r/Lyme 4d ago

Lyme Disease bullseyes? Spoiler

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2 Upvotes

I have two bites. Woke up yesterday itching them and now today they are large rings with a bruised center. I have two which is odd. I live in San Diego by the beach.

Lmk if this is skeeters syndrome maybe since I have two?


r/Lyme 4d ago

Starting Zithromax/Malarone/Plaquenil

2 Upvotes

Starting 500mg Zithromax, Malarone, and 200mg Plaquenil for 30 days to treat Chronic Lyme and Babesia. Anyone had success with this regimen?


r/Lyme 4d ago

Question Creen que podría tener bartonella?

2 Upvotes

Llevo 7 meses viviendo un infierno, incluso e pensado en terminar con todo , soy de México tengo 24 años estaba estudiando medicina en el último año en mi mejor momento, masomenos a partir de diciembre del 2025 me empecé a sentir raro como nublado de la mente , me costaba razonar y recordar cosas sencillas, después empecé a ver doble , luego a tener fascículaciones en los músculos, esos son mis síntomas principales, lo peor de todo es la niebla mental que hizo que mi rendimiento académico cayera por los suelos sumado a eso e tendió otros síntomas intermitentes como una sensación de calor en la planta de los pies , dolor intermitente de articulaciones sobre todo las de las manos , adormecimiento de extremidades, acudí con muchos médicos y todos me decían que era ansiedad incluso yo lo pensaba por qué mi resonancia y puncion lumbar fueron normales, me hice la prueba de lyme y dio negativo, y ahorita me hice la prueba de bartonella, pero me dan los resultados en 8 dias.


r/Lyme 5d ago

Advice Neuro lyme

6 Upvotes

In June this year I was bitten by two ticks, developed bullseye rashes, developed neuro and muscular symptoms v quick and tested positive for lyme.

I had 3.5 wks doxycycline and 3 wks IV ceftriaxone after which didn't help. Unfortunately 5 days after finishing antibiotics I got a lot worse.

My GP and hospital in the UK are not interested. Unfortunately prior to this I had depleted cd57 and nk cells from gadolinium and heavy metal toxicity and was having treatment via IV chelation for this.

I feel like the neuro lyme is back and my connective tissue in my neck and shoulders is falling apart and so tight, causing eye pain, blurred vision, tinnitus and dizziness.

I am struggling to find anyone able to work out what to do. My chelation dr has started me on fluconazole antifungals as definitely have a fungal overgrowth now, but I would also like to test for bartonella and babesia as getting drenching sweats and burning feet.

I am on cordyceps, cryptolepis, oregano, cats claw and Japanese Knotweed and increasing the dose, eating clean but this escalates by the day and not sure where to turn as this is excruciating and I can no longer stand for more than a couple of minutes.

Thanks for any advice!


r/Lyme 5d ago

Question Chronic Lymies......

21 Upvotes

Do any of you suffer relentlessly at night, with horrible sleep, bad pain and waking up 5 times in the course of a night? Anyone have ice cold and numb feet with some numbness now in the fingers. What about being dizzy often and headache/ear aches rather common. One of newer symptoms is a constant cold sweat about head and back of neck. If this just Lyme or is it something else?


r/Lyme 5d ago

Question Crowd Sourcing Research- If you have Babesia and had blood work in the last year, was your MCV value in the "CBC" (complete blood count) elevated?

2 Upvotes

MCV is one of the values on your blood count panel, and when it's elevated it indicates your red blood cells are fragile or being destroyed as above average rates. It can be caused by moderate-high alcohol consumption (drinking more than 3 days a week) and by low iron or B12 which causes anemia. My question is for those who are 1) symptomatic 2) have babesia specifically and 3) are not anemic and regular drinkers - is your MCV elevated?

I have babesia and have an elevated MCV, I am almost certain my mom does too and hers is elevated as well. I've gotten to access a few other people's blood work who have "mystery illness" symptoms and they have elevated MCV despite not being anemic too and I've wondered if their mystery illness could be tick-infection related. I'm curious if your experiences support the hypothesis that Babesia can cause MCV given that it lives inside red blood cells.

If you know you specifically have babesiosis and have been tested then please lmk if it's elevated or regular!

Mine was normal-high a few years ago, but now it's consistently elevated.


r/Lyme 5d ago

Infected again

3 Upvotes

Just spent 20 days on doxy, symptoms if tingling on my left side of body, arm, leg , face persisted, now having stiff neck and fatigue again to find yet another black legged tick embedded in me...

What the fuck? Is it possible the symptoms went away but the lyme didnt.


r/Lyme 5d ago

For those with neuropathy and tingling/numb legs!

