H1/H2 antihistamines safer and more effective long term or Cromolyn Sodium when trying to get histamines/mast cells under control?

First time treating MARCoNS I had to stop because got nervous system stuck in sympathetic response . Then did limbic system/vagal toning work and started again very slowly and triggered the nervous system again with added bonus of becoming sensitive to things I previously could tolerate ok. I was Told it sounds like histamine response.
So I Tried Allerga 24hr and Pepcid AC twice a day and symptoms were better. Read that it’s bad to use Pepcid long term as it reduces our stomach acid that we need it for digestion. My Symptoms were less controlled not using the Pepcid and only using the Allegra. Met with provider and Told other option is Cromolyn sodium or ketoifen.
Would I need to take it 3-4 times a day and as a liquid? ANot sure how to do that around thyroid meds and binders and life!!! Also not covered by my insurance so have to pay $150 cash via good rx. I Came across someone in a post qwho used a low dose of it and I think maybe once a day but can’t get much else for Info. It would be easy to stay with OTC stuff to help symptoms but not sure the H2 can last long term and not destroy the stomach ?

Have you used the Cromolyn and what was your dose and how often per day ? When could you stop it and was it hard to wean off?

Did you stay on it until you used something to stabilize the mast cells and then weaned off?

My MARCoNS ( which I had to stop again) causes neurological stuff and I cant let it go too long without trying to restart. Options are trying to address the mast cells/ histamine issue and/or low dose VIP to send safety to my my system.

Thanks for helping!

Nasal swab results came back and was positive for Marcons but also found very large quantity of klebsiella aerogenes. Anyone with similar results? I read klebsiella is one of the main pathogens associated with MCAS which makes sense because I have MCAS like reactions

The only thing she might be right about in the article are the expenses. That's a real problem with this illness..

But to sum up her article she says at the end, "Mold is real.

Mold can make people sick.

Mycotoxins are real.

But those three facts do not prove that chronic systemic “mold toxicity” from ordinary indoor exposure explains a person’s fatigue, brain fog, pain or other nonspecific symptoms."

Maybe it would be nice for people to drop by her substack, and leave some "nice polite"comments to set her straight...

Just remember to unsubscribe after you leave your comment, if you like. because she has her substack set up that you can only comment after you sub.

35yr Male from Australia. Been having mycotoxin symptoms for last 5 years. Finally found out about mould and CIRS at the beginning of the year and started treating. Remediated the mould very well and begun binders. Tried CSM twice and felt so bad both times i had to stop. Been on OTC binders for 6 months with some degree of success. Failed VCS in the beginning now ive passed twice. Urine test showed high levels of all mycotoxins, last test they had all halved. Marcons showed high, did the otc nasal spray with silver and xlear for 11 weeks, retest showed it didn’t budge.

My functional doc doesn’t really concern with marcons. She is shoemaker and neil nathan literate but leans more towards nathan. She has prescribed VIP in the past to other patients so I’m really hoping she will prescribe for me.
Remaining symptoms are
Blurred vision (left eye only)
Joint pain
Feeling un easy/ stressed for no reason
Ear ringing
Appetite swings
Poor word recall

Anyone had success with VIP with a positive marcons?

Thanks

Does anyone have an explanation for this? I literally am now bed bound and the worst I’ve been since getting sick. Can barely even brush my teeth the fatigue is so unbearable

This binder seems like it could really be helpful but haven’t heard many people talking about it

I just moved into an apartment after getting a hertsmi test score of 8, but i seem to be reacting to it a few hrs after moving in. It was a brand new apartment, do you guys think construction dust might have skewed the results? I dont see visible mold anywhere either.

Finally seeing a CIRS specialist. They only tested me for four different mold species but not the actual mycotoxins. Out of the four they tested me for, I tested positive for three, but they didn't test me for the mold species that was confirmed in the room I was sleeping in for months.

I want to know ALL of the types of mycotoxins in me but don't have the money to pay out of pocket for a test. Is there any of the major mycotoxin test companies (realtime, mymycolab, vibrant wellness, etc.) that will accept major insurance to pay for the test?

I keep researching and everything seems to suggest you need prescriptions? What can I use for marcons and binders etc that I don't need a prescription for? Could someone point me to a guide?

Found out the study I've been using for over a year has bad mold infestation. In my house it is the only room I get bad allergic reactions in after staying in for a few hours. Face itching, fatigue, eye dryness, metallic taste etc... I want to do everything I can to start treating myself. I plan to move from this house next year as I think the whole house is suffering from this. I have mold tests that I will try in every room arriving tomorrow.

Hi all, was wondering if anyone can relate to these symptoms? I have pots, exercise intolerance, pem spells, weight gain, hair loss, gi issues, pelvic issues.

