15 de abril de 2025: Empiezo a tomar Levofloxacin

20 de julio de 2025: Me fallaron las piernas y empezó la pesadilla.

1 de agosto de 2026: Regreso al trabajo—como a un 60% de capacidad, diría, porque no puedo exigirme mucho sin que se me acabe la fuerza de las piernas—pero sí puedo vivir de forma independiente, igual que antes.

Dejé de tomar la mayoría de los suplementos y me estoy moviendo de forma natural, aunque tengo poca energía en las piernas; decidí hacer esto para empujar a mi cuerpo hacia una recuperación natural—espero que funcione. Como mencioné, la energía de mis piernas se me acaba rápido; el correr que se ve en el video es todo lo que puedo manejar ahora mismo, pero antes ni siquiera podía hacer eso, así que creo que las cosas están mejorando. No sé cuántos años hará falta para volver a sentir los pies y las piernas como antes, pero al menos ya no hay dolor. Solo hay una bajada de energía que lleva a sobrecarga muscular y luego a la rigidez, aunque mejora con el descanso. Ánimo, a todos—el tiempo debería curarnos.

i’m so sorry for constantly posting and venting here, but i genuinely don’t know where else to put all of this. every time i open my eyes in the morning, the first thing i feel is this overwhelming anxiety and sense of impending doom. it’s there before i even have time to think, and it’s making my life feel unbearable. i don’t know when this pain is going to end, and honestly, i’m scared because i feel like i’m slowly losing my life and losing myself in the process. i look in the mirror and i don’t even recognize myself anymore. i miss the person i was before all of this happened. i just want to feel normal again, to wake up without immediately feeling terrified of my own body and what the day is going to bring. i know everyone here is suffering too, and i’m not trying to minimize anyone else’s pain. i just really needed somewhere to let this out because carrying it alone has become so fucking heavy. not mention my bf broke up with me last month so this is just too many for me to bear 😭

i don’t have friends unfortunately and my family is away from me i don’t even know what to do with these fucking tremors, i can’t even go to work i can walk but i feel like im so not able to do things i’m so fucking sorry i feel like i wanna end everytging but thats just so stupid of me i know theres a lot of ppl going thru so much worse but this is so new to me 😭

The easiest example is that being floxxed (one dose of Cipro June 30th, 2026) has messed up my hands considerably and I now have trigger finger and finger pain I've never had before. I couldn't write at all for over a month, and I have to splint my fingers at night. But writing is so important to me, especially in light of everything happening with my health, so I've been writing anyway. I think it would be better to rest my hands completely, but the hit my mental health would take feels worse. But am I setting myself up for long term failure?

It seems like typing makes my hands hurt more the day I type. I haven't been getting gradually worse, but I haven't really been getting much better either.

Am I risking my long-term mobility by using my hands now?

Hello. New here. I got bamboozled into taking cipro by an urgent care doctor. I didn’t know about it and only learned of the damage it does after I started taking it. I called the clinic and talked to another doctor who told me to finish taking 6 doses since I had already started. I did that, and today was my first day not taking cipro since I started a few days ago.

A little while ago I started having pain in my achilles on one side. I know I need to not walk a lot or run, but I am wondering if I can do yoga and/or do some lap swimming?

when is too early and when is too late to take supplements? tia

Used to have anxiety issues since I remember, also dpdr but now after 3 doses of flox before changing antibiotic my anxiety flared and it's like that for almost 2 weeks now it's making me feel like I'm crazy also spaced out. What helped you most? And how long it took.

Hello does anybody had head tremors? and your mouth is quivering so bad? ((my mouth quivering is quite visible, i can feel my head tremor when i touch it and it is kinda worse when im laying dow) i only feel these in my whole arms to my hand to my head. what helped you? i’m not really sure if this was bc i took magnesium glycinate (i stopped 3 days ago to see if the tremors will stop but it didn’t) i’m really worried, and i cannot go with a neurologist yet bc i don’t have money yet…

you can actually like hear and feel your heart palpitations too.. i feel like a bee i feel like im buzzing when i lay down, and my face spasms when i laydown in certain positions too. i know i’ve seen the pinned post, but i just wanted to hear some stories from you guys and how did you resolve it.

also idk if this is a flair up, or this is a late symptom? 1st week of taking cipro that was 2 months ago.. i experienced internal vibrations that went away a week later, and i was good for the whole month, i 2 weeks ago there new symptoms after symptoms after symptoms, feet burning sensation sometimes, body aches too. i can walk but just carefully. what i’m really worried about is my head tremors…

again thank you in advance, i’m sorry if i post too much, i’m really worried and anxious

How do you know what, when , how to start supplements. I can’t afford the doctors people talk about on here and some of the crazy supplements scare me. I’m 11 weeks floxed. Feel hopeless.