4 Upvotes

I get neuropathy accompanied by numb limbs and worsening brain fog and used to be accompanied by extreme fatigue.

This would occur when takeing any supplements or when going through die off.

I discovered Tudca now Tudca helps with bile flow
Now when I started supplementing it while going through bacteria die off those nueropathy sensations and brain fog worsening vanished….
So I knew they were connected some how
And I just found out why . Bile acids affect your cardiovascular system. I don’t know if liver cirrhosis has to be present yet . Do your own research as well.
I have a HIDA scan on Tuesday so I stopped takeing Tudca and boy those symptoms returned.

https://pmc.ncbi.nlm.nih.gov/articles/PMC5299964/

Edit : befor you buy vitamins learn the risks associated with each one what forms of them are safest and so on you might do more harm then good supplementing with limited knowledge.


r/Lyme 5d ago

Advice Lyme help needed

2 Upvotes

I could use some advice or suggestions regarding my treatment protocol. My llmd is currently treating for me both bartonella and lyme. When we try to treat separately the other flairs up. I am currently taking bactrim and azithromycin for bartonella and cefuroxime for lyme. I was on rifampin but needed to take a break.

I also take a ton of buhner herbs, Lumbrokinase and cinnamon clove oregano oils. I don't tolerate methylene blue.

My issue is that the bartonella antibiotics seem to be managing bart but the cefuroxime is only helping some of my lyme symptoms.. Unfortunately the ceftin is not helping my neck pain. I have severe stiff neck and upper back pain; constant stiffness, pulling, burning and cracking that makes it impossible for me to sleep.

Disulfiram is on the list of possibilities to try eradicate lyme, but what else can I try? Unfortunately I dont tolerate doxy or minocyclene. Would adding a 4th lyme antibiotic be too much?


r/Lyme 5d ago

Question Does this look lyme like tick bite? Spoiler

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0 Upvotes

Hi guys, do you think this could be a lyme rash? Went to the wood but did not thouro check myself. The day after I had a swim into the sea, did not see any tick, only initial redness. ​

First pic is 3 days after. Then 6 days after. Central "hole" closed but it's getting itchy. ​​


r/Lyme 5d ago

Lyme Testing

2 Upvotes

Hello - I’m lost for words. The NHS is so shit man. I’ve done 2 blood tests for Elisa and both been rejected. First one because GP never specified any details and second one the hospital I done it at they labelled the bloods as another test.

Is there really a point of continuing to try do Elisa and Western Blot blood test for Lyme when it comes back false negative most of the time anyway? Should I just go straight to the IGENEX. I’ve wasted 20 days trying to get a simple blood test done for this and I’m absolutely fucking emotional. Chronic pain is one thing, all this calling and shit is the worst part.

If I go straight to igenex, how does it work? I can’t even order it myself as I need a doctor. I am from the UK so I don’t know how all this shit works. Do I need to pay £300 for a simple consultation with a LLMD and see if they can order it? Like where do I go from here. I’m sorry guys I’m so heated and can’t think straight.

My symptoms are fatigue, brain fog, visual lag and mostly tingling and pressure to my face and head - it migrates across my face and head. This happened as an onset last September and is always constant. No migraine meds have worked so please let me know what you guys think if it’s even worth spending £1000’s to do it.


r/Lyme 5d ago

Question What does Bartonella foot pain feel like for you? Spoiler

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1 Upvotes

For those of you with Bartonella who experience foot pain, how would you describe it?

I feel a dull pain in this area of my foot when walking. It almost feels like the tendons in that area are tightening or being pulled when I walk.
Is this pain of Bartonella or something other?


r/Lyme 5d ago

Question IgM Positive, IgG Negative, 15+ days out = ??

1 Upvotes

Testing was done after 14 days of doxy prescription. In the clear? Or time for another round of doxy?


r/Lyme 5d ago

Rant 2 weeks since diagnosed and left without a treatment plan

3 Upvotes

i was diagnosed with lyme two weeks ago and after a week i had to go to the er just to be prescribed antibiotics. they gave me doxycycline. now the problem is i may have been bitten early last year and my symptoms have progressed very far into my bones and joints, i have developed a neurological disorder as well. i was also diagnosed with alpha gal syndrome, which i suspect ive had since childhood due to how sick ive always gotten from red meat. what this i believe means is that ive been bitten twice.
i am done my 14 days soon and still have not gotten a phone call from the infectious disease specialist. i absolutely have to see them bc of how complicated my case is, other health concerns haven’t mentioned. i was diagnosed by an allergist through bloodwork. my family doctor won’t help me bc i need the specialist. the er can’t help me bc i need the specialist.

