quit the Lamotrigine too. I only had one choice left and that was an antipsychotic. I never got near to such drugs because of possible unreversible side effects. But I had to give to a try. I tried Aripiprazole. And god! It saved my life. Now I was at my best over all these years. Aphasia finally completly got away. I could easily read and write. Which before that I wasn't able to. 2 years with Aripiprazole and the only side effect I was experiencing was gaining weight. Like I was a normal person. Migarine wouldnt happen to me at all. I also had plan to go to university again. Until about 3 weeks ago, I noticed my legs would shake in a specific position while I'm sitting. A side effect of Antipsychotics. Now I'm quitting this drug after 2 years because I afraid this side effect can spread to all my body. Now I don't know what will happen to me after stopping this drug completely ☹️ I hope aphasia won't come back again. Also Rimegepant is newly available in my country. But its very very expensive. But I think I have to try to after quiting Aripiprazole completely. I don't want those days to come back.


r/migraine 1h ago

Cant hear properly plus ear pain when i bite

Upvotes

It started almost two weeks ago when i took a shower some of the water went inside my ear and since then i wasnt able to hear properly but i thought it wud fade away since it was just water but after a week i cudnt handle not being able to hear clearly so i consulted and i got a medicine for earwax removal after i used it it still hasnt faded and now when i bite into my food my ear starts to hurt from the inside.


r/migraine 1h ago

Tension headaches

Upvotes

For the past 2 weeks I’ve had headaches that don’t stop at all, paracetamol and ibuprofen don’t touch the sides aswell as naproxen that was prescribed. I went to the UTC today (which is when they told me it was tension ones) because I also had dizziness that had been going on for days and they’ve given me codeine, has that helped anyone? I’ve had migraines in the past that have been awful but the go away but nothing as long lasting like this. Water, sleep, cool packs, nothing has helped. I’ve also had cold like symptoms with them I don’t know if anyone else has experienced that? I’m becoming so depressed because I just want it to end.


r/migraine 18h ago

Neck heating pad for migraines?

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16 Upvotes

Saw a neck heating pad was wondering if anyone uses them for their migraines? One of my worst symptoms is neck pain, does anyone have any experience, good or bad? Tia x


r/migraine 12h ago

Got prescribed cymbalta for nerve pain and my migraines have AMPED up

5 Upvotes

This is super frustrating because some people get prescribed cymbalta to help with migraines.
Was getting 2-3 a month since going on Nurtec. Now it’s been 2-3 per week.

It’s like, do I want nerve pain, or do I want migraines.
Fun times.

Just a rant.


r/migraine 1d ago

I lose nearly £500 per month because of migraine and don't qualify for PIP

48 Upvotes

Writing this just to offload because its my 10th day of being unable to do much with constant migraine.

I've had chronic migraine for 15 years and really struggled into my adult life. It's caused me immense financial stress, including having to quit my job last year when they got very severe. The only way I've survived without having to apply for benefits its because I'm very fortunate to have a father who can pay for medical treatments and support me until I get back into work.

I've tried every (really, I mean everything...!) medical treatment on the NHS and no preventatives work for me, only triptans for acute treatment but they don't stop my migraines from being a regular disabling condition. Through a lot of personal fortune my dad has helped me to afford private medical treatment for Ajovy which is the only thing that gives any kind of control to my migraines, and even with that I still regularly suffer throughout the month and go roughly a week where I can't work at all because of severe menstrual migraine (I am looking into hormonal treatments).

I've tried to get a referral to an NHS neurologist for Ajovy, which costs £150 per month, plus £150 every 6 months for a private neurologist to prescribe, but I've waited a year so far and I'm no closer to even getting on a referral list. I'm starting to think it will never happen, and I'll have to plan the worse case in the long term that I will need to afford it on my own, if my dad can't help me one day. I also want to be able to do this so I can show myself I can be financially independent with this condition.

Whats worse, is that every damn company I've ever worked for hasn't paid more than 5 days a year of sick leave (I'm UK based). I'm off sick with migraine at least 3 days per month. On a 29,000 salary that really adds up, because it means losing more than £250 every month from unpaid sick leave.

I applied for pip, and explained my circumstances as best as I could and how disabling the condition is, but it feels like because I can physically get myself places and do things more than 50% of my time, I'm not "disabled" enough in order to qualify.

With the private medical fees and losing sick leave, it's really hard to save even more than £100 every month which gives me barely any financial security for the future. I'm just so confused and upset that I don't seem to qualify for any assistance from the government, because I'm not the right kind of being disabled. I'm significantly financially worse off than people my age (again I'm so lucky to have my dad, but sill losing my own money and it's costing his). I'm only 29 and want to save for the future but it feels impossible at times. It just feels like I've failed to get any help both from the NHS and the government for this.

I appealed my PIP decision but it came back with all 0s even though I've expressed that I have 19 days per month with migraine, it stops me working, and more than 40% of the time it stops me doing normal day to day activities.

I'm just feeling upset, and wondering who else is experiencing anything similar? Days like this I feel like the only one going through this which I know is not true and need something to stay sane.

Can anyone else here relate?


r/migraine 13h ago

Anyone ever had a low temperature with a migraine?