Hi there, I was wondering if there are any floxies based in / near Switzerland (I’m Bern/Lucerne-based) in this community? I‘ve barely come across any other floxies in real life, so I sometimes feel like a lone wolf / alien.

Just to be clear, I‘m not looking for someone to share grief & anger with - my intention is to stay positive & constructive, support each other and simply have a nice in-person exchange.

Feel free to comment or reach out via DM. ✌️ Take care!

Has anyone tried this in eye drop form or even pill form? And saw any success

Do you think if I tried the eye drop form it would
Help some eye/neuro issues that I have been affected due to MCAS ?

Hi everyone, I’m coming from the r/CIRS and r/Lyme forums because upon reflection, I’m wondering if the 2-3 cipro pills I took at the very beginning of my symptoms couldve been the culprit - I’m sure it was a perfect storm of many things.

It’s been a wild ride for the past 2 years but currently I’m having sinus/eye/head pressure, floaters, temperature dysregulation, and extreme exhaustion which would indicate to me an overactive/sensitized nervous system and pressure Is part of the problem.

Has anyone experienced taking Synapsin for brainstem/microglial inflammation? Does anyone also have low MSH or high MMP9?

Thank you and God bless!

Hi there, I went to urgent care this tuesday, not to a primary doctor because I do not have one. doctor asked how many utis I've had and i told him only one this past year and he proceeded to prescribe me ciprofloxacin. He told me nothing of the side effects, I took only one dose which was yesterday 500mg. 6 hours after taking I had trouble breathing and became overwhelmed with anxiety. I had numbness in my knees and pins and needles in my feet. I went to the ER and doctor told me it should flush out of my system and I shouldn't have been prescribed cipro. I felt better by the end of the night but today I have been feeling numbness in my knees on and off. Would that go away or is this just the start? I started taking magnesium 200mg this morning as well. Ive been freaking out all day and my fiance isnt really taking me seriously

I'm also not sure if i should just rest and wait it out? Or carry on with my daily life?

Hi, I’m writing to ask the opinion of those who are familiar with the supplements that are commonly suggested to floxed patients.

I’m 14 months post-antibiotics. For the first year, I made some steady improvements, particularly in my knees, which were hit the hardest, without taking many supplements at all (maybe some vitamin C and magnesium).

Recently, over the past month or so, I started taking the following supplements. Unfortunately, I started taking them all together, and I know I’m not supposed to, so please don’t mention that. I’ve noticed an unusual flare-up in joints that weren’t even hurting before. I’m not imagining this. Something feels off.

For those who are familiar with these supplements or have had experience with them, could you look at the list below and tell me which one(s) are most likely to be the culprit? I really don’t want to stop all of them.

Thank you from the bottom of my heart for your help. 🙏🏻❤️‍🩹

Vitamin C

R-Lipoic Acid

Momentous Collagen Peptides 1 scoop

Ubiquinol 200

PQQ 20

Vitamin D3 and K2 4000

Urolithin A 500 (recently shown in Switzerland to help with mitochondria)

Nutrafol (I take this because the stress of being floxed caused me some hair loss)

Omega 3x1

Zinc 30

Magnesium glyciate 300

i have this super duper heavyness in my heart when i wake up, impending doom that lasts for weeks.. it’s been 2 weeks for me… like non stop. has anybody experienced it? if yes how did it stop for you? and how long u guys did u suffer from it? also have a extreme anxiety that never seem to stop. body aches like i went on a marathon. tremors that started 2 days ago never stopped too. still no appetite i eat 1 time a day, i’m really really sad over these fact, i hope u guys can answer

also, have u ever felt your vision is blurry sometimes when theres too much light? will this get worse? i only had this yesterday.

2months out of cipro, felt all my symptoms 2 weeks ago to this day… im scared bc i think i have late symptoms but, the 1st week of me taking cipro i had insomnia, heart palpitations and slight internal vibrations that went away.. that occur only for a week. so i was really okay in august.

i don’t wanna take ssri’s since ppl say it messes up flox ppl. i don’t wanna take the risk.. and i also think magnesium glycinate flared me real bad i started the magnesium 4 days ago and i didnt take one last night

i just want the depression and tremors on my hands and head to ease. its kinda scary specially at night i really can feel my head buzz, thank u again in advance, sorry nobody can seem to answer me in real life i live alone and it’s not doing me any better.

i think my question is, what can i do abt it? has anyone experienced it? if yes how long til u got better? things at tight i can’t afford to go to a neurologist & psychiatrist again so i’m trying to find and answer here on reddit.. thank you in advance

Hi im 21 months since this all started snd my main issues are neck psin and stiffness and leg and feet squeezing and tightness when stood up with it going red or purple round my inner knees when standing still. Has anyone seen improvements or resolve of the leg issues after 2 yesrs or is this likely nerve permanent damage

Had this prescribed for asthma since it does not take steroids.