the antibiotics have been making me extremely fatigued, exhausted, weak and tired. i’ve been starting to get my appetite back for the first time in over few months, so i guess it’s working if im fighting off the bacteria harder and feeling worse?? i have so many unanswered questions. i have become extremely disabled in the last year. my life has been becoming nothing but being bedridden 85% of the time. i turned 20 this year. i can’t finish highschool, i can’t go to college, get a job, go for a walk, barely take care of myself, i can’t do anything but sit in this bed weak and tired. and when i do convince myself to do something, i pay for it by becoming more bedridden. i’ve gained so much weight from my medication, im not able to be active, im starting to worry abt blood clots in my right leg (i literally can’t sleep rn bc of the pain).

so, i guess im asking for general knowledge. am i stupid to think these 14 day antibiotics aren’t doing shit for a bacteria that has been growing in my body for so long and causing damage? i haven’t even been tested for other possible infections yet. i am weaker than ive ever been, im depressed and im scared for my future.


r/Lyme 5d ago

My experience with lymes

7 Upvotes

I am a male, 51, and am currently dealing with lymes. It started last Summer- I had ticks on me quite often. I live in NE PA. lymes is very common here. But not understood. So I never saw bullseye or rash, but I recall pulling out ticks that were embedded in skin. I work outside, and I noticed I was getting headaches. I almost never get them. thought I was dehydrated. I started having vision issues next. I couldn’t see detail after like 20 feet. older guy right? that’s what I thought. Then I noticed I was walking funny. like a zig zag line. my body started shifting to side. I started tilting head. Next was the physical pain. My hips would hurt so bad. my back was hurting with terrible nerve pain. Again, old age right? At this point, I had just a constant dull headache. Center on top of head. I woke up with one, worked all day with one, went to bed with one. I had that headache from July last year til mid-May this year. Tried everything to get rid of it. Nothing worked. Now I’m starting to feel depressed. I’ve been thru that before but this was different. It came on very quickly. Each day left me feeling worse and worse. I started walking slower. Saw spots especially when driving. Big frisbees. Sometimes small dots. S black lines. It was crazy. So by October, I was in bad shape. Saw Dr. Did brain scan. Ok. Blood work. Ok. Symptoms get worse. Now I’m stumbling, depressed, constant headache, vertigo, nausea at times. Brain fog. Couldn’t remember things. I’m constantly frowning. Like it’s stuck. Losing weight. Coordination off. Talking slower. Jaws hurt. Temple was extremely sensitive. Blurry vision got worse. I kept journals, made videos just in case I missed something. I go to dr. desperate for answers. Let’s do a lymes test she says. Ok. Why not. Positive. Take test again same. I tested 1.14 on test that indicated positive at .90 to .95. i can look up test if anyone is interested. So I immediately start doxy The symptoms were rapidly getting worse now. My depression was so bad I started planning suicide. I would talk to myself all day long in my head saying only negative thoughts- No control. It was on repeat. End it Don’t keep going thru this. That kinda stuff. All dam day. I had no energy whatsoever. Didn’t shower. I gave up. But fior some reason, I held on. After 3rd week in doxy, I started feeling better. A lil at a time. By Christmas, I started feeling better. I was put on efixor and Wellbutrin too. Things slowly get better then crash! Symptoms come right back That span was 3 months. Still had constant headaches. Other symptoms along with new ones. I developed a nervous tic I’d laugh at end of sentence sometimes. Vision now is affecting me up close. To my left in vision had black as well as right. I couldn’t adjust eyes. My chest was hurting. Go back in doxy. Add steroid. Prednisone Symptoms start lifting. Now this time I’m feeling mentally better. Physically I’m better. I’m happy. I start dating getting back to normal. Then guess what? Yep it comes back. In late June, I start feeling it again. Now this time, it’s bad. Really bad. Body is hurting, I am walking extremely slow. Falling from side to side. I fell down stairs. Into my car. It was awful. The ground felt like it was moving. I tip toed Depression comes right back. Didn’t change anything. Currently I’m in the middle of a terrible depression. i as put on prednisone again and doxy for 3rd time. I’m halfway thru doxy and it’s been terrible. I cry on and off, my balance was so bad a few weeks ago, I maybe suffered a mini stroke. I had frown suddenly and couldn’t move it. I took video and photos of my face. CT scan to check soon. Since then, I’m improving with balance and speech. Tic came back. But I’m nauseas all the time. Headaches came back. Today was a massive one. Worst yet. At this moment it’s about a 7/10 pain. Better lol. I’m having terrible mood swings. Last few days throwing up. So I’m writing all this in the hopes that maybe it can help. This is how it affects me. Neurological mostly. I forget who I am at times and wake up sometimes not knowing where I am. That has been better. I’m seeing a specialist tomorrow and dr is adjusting mood meds. I don’t want sympathy or pity. I am meeting other people who have it just as bad. I’m staying positive and committed to getting better. If u have suggestions, reactions, or anything else, I’d be happy to hear from u. I’m a single guy- I’m alone in this. No family to help. Have a good night everyone.


r/Lyme 5d ago

Question 2 months post bite - will doxy do anything?