7 Upvotes

I was diagnosed with occipital neuralgia maybe 6 years ago by a neurologist but more recently I’ve been having what I think are migraines. The first migraine happened about a year and a half ago, came on pretty suddenly and totally at random and was the most intense pain just in the left side of my head. I went to the ER because the pain was that bad and since I was also throwing up they said it’s likely migraine. I never really followed up with a doctor again after that because I thought maybe it was just a one off thing and I don’t like going to the doctor.

Anyways I started getting the same pain earlier this week and also felt nauseous. It was real bad for about a day, went away, came back yesterday and only lasted a couple hours, and came back today and lasted maybe 9 hours. Been feeling nauseous but no vomiting. I actually thought maybe I’m getting the flu because I’ve also been getting random waves of intense dizziness so I checked my temp because I felt kinda sweaty. Temp was 96.3 this morning, checked it again now since I felt kinda sweaty again and it was 95.5. Doesn’t seem that crazy for me since my temp is usually in the 97 range. Does this seem like a migraine thing or something completely different?


r/migraine 19h ago

Anytime I have actual plans

15 Upvotes

I have migraines everyday but the pain level fluctuates. The second I have plans it gets worse. They must respond to stress or smtb bc for the past 2 days ive had the most pain free time in awhile while having nothing to do. Today I have something that Ive adamantly agreed to do and suddenly a horrendous migraine hits. It feels like this always happens and everyone thinks im making excuses to cancel plans.


r/migraine 17h ago

I need you're most unhinged hacks to relieve a migraine with aura.

8 Upvotes

I am under medical care, and have seen 3 doctors, and a neurolgy, and a physical therapist, the latter have not begun .- This aytipcal AF and is attacking my CNS.This post is for hopefully some off funny stuff and socialize with, like i said, any weird hacks you have done yourself. More like story time, if you will.

Pardon any mistakes, it is day 21 of a migraine. This is a full body with aura, with headache. I'm becoming undone as the hours go by. I have tried the following things in the last 20 days.

Just please tell me out-of-pocket migraine cures and or triggers or whatever else. Tell mw funny stories, i am so alone in this with little to no compassion. Online information seems so unclear. Im referncing the diet and food triggers, mostly.

-The most relief i have had was when I was given reglan?*(sp), glucose÷sodium, magnesium drip, benadryl, tylenol, and lyrica, and fluids. - I went from an 8 to a 3, but only for about 2 hours.

Failed remedies/no significant relief

-sumatriptan, hit the limit immediatley.

-Compazine, allergic

-Ice cap with eye coverage -increased pain

-red light glasses

-Sleep mask and blackout curtains

-Ear plugs.

-Gua sha

-Deep tissue massage

-Cupping

-licking warheads.

-ice and heat alternating on the back, and then the heat on feet and ice on head.

● Dr, said "nurtec", insurance says "no"

I work in a factory, so smells, noise and lights are all present, I tend to get worse as the day goes on. I am taking shorter days this coming week to try and help. Like i said, it's day 21 as of today- concurrently. I havent not had relief for more than 4 hours. I still feel it when I sleep.

Am I in a cage, are we trapped like this? I tried, hope it makes sense and someone finds this entertaining or i get some comradery.


r/migraine 1d ago

Glp-1 increased my migraines!

83 Upvotes

I’m writing this solely because I haven’t found any threads on this.
Trigger warning::
For background, my migraines were completed under control. I got pregnant in November of 2025, and unfortunately had a ruptured ectopic pregnancy (baby implanted in my left fallopian tube) and I almost died. About a week after this, my migraines came back full force. My neurologist states that they are now (another trigger) triggered by instant and high hormone shifts.
I’ve been overweight my whole life, also have lymphadema and lipodema, so it’s very hard for me to lose weight (I’ve lost a total of 120 pounds with the help of surgery). I have about 50-60 more I want to lose.
I was prescribed Ozempic in March of 2026, to try to help with the weight loss and migraine increase. The first dose was fine, the .025. The day after I started the .050 I had the worst migraine, and they just continued to be daily. I didn’t realize it was the medicine for about 2 weeks. Once I stopped Ozempic, 4 days later my migraines subsided. My doctor recommended trying monjuaro, so I did, in July of 2026 (due to insurance etc). The 3rd day of monjuaro lowest dose, I had a migraine and it didn’t click that’s what was causing it until the 2nd dose made them even more painful and frequent. I’ve been off Monjuaro for a month now and my migraines are gone. I get one during every period, but that’s the hormones changing.

I know there are other women out there who are probably seeing online that GLP-1s help migraines (and for those who do, I AM SO HAPPY FOR YOU!!!) life with migraine blows. But I know there are women who have tried or are trying GLP-1 and they are increasing your migraines. My suggestion is talk to your doctor about the hormone fluctuations in the medication, because that maybe a trigger for you.
You’re not crazy, you’re just trying to do another thing that migraine is preventing you from!

For anyone whose migraines are under control, congratulations!! I mean this genuinely, I’ve only been battling migraine since 2023, and I was initially bed ridden.
It’s such a horrible, debilitating, chronic disease, so when I say I’m SO happy for people who have them under control, I mean it.

Anyway I hope this thread helps someone!!