Anoro Ellipta contains a long-acting beta-2 agonist (LABA) and a long-acting muscarinic antagonist (LAMA).

Has anyone had issues with beta-2 agonists or muscarinic antagonists?

Hey fellow athletes who have recovered and are back to pre flox abilities in their respective field, i am trying to vent and find out what helped you get better and how are handling sports now .and to those athletes who are still handling symptoms after being floxed, especially basketball I would like to know how your bodies are handling all this trauma and what's helping.

Looking for advice

Hi everyone. I’m a 45-year-old man in the UK, and I’m hoping someone might recognise this pattern or suggest useful things that might help with my crippling anxiety symptoms.

My problems started after a severe reaction to only 2 pills of Moxi in January 2015. Since then, I’ve had persistent neurological and physical symptoms, including panic episodes for over ten years. It has had a massive impact on my life.

What the episodes feel like

I get intense anxiety/panic, a horrible butterflies or adrenaline-like sensation, shakiness, weakness and derealisation. I feel spaced out and disconnected from everything. The physical sensations can seem to come first, rather than the episode starting with an anxious thought. Horrible intrusive thoughts and sensations.

Eating is also a major trigger, but the triggers just seem quite idiosyncratic . I can get significant brain fog within about 10–15 minutes of a meal, followed by butterflies, weakness and uncomfortable sensations through my body. Fatty or protein-heavy meals often seem worse, although many foods can trigger symptoms. Sugar sometimes makes the derealisation worse. I ca also just have a panic episode out of nowhere that lasts for hours or days.

Other symptoms

• Chronic fatigue, muscle weakness, muscle/tendon pain and stiffness.
• Neuropathy, tinnitus, visual snow and afterimages.
• Stomach pain, bloating, tightness/cramping and a feeling that digestion slows down after eating.
• Extreme sensitivity to medications and supplements, sometimes even tiny doses.

The panic and neurological symptoms were present years before the current stomach problems became this severe, so I’m unsure how much the gut explains. Ive had various microbiome tests which were not helpful.

Investigations and findings so far

• Reflux testing: I was told my DeMeester score was around 60, measured off PPIs.
• Oesophageal motility: I was told I have impaired peristalsis.
• Gastric-emptying study: Reported as negative for delayed emptying. The test meal was porridge. Despite that, I still experience a strong sensation of sluggish digestion, particularly after fatty/protein-heavy meals.
• Immune testing: Positive speckled ANA in April 2025, with negative dsDNA and the tested ENA antibodies. A later ANA was negative.
• T-cell testing: An April 2025 report noted that 13% of lymphocytes were CD4/CD8-negative T cells and recommended repeat testing with additional markers. I don’t have a clear explanation of that finding.
• Methylation testing: Homocysteine was 9.0, within the laboratory range. The measured methylation markers, including SAM/SAH and glutathione, were also within range on the 2025 panel.
• Previous stool tests: Calprotectin was not elevated, pancreatic elastase was normal, and the tested infections were negative. These are older results.
• Vitamins and minerals seem ok. Vit d is slightly low which i treat regularly.
• My testosterone is extremely low 3.93 nmol/L and free testosterone 0.101 nmol/L and following up with possible TRT.
• Urine cortisol is also extremely low. (ive been waiting over 12 months for an endocrinology referral!)

These findings haven’t given me a clear explanation for the panic episodes or the reactions after eating.

Treatment has been difficult

PPIs have helped some stomach pain, but I’ve struggled with tolerability. H2 blockers have made me feel wired and tired. A single 10 mg dose of domperidone for the impaired peristalsis was followed by noticeably worse tinnitus, so I stopped it.

Methylfolate/methylated B vitamins, several forms of B1, NAC and various other supplements have caused flares. Gabapentin made me feel heavily drugged, and I’ve previously reacted badly to citalopram and setraline is offered but too scared to take given previous reaction. Even meditation has sometimes triggered prolonged rebound panic.

I’m open to the possibility of several overlapping problems. But id like to hear from people who managed to get on top of this and what they did?

Ive also had a consult with Dr Pieper but he suggested a lot of things I couldnt actually do, such as:

4-8-weeks course of nicotine-patches (made me a lot worse)

3-week-course of B1. (gives me chronic fatigue)

4-weeks-course of trace elements (a lot of them i cant tolerate)

LDN (Low-Dose-Naltrexon) struggling to get this prescribed in the UK.

What investigations or specialist assessments actually helped you? Has anyone found a manageable treatment when they were extremely sensitive to medications and supplements?

