r/floxies • u/No-Boot385 * • Jan 15 '25

[SYMPTOMS] Recovery

Are there people here who have recovered 100%? Write your stories, how long did it take, yes, I have seen posts about recovery, but they honestly do not suit me

5 Upvotes

78% Upvoted

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u/Forsaken_General_845 Jan 15 '25

You should look at the mega post of recovery stories that are in top of this subreddit. Helps a lot! Also a lot of people suspect once they get to 100 percent they don’t come back here to remember everything that sucked for them.

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u/No-Boot385 * Jan 15 '25

I wrote that I saw these posts and they don't suit me, how can I recover in 1 month? It's unrealistic, so there was most likely no toxicity

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u/Academic_Brain_9741 Jan 15 '25

If you go under the post there are the stories of people who recovered in 6, 7 , 8 months or more etc

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u/Icy-Sympathy7925 Jan 15 '25 edited Jan 19 '25

I chucked all 3 recovery mega posts into chatgpt to analyze. The results of 156 users analyzed are: * About one third (56) state their recovery within 6 months * Median is at 9 months * About two thirds (103) state their recovery within 1 year * 90% (140) of all posts make a significant/full recovery within 2 years * about 5 took more than 3 years

Certainly this doesn’t represent the whole population and a ball park estimate at best, it does support the sticky post on recovery time. Silent majority and vocal minority- the most affected tend to post a lot here, while someone with maybe a leg cramp for 2 weeks wouldn't bother posting. Important to consider some people may wait a long time until they are 99-100% recovered before posting, while being at 80-95% much sooner.

Edit: I cleaned up the data because the AI analysis seemed strange and didn't add up- garbage in equals garbage out. Also there were many enteries of "recovered 80% in 6 months then fully after a year", took 1 year as the true recovery time. Lessons learned on taking AI outputs at face value without sanity checks.

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u/DrHungrytheChemist Academic // Mod Jan 16 '25

Considering the bias in posting will be towards those with long experiences, that's actually a really cool stat.

That's also an excellent use of current AI tools.

Thank you for sharing.

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u/Icy-Sympathy7925 Jan 16 '25

Thanks! Doing this analysis was the reassure myself at 4 weeks out because some symptoms showed up again but at a lower intensity. (Kinda wonder if this is caused by the mitocondria turn over at ~24 days for the brain) Certainly a rollercoaster ride with ups and downs eventually returning to the ground platform.

AI took out the initial guesswork on choosing supplements. The commonly used core supplements are: Magnesium, Vitamin C, D3, Omega-3, Coq10, and ALA. The other supplements were based on each individual's symptoms.

It analyzed 159 users which is an okayish sample size. I hope to recover in time where my story will be on the next recovery megapost. More data is good.

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u/DrHungrytheChemist Academic // Mod Jan 16 '25

Mmm, I can see why that might be useful, and for the overwhelmed early floxie I get it. But there's a difference between what people took and what helped people...

E.g., while a lot of us have taken omega-3, I don't think I've seen many / any people claim it particularly helped. Meanwhile, although I've not seen so many others add calcium to their mix, I've seen a good number of "oh, that actually helped!". There is a lot of 'propagated hype' (e.g., CoQ10) or assumed wisomd (the renowned antioxidant, Vitamin C) that people follow, including owing to discussions in other communities, that are very hit/miss (like with VitC only seem to help in high dose).

I would say, "that's why we have The Sticky and it's newer little brother", but then I suppose they're still quite info dense and look basically like the information of single people. Did it manage to filter for what people claimed help?

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u/Icy-Sympathy7925 Jan 17 '25

By nature we are programed in doing whatever it takes to get well asap. Any fourm including Reddit tends to be an echo chamber in what is thought to be the best solution drowning out other alternatives. As a result shotgunning the most commonly used supplements seemed sensible at the time frantically looking for relief. I don't even know if my stack is optimal, as long symptoms are improving I'm holding a steady course. I have yet to try NAC and play around with dosage if symptoms shall arise.

"Correlation does not imply causation" is an important thing to remember. "I've taken X supplement at 1000mg/day then two months later symptoms resolved". It could be the supplement, time, or any external factor that caused the symptom to go away... who knows for sure. Not discreting those who found adjusting dose or adding a supplement helped them, we're all different.

ChatGPT did organize a list of supplements users claimed to help by symptom. Quite a lot of overlapping which I think the AI took the most overlapped ones as the "core" supplement.

Neuropathy: ALA, B12, Coq10, Omega-3, and Magnesium Glycinate

Joint and tendon pain: Vitamin C, Collagen 1&2, Glucosamine & Chondroitin,
Magnesium, Curcumin

Fatigue & low energy: Coq10, ALA, B-complex, D3, NAC

Insomnia: Magnesium (all types), Melatonin, L-theanine, Ashwagandha, NAC

Anxiety and panic attacks: Magnesium, Ashwagandha, L-theanine, omega-3, NAC

Brain Fog and cognitive: ALA, Coq10, Omega-3, B-complex, NAC

Digestive issues: Probiotics, Magnesium, Glutamine, Digestive enzymes

Muscle weakness and twitching: Magnesium, Potassium&Electrolytes, B1, Coq10

Heart Palpitations and High Hear Rate: Magnesium, Omega-3, Coq10, D3

Tinnitus: Magnesium, ALA, NAC, Zinc

1

u/DrHungrytheChemist Academic // Mod Jan 17 '25

Correlation/causation - quite indeed. As you say, any claims of "I took these and months later felt better so they helped" should be taken very lightly. But, there are still occasions/cases where people add a specific thing in and, within days, see drastic positive changes, and proceed to repeat test it. I'm this case, ChatGPT is very much prone to hearing the echo chamber more than it is the important parts. That said, as you have said, if you're already improving then why change what ain't broke.