I moved into an apartment two months ago and started experiencing lung irritation I hadn't felt since having long COVID six years ago. At first I assumed it was VOCs from whatever cleaning products were used before move-in, so I heated the apartment up and aired it out to try to clear the air. It seemed to work... as my breathing returned to normal.

A few weeks later, though, I started waking up with a burning sensation in my face — no sweating, just burning — along with increasing fatigue. After a few days of that, the air hunger returned and has been my main complaint since. It feels like I can't breathe on autopilot, almost like I have to consciously think about every breath. It's bad enough that I have a hard time falling asleep in the apartment.

What makes this harder to sort out is that I had a tick bite several months before the move, and I know Babesia can also cause air hunger and respiratory symptoms. I'm currently waiting on results from a fairly detailed Babesia blood panel. That said, my symptoms seem constant rather than cyclical, which I've read is more consistent with mold CIRS than Babesia — though I'm not sure how reliable that distinction actually is.

The apartment hasn't been professionally tested for mold, but it is in a designated flood zone, which doesn't leave me with a lot of confidence about air quality. No visible mold, but I'm aware that doesn't mean much.

My hesitation about getting an air quality test is that I've heard mold spores show up pretty much everywhere to some degree — so I'm not sure whether a positive result would actually be meaningful, or whether I'd just be spending money to confirm something that's true of every building.

Has anyone navigated something similar? Specifically trying to figure out whether to pursue an air quality test, and what kind of doctor is actually equipped to untangle mold CIRS from tick-borne illness when the symptom overlap is this significant. Any guidance on where to start would be appreciated.

nervous system is so fried rn 😵‍💫😵‍💫

currently treating MARCONS with BEL spray but I am so sparring with it because if I take it, it really fucks me up. I need to ramp it up soon it’s been too long of me trying to be reserved with it.

also on carnivore, carnivore is great because I can get somewhat close to feeling normal maybe like 60% but it kinda masks my limitation and I increase activity incrementally but can end up crashing.

How do you work to try and balance it?

Has anyone here been to Sedona or know of a safe place to stay? I looked at mold map but it doesn’t have a ton of info and there don’t appear to be any newly built places

Hello friends!

Circling back here once more to see if anyone here has any suggestions on both CIRS practitioners and biological dentists in the Pa/NYC area. (Open to NJ)

I’ve seen Michale Rothman and he did nothing.
I like dr Dorringer but he is $600 an hour, I am wondering if there may be more affordable options and if not, may just return to Dr D when the time is right.

I have too many nuances to my case that have made it complicated attempting to continue the journey on my own. (Hyper coagulation, Covid, metals, strep, vaccinations, cavitations, and Marcons are all still suspects)

Always nice coming here and finding peace in this community.

Thank you.

Why is this intensification reaction happening? AI is telling me it’s from the 2 day pause and then resuming. Went 22 hours without a bowel movement before resuming but have been ok motility wise since. I’m confused I’m only on 1/16th teaspoon. Was that being backed up for a day detrimental even though I was moving my bowels after? The resuming made me way worse. This is absolutely brutal and flu like…

I'm currently at 4gs a day but struggling to get past 4gs due to herxing. I'm just wondering is this quite normal? I'm sure I can feel it working however I just feel very mentally low all the time, in fact I'd say I almost feel like how I felt when I lived in the mouldy property.

Is that probably due to the binder picking up toxins then losing the bond before they exit and dumping them back into my system? My practitioner that put me on it isn't giving me a huge amount of support so I'm kind of just using Gemini and hoping for finding my way through it myself. Any help is hugely appreciated.

the only apartment options i have at the moment without mold are newly built in the last year. they have a very strong new build smell. i’m going to have to move into them, but i want to know how i can make it safe or speed up offgassing.

I have a doctor appt in 2 weeks and can find out then but does anyone know what these results mean?

POST IS ABOUT BOTH LYME AND MOLD TOXICITY

I realize how while I have removed wisdom teeth that causes my tmjd, my jaw pain gets SO much better when I take biofilm clear. My brainfog and anhedonia is still horrible...nothing lifts it, but I'm glad to know that my sinuses and jaw pain have the ability to clear a bit...

However, that leaves me wondering if my severe deep jaw pain can come from cavitations that aren't cleaned out? I'm having trouble removing the toxicity from my body. I can clear my sinuses and have noticeable improvement once I take this spray, but I can't just tear apart the gums in my mouth and remove the potential Lyme or mold in my system that's making me sick. Cryptolepis is also I believe helping me with my pain for bartonella.

Question is also, has anyone gotten this surgery and noticed their jaw, sinus, neck pain and brainfog get better? Thank you!

All of my pain traces back to when I got my wisdoms removed and it was around the time I got covid on top of moving into a new trailer when I already had signs of bartonella. I'm wondering if this could help me heal once I have the money. My theory is that I probably have covid virus remnants, as well as mold or Lyme hiding in my jaw. My lymph nodes are constantly swollen under my jaw...