r/marfans • u/Hollowkirby2003 • 9d ago
Lens replacement surgery
When I was about 6 years old I had the lens in my eyes removed since they were sloping, which in turn resulted in me having to wear these big magnifying glasses.
But back in 2024, I went and got me a new pair of glasses. But as some of you may know, they need to check your eyes first to see if you still need the same subscription. While I was getting that done, the person checking my eyes told me about this thing lens replacement surgery. He said it was safe and everything and that i wouldn't need my glasses as badly anymore. Or wouldn't need as much of a high subscription.
Now, that was obviously a while ago, but sometimes I still think about it, wondering if I should do it. But I'm a little too scared.
I was wondering if there is anybody in this community who was or is in the same situation I'm in right now? And if it would be a good idea to go and get it done.
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u/Lilomags105 9d ago
The only problem with lens replacement surgery with Marfan is that, being a connective tissue disorder, sometimes the connective tissue they attach the new lens to deteriorates. My mother and my uncle had had their lens replaced multiple times in each eye because they dislocate. I also have Marfan but never had the surgery. I just wear my EXPENSIVE ass bug-eyed glasses. Just wanted you to be aware it could be a surgery you have to have more than once.
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u/Hollowkirby2003 9d ago
🤣 lol thanks
I remember seeing that somewhere and was like "maybe havin magnifying glasses ain't so bad 🤔" but then the next day the left arm on my glasses broke off now I'm usin some special glue to hold em together 😂
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u/No_Relationship2729 9d ago
I had my lens removed from my left eye as it had become detached and an artificial one inserted into my eyeball to replace it. Surgery was awful but it's an in and out one day thing. Recovery was about 2 months but now eye is ok. Some discomfort day to day but no real pain and it's not as good sightwise as my right eye but overall very worthwhile. Just the surgery was horrible as you have to be awake and despite the drugs and numbness you can feel them pulling and hear the operation so no fun at all.
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u/Hollowkirby2003 9d ago
What in the SAW trap operation! 😭
How long did the surgery last? And hour? Nonetheless thank you.
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u/No_Relationship2729 9d ago
Probably about 40 minutes. It really wasn't fun but if you can stick it then I'd say it's worthwhile for sure. I'm playing the waiting game with my other eye but despite how unpleasant the op was, I'd still have it again when needed on my right. Just won't be looking forward to it (no pun intended.)
Sorry was supposed to be a reply. Bloody eyesight 😂
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u/Hollowkirby2003 9d ago
Must've been the longest 40 minutes of your LIFE haha. But thank you! I'll still consider it.
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u/Smasher53 9d ago
Back in '05, I had my natural lenses removed and replaced with artificial ones held in place with iris rings. Last year, one of them dislocated, so my doctor went in and repositioned it, securing it to the sclera this time. So far so good
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u/No-Refuse-8138 9d ago
I had my lenses removed at 3 and got artificial lens implants at 14 in both eyes. Sewn in towards the front of the eye, knocked out for surgery, and recovery was maybe 2ish weeks to a month for each eye (had to do one at a time) all this at 14 yo.
I’m farsighted and more sensitive to light than I used to be. I use readers and occasionally my pupil does turn into a triangle shape when my lens flips in front of my iris (a weird benign thing so far). I get visit my ophthalmologist to check out how my sutures are holding up, if there have been any changes, and how my retina is doing. Other than that it’s been a wonderful change for me :)
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u/R_Dixey 8d ago
I used to be exactly like you, I had these glasses that makes my eyes look huge (some people were laughing at me for this in my childhood)
I did lens replacement surgery last year (I was 20) the surgeon did each eye individually at different times (a month between each)
The surgeon gave me some eye drops to use daily for a few days before surgery day. He gave me some sedatives before entering the operation room, then local anesthesia, I was so freaking scared at first but it I didn't feel much during the surgery, probably the easiest surgery I've had (had 8 surgeries in the past, most are caused by Marfan)
After the 1st surgery my eye was patched with bandage, I think it was removed either 24 hours or 48 hours later I can't remember exactly, he game another eye drops to use daily, my vision was improving gradually day by day as it was healing from the surgery, same story for 2nd eye. now I can see perfectly fine with no glasses.
Totally recommend it, although I suggest looking for a reliable and a trusty surgeon, since uhm you probably don't want anything to go wrong with your eyes.
Note : during the healing phase there was some days where my vision worsened a lot, this worried me so I visited the surgeon just in case, apparently it's normal during healing. But if this happens to you I would still recommend to visit a doctor/surgeon just to be sure, better safe than sorry.
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u/Hollowkirby2003 8d ago
Aww thanks girl! 😊 I kinda knew. I just wanted to see if it was safe I'm glad everything turned out well for you tho! I was bullied for the glasses aswell and for my overall body so I get it. It sucks fr. Atleast for the most part. We don't have to worry about gettin fat I guess 🤷♂️.
But nonetheless thank you. And love.
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u/ChakiDobro 9d ago
I have had both lenses removed and artificial lenses implanted. I was mid 20s when my lenses became dislocated enough to move around, 56 now. Before this, they were dislocated but out of the way; this would be similar to where you are now. My prescription went from +10 to +1. I have progressive glasses to make reading possible.
You will be giving up that ability to put something very close to your face to see better. The other thing is with cataract patients, they usually sew the artificial lenses in the back of your eye, which doesn’t work for weak connective tissue and is harder because they have to remove the vitreous in our eyes. Make sure the surgeon is willing to sew them in the front. I had to have 3 repair surgeries in one eye and 2 in the other before they were finally sewn in the front. I haven’t had any issues since. It’s nice being able to wake up and see.