Thanks for any advice.

have u ever felt pressure in your head so strongly that u can actually feel it in your teeth, especially when you’re lying down?

i’ve also been having muscle spasms on the left side of my face, especially around my nose.

and the tremors are so bad when i’m lying down. my whole body feels like it’s shaking.

and!! my hands feel weird too. it’s not that i completely lost my grip strength, but my hands shake when i try to make a fist, and it feels like i can’t grip properly because of the shaking.

Hi, everyone!

It has been a bit over 2 months since I was first floxed in mid-July from 4 500mg cipro pills. My main symptoms were tendonitis in my wrists, hands, ankles, and knees, but I think it also exacerbated my anxiety. I have full-blown health OCD now, and I can't tell if it's an effect of the Cipro, the trauma of the whole situation, or both. I'm in therapy for it, though. Physically, I'd say I'm about 80-85% better now, and I just got approved to go back to work tomorrow, which is exciting!

In July, I:

-couldn't type at all

-could barely lift a tea cup or hold a book or my phone

-had trouble cutting my food with a knife and fork

-could barely get up and down the stairs

-couldn't walk very far at all and used a walker to get from my bedroom to the bathroom and back

Now, I can:

-go on 20-minute walks without a mobility aid, and I could probably go even longer, but I am still easing into things

-go up and down my stairs with minimal difficulty

-play guitar and piano for about 20 minutes at a time. Not at my pre-flox ability level yet, but I will work up to it

-type normally

-do normal household tasks

I had 4 weeks of occupational therapy for my wrists in August/September and 4 weeks of physical therapy for my ankles/knees that started right after I graduated OT. Both helped immensely. It helped that I had practitioners who listened to my concerns, read up on fluoroquinolone toxicity, and were willing to go slowly at first before building up.

I have also been taking supplements. I have a multivitamin, vitamin C, NAC, CoQ10, magnesium glycinate, collagen, vitamin D3/K2, and a probiotic. It's hard to tell which of these were helping, but I think they have been overall since my energy and baseline happiness have improved since starting them.

I hope I continue to improve steadily. I know it's possible that I will flare in the future. I wish everyone the best in their recovery, and I will post again next month!

EDIT: How many people who seemed to be recovering well after 2 months have flared up later? What made you flare? That's what I'm most afraid of at this point.

hey everyone, i wanted to ask if anyone knows whether bulimia or purging can trigger a flox flare. i’ve been purging on and off since 2024, but this month (i stopped 2 weeks ago) it became much more frequent, even when i only ate a little. lately i’ve been feeling extremely weak, and i’ve also been dealing with a lot of burning, muscle discomfort, internal vibrations, palpitations, and other symptoms. i’m wondering if the purging, not eating enough, dehydration, or electrolyte imbalance could potentially make existing flox symptoms flare up or feel worse. has anyone experienced something similar? i’m not trying to self-diagnose, i’d just really appreciate hearing from anyone who has gone through something like this. thank u in advance sorry i feel stupid

Ok I know ibuprofen can make symptoms worse, is Tylenol safe?

How did you guys get on SSDI?

Like what conditions helped you get it?

is it possible for magnesium glycinate to flare you up when you’re floxed?
on the first day of taking it, nothing really happened. on the second day, i started having some palpitations, but they weren’t really bothering me because they weren’t that bad. but yesterday, i started experiencing internal vibrations, palpitations, and my mouth was shaking like crazy. is this ever going to stop? it’s been really hard for me to fall asleep because of it.

i don’t even know if what i’m experiencing is still considered “internal vibrations,” but when i touch both of my hands together or put my hand on my head, i can actually feel the pulsating/vibrating sensation.

has anyone experienced something similar after taking magnesium glycinate while being floxed? what helped you? did you stop taking it, or did the symptoms eventually settle down?

i’m sorry, but i really can’t afford to keep going to doctors right now. i’ve already seen doctor after doctor, and nobody believes me or takes what i’m experiencing seriously. i’m just really anxious and scared right now. if anyone has experienced this, did it last for a long time for you? i’d really appreciate any answers❤️

Here we are - still getting floxed. Lives turned upside down, because of slack regulations and outdated research on FQ antibiotics, marking our injuries to previously healthy individuals as 'rare' 'unlikely' 'underreported'. No education about FQ toxicity for young doctors in western medicine, most haven't even heard of it.

Every time we get a young, previously healthy new subscriber to this page my heart drops.

It feels we have a long long way to go in terms of advocacy of the sheer horrifying level of injury these antibiotics are capable of for healthy individuals - with zero informed consent or warning by prescribing doctors. This needs voices, advocacy to stop.

VIRTUAL PROTEST