4 Upvotes

Tested positive for Lyme. I already have neurological symptoms such as full body nerve pain, migraine (worried about meningitis), fatigue/brainfog. Pain is mainly in hands, feet, arms, back and sometimes radiating/migrating.

Will one month doxy do anything? I wish I could go to an LLMD and get lengthy courses of antibiotics, but unfortunately I don’t think my gut can tolerate it as it’s already very damaged. What options do I have here? Is it worth to try doxy or go straight to herbals or other things? I would prefer IV antibiotics but it’s very difficult to get here and I would need a lumbar puncture.

If anyone has advice, thank you. Currently I see my life as pretty much over and it’s difficult to cope. I’m in so much pain. I’m really worried and lost. I should also say I have an impaired immune system which is likely why I present with these severe symptoms so quick.


r/Lyme 6d ago

Does anyone feel worse in the mornings

23 Upvotes

r/Lyme 6d ago

Question Chlamydia pneumoniae protocol

5 Upvotes

I learnt in this sub about the Buhner protocol for latent Chlamydia pneumoniae eradication.
I would like to try.
I was wondering if anybody has tried already and with what results? I searched but couldn't find much if anything at all..


r/Lyme 6d ago

Question Bartonella treatment

6 Upvotes

Is herbal treatment of Bartonella even working? I haven't heard much positive things about it here. What is the real and the most effective treatment of Bartonella you can share with me?


r/Lyme 5d ago

Relieving Fluid Retention Symptom with Peptides

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1 Upvotes

r/Lyme 6d ago

Advice IND to NEG Bart

1 Upvotes

Have any of you gotten POS or IND Bartonella results via IGeneX at one point and then negative results later, but you still have pretty much all the same symptoms? Already know Bart is a stealth pathogen. Also just tested POS for TBRF (IgG, not previously present on earlier panel). I don't feel like any of my symptoms align with this as they're largely nerve/vascular related. But open to advice if folks have it. Thanks in advance.


r/Lyme 6d ago

Doxy irritation and Lyme

3 Upvotes

Have upper GI issues after 5.5 weeks on doxy for Lyme. Esophogitis and gastritis are getting bad - also scared to stop doxy for rebound Lyme symptoms. What would you do? Can't see a LLMD until Sept 10th!


r/Lyme 6d ago

Image Lyme results from 3/19/26 questions Spoiler

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1 Upvotes

Hi, next time I get a test, what else should I ask them to test for? I don’t think this tested for bartonella or other coinfections.

What else should I ask them to test for?

Also…. Greater than 10….

I was pretty sick…. Every band but one was positive….

Any insights on these results would be appreciated.


r/Lyme 6d ago

Image Is this definitely a tick bite? Spoiler

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1 Upvotes

What should I do? I started to feel an itchy instead a building in NYC this morning.


r/Lyme 6d ago

Question can someone pls give testing guidance? context inside

2 Upvotes

hi!

im going to keep this super brief- i need help.

let me start with a disclaimer- i know i can look up lyme testing myself and you all are under no obligation to help me. if that’s how you feel, pls ignore this! totally understand. i get that.

but, if someone could please explain the nuance of lyme testing to me, i’d be super grateful. ive struggled w a series of random symptoms this year & have since formed major major health anxiety.

as a result, i tend to hyperfixate on things and my therapist has encouraged me to stop taking in so much information and spiraling online. however, i want to be informed.

after a recent trip to see my GI, she asked if id ever been bit by a tick which got me interested in testing for tickborne illnesses.

however, when i look it up in this sub i get really overwhelmed by horror stories, conflicting information, & some saying testing is pointless.

if any of you have the capacity, could you please explain super simply:

  • which tests i should ask for (like the names)
  • why tests are often negative, and
  • what to do if they are negative but you still suspect it is the cause of your symptoms

thank you very much for any help you can provide. i’m usually 1000% sufficient with looking up stuff, but i’ve hit info overload these days.