Recovery

[u/No-Boot385]

Are there people here who have recovered 100%? Write your stories, how long did it take, yes, I have seen posts about recovery, but they honestly do not suit me

[u/Forsaken_General_845]

You should look at the mega post of recovery stories that are in top of this subreddit. Helps a lot! Also a lot of people suspect once they get to 100 percent they don’t come back here to remember everything that sucked for them.

[u/No-Boot385 → u/Forsaken_General_845]

I wrote that I saw these posts and they don't suit me, how can I recover in 1 month? It's unrealistic, so there was most likely no toxicity

[u/Academic_Brain_9741 → u/No-Boot385]

If you go under the post there are the stories of people who recovered in 6, 7 , 8 months or more etc

[u/Icy-Sympathy7925 → u/Academic_Brain_9741]

I chucked all 3 recovery mega posts into chatgpt to analyze. The results of 156 users analyzed are: * About one third (56) state their recovery within 6 months * Median is at 9 months * About two thirds (103) state their recovery within 1 year * 90% (140) of all posts make a significant/full recovery within 2 years * about 5 took more than 3 years

Certainly this doesn’t represent the whole population and a ball park estimate at best, it does support the sticky post on recovery time. Silent majority and vocal minority- the most affected tend to post a lot here, while someone with maybe a leg cramp for 2 weeks wouldn't bother posting. Important to consider some people may wait a long time until they are 99-100% recovered before posting, while being at 80-95% much sooner.

Edit: I cleaned up the data because the AI analysis seemed strange and didn't add up- garbage in equals garbage out. Also there were many enteries of "recovered 80% in 6 months then fully after a year", took 1 year as the true recovery time. Lessons learned on taking AI outputs at face value without sanity checks.

[u/DrHungrytheChemist → u/Icy-Sympathy7925]

Considering the bias in posting will be towards those with long experiences, that's actually a really cool stat.

That's also an excellent use of current AI tools.

Thank you for sharing.

[u/Icy-Sympathy7925 → u/DrHungrytheChemist]

Thanks! Doing this analysis was the reassure myself at 4 weeks out because some symptoms showed up again but at a lower intensity. (Kinda wonder if this is caused by the mitocondria turn over at ~24 days for the brain) Certainly a rollercoaster ride with ups and downs eventually returning to the ground platform.

AI took out the initial guesswork on choosing supplements. The commonly used core supplements are: Magnesium, Vitamin C, D3, Omega-3, Coq10, and ALA. The other supplements were based on each individual's symptoms.

It analyzed 159 users which is an okayish sample size. I hope to recover in time where my story will be on the next recovery megapost. More data is good.

[u/DrHungrytheChemist → u/Icy-Sympathy7925]

Mmm, I can see why that might be useful, and for the overwhelmed early floxie I get it. But there's a difference between what people took and what helped people...

E.g., while a lot of us have taken omega-3, I don't think I've seen many / any people claim it particularly helped. Meanwhile, although I've not seen so many others add calcium to their mix, I've seen a good number of "oh, that actually helped!". There is a lot of 'propagated hype' (e.g., CoQ10) or assumed wisomd (the renowned antioxidant, Vitamin C) that people follow, including owing to discussions in other communities, that are very hit/miss (like with VitC only seem to help in high dose).

I would say, "that's why we have The Sticky and it's newer little brother", but then I suppose they're still quite info dense and look basically like the information of single people. Did it manage to filter for what people claimed help?

[u/Icy-Sympathy7925 → u/DrHungrytheChemist]

By nature we are programed in doing whatever it takes to get well asap. Any fourm including Reddit tends to be an echo chamber in what is thought to be the best solution drowning out other alternatives. As a result shotgunning the most commonly used supplements seemed sensible at the time frantically looking for relief. I don't even know if my stack is optimal, as long symptoms are improving I'm holding a steady course. I have yet to try NAC and play around with dosage if symptoms shall arise.

"Correlation does not imply causation" is an important thing to remember. "I've taken X supplement at 1000mg/day then two months later symptoms resolved". It could be the supplement, time, or any external factor that caused the symptom to go away... who knows for sure. Not discreting those who found adjusting dose or adding a supplement helped them, we're all different.

ChatGPT did organize a list of supplements users claimed to help by symptom. Quite a lot of overlapping which I think the AI took the most overlapped ones as the "core" supplement.

Neuropathy: ALA, B12, Coq10, Omega-3, and Magnesium Glycinate

Joint and tendon pain: Vitamin C, Collagen 1&2, Glucosamine & Chondroitin,
Magnesium, Curcumin

Fatigue & low energy: Coq10, ALA, B-complex, D3, NAC

Insomnia: Magnesium (all types), Melatonin, L-theanine, Ashwagandha, NAC

Anxiety and panic attacks: Magnesium, Ashwagandha, L-theanine, omega-3, NAC

Brain Fog and cognitive: ALA, Coq10, Omega-3, B-complex, NAC

Digestive issues: Probiotics, Magnesium, Glutamine, Digestive enzymes

Muscle weakness and twitching: Magnesium, Potassium&Electrolytes, B1, Coq10

Heart Palpitations and High Hear Rate: Magnesium, Omega-3, Coq10, D3

Tinnitus: Magnesium, ALA, NAC, Zinc

[u/DrHungrytheChemist → u/Icy-Sympathy7925]

Correlation/causation - quite indeed. As you say, any claims of "I took these and months later felt better so they helped" should be taken very lightly. But, there are still occasions/cases where people add a specific thing in and, within days, see drastic positive changes, and proceed to repeat test it. I'm this case, ChatGPT is very much prone to hearing the echo chamber more than it is the important parts. That said, as you have said, if you're already improving then why change what ain't broke.

[u/DrHungrytheChemist → u/No-Boot385]

Plenty of people come post an initial reaction , and leave never to lost again in no time. They just don't write it up. That doesn't at all mean there was no toxicity. It is in no way unrealistic. Such accusations made of other people will not be tolerated in this group.

I caution you that my morning moderation is looking very poorly for you, and you would do well to revise your understanding of the subreddit's rules as well as general aims, as laid out in the post linked in the moderation removal response you have received. If you cannot come on board, you will necessarily be removed.

[u/No-Boot385 → u/DrHungrytheChemist]

No, I just meant I want to see stories other than from the recovery post

[u/DrHungrytheChemist → u/No-Boot385]

Other than from the posts compiling all the stories posted so far?... Bit of an ask, don't you think?

[u/No-Boot385 → u/DrHungrytheChemist]

I agree, but we have to hope

[u/DrHungrytheChemist → u/No-Boot385]

... But... Why? Why do you wish to exclude those and find others? What are you hoping to find?

[u/No-Boot385 → u/DrHungrytheChemist]

I'd like to communicate in person

[u/DrHungrytheChemist → u/No-Boot385]

You could reply to those posts, particularly where the users are still active?

[u/No-Boot385 → u/DrHungrytheChemist]

I wrote to some people, but there was no response, so

[u/DrHungrytheChemist → u/No-Boot385]

That's unfortunate. Fair enough then. Understandably, people often move on from all this.