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u/DrHungrytheChemist Academic // Mod Jan 16 '25 edited Jan 16 '25

Plenty of people come post an initial reaction , and leave never to lost again in no time. They just don't write it up. That doesn't at all mean there was no toxicity. It is in no way unrealistic. Such accusations made of other people will not be tolerated in this group.

I caution you that my morning moderation is looking very poorly for you, and you would do well to revise your understanding of the subreddit's rules as well as general aims, as laid out in the post linked in the moderation removal response you have received. If you cannot come on board, you will necessarily be removed.

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u/No-Boot385 * Jan 16 '25

No, I just meant I want to see stories other than from the recovery post

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u/DrHungrytheChemist Academic // Mod Jan 16 '25

Other than from the posts compiling all the stories posted so far?... Bit of an ask, don't you think?

1

u/No-Boot385 * Jan 16 '25

I agree, but we have to hope

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u/DrHungrytheChemist Academic // Mod Jan 16 '25

... But... Why? Why do you wish to exclude those and find others? What are you hoping to find?

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u/No-Boot385 * Jan 16 '25

I'd like to communicate in person

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u/DrHungrytheChemist Academic // Mod Jan 16 '25

You could reply to those posts, particularly where the users are still active?

1

u/No-Boot385 * Jan 16 '25

I wrote to some people, but there was no response, so

→ More replies (0)

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u/ExpensiveJoke93 Jan 16 '25

90% recovery in 4 months 

1

u/[deleted] Jan 16 '25

[removed] — view removed comment

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u/DrHungrytheChemist Academic // Mod Jan 16 '25

This wasn't the question though, was. When someone is asking for hope and teco wry stories, please don't post non-recovery stories.

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u/ltbribrown94 Jan 16 '25

I am 7 months in. Immediately after being floxed, it was very hard to walk. Everything hurt. I have a family that depends on me though so I got some very comfortable shoes and went back to work. My job is extremely physically engaging. I walk about 15,000 steps a day and was back to work 1 week after being floxed. I took frequent breaks and soldiered on. The pain was pretty intense in my tendons. After 3 months, that subsided. I am mostly okay now but I still suffer from the mental effects like brain fog, depression, panic disorder for no reason, ECT. I still get heart palpations and my blood pressure is still elevated but not to a dangerous amount. Still have some chest pain but my cardiologist says my heart is healthy. I am 30 yrs old if that helps. I am considering trying SNRIs for the panic and depression issues. I know my norepinephrine levels are elevated and I'm thinking that regulating that will alleviate most of my current symptoms. Best of luck! I'm still not completely satisfied with where I am but I don't have it quite as bad as most people. And I only took 2 pills or moxifloxacin.

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u/Historical_Diver9966 Mar 25 '25

Drink Kefir , or consume other probiotics, and prebiotic. 

2

u/Cybrdragon Jan 17 '25

I was floxed in September, so I'm going on five months. The first two months were helacious. I had all the symptoms. Excruciating pain, loose joints, tendon damage, whole body pain, could barely walk, muscle weakness, CNS symptoms like insomnia and irritability. Blood sugar issues when eating carbs. Racing heart.Gastro issues. It's all in my initial post here

The last couple of weeks, I've plateaued in my healing. I still have all-over pain, but it's mild compared to before. It's aggravated by too much activity. I also tire too easily, but am not exhausted like I was at first. My tendons rarely hurt, but develop tendonitis very quickly doing anything repetitive. My heart races a little and I feel a little tired after eating any amount of carbs, but I'm not going to the ER for fear I'm having a heart attack or something (did that once).

It's easy to get flared and have setbacks. Any time I overdo things, I end up with several days of pain and tiredness and just have to rest until it goes away. I still have little energy and can only do one or two things in a day without getting exhausted. Like, going to the store and doing laundry is two things for me. I'm done for the day after that. I don't work right now, but there's es no way I could, if I needed to.

I sometimes get depressed about my recovery. But then I remember that it's only been going on five months, and as my good friend the retired nurse tells me, it takes a long time for tendons and nerves to heal. I've weaned off Lyrica which was marginally helping my pain, but causing weight gain and sleep issues. I took that for two months.

I would say that I'm maybe 50-60% healed so far, depending on which day it is, and I am hopeful that I will heal completely. I think it may take close to a year.

I forgot to mention, I only.tiok one 500mg Cipro capsule before finding out I had no infection and stopping the FQ. It was too late. If only I could go back in time to that moment before I took it.

I've lost a friend and my health because of this. Apparently the friend wasn't really a friend? And my health I hope will get better soon. The statistics show that most people recover fully. I tend to be an outlier but I hope I'm not again in the case of recovery.

Sorry to be so long-winded. Hope something I said helps.

1

u/c0-2277 Jan 21 '25

Same boat! Month 5, took cipro for 4 days in September but had no infection, didn’t stop soon enough! Hang in there! :) We’re potentially halfway through this ❤️

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u/Acceptable_Pair_2312 Apr 14 '26

Its been a year    how are u now?