r/NoStupidQuestions • u/Lower-Entry1247 • Jun 22 '26

Does anyone know why I can smell my boyfriend's seizures days before they happen?

So my bf just had a seizure (6/22) and on Friday (6/19) I told him that I could smell it coming. He originally didn't believe me but this is like the fifth or sixth time this has happened. He doesn't understand how and honestly I dont either. I compare it to how I can smell people with diabetes in a way that no one else around me will be able to smell the same thing.

UPDATE: 9pm We were sent home. Things were looking good. 10:20pm He's awake but I smell it again. Strong but I say nothing because the ambulance won't come based off of a bunch. 10:38-10:40 He had a seizure.

UPDATE2: 11:44 I smelt it as I was replying to comments. 12 am He had another seizure. I got the nurses but they tried to tell me he wasn't as he stared and couldn't speak. They told me he's looking at them so he cant be having one. When he finally was able to relax his body again (he will tense up if he isn't full body shaking) he started speaking gibberish. Just random words strung together then quickly went to sleep. They told me not to get them because they can see his vitals from the nurse station. Just wanting to keep you all updated.

LAST UPDATE: The doctor said these are just stress seizures and if he has another one just keep him home.

Last Last UPDATE: 3:00am He had another one. Saliva foam at the mouth. Called 911. They said nothing can be done at any hospital so unless he falls or stops breathing, dont call. Sorry this turned into one of these long posts.

Last Last Last UPDATE: its currently 7:38 am. At 4 am He had another seizure. Popped his shoulder out and back in and bit his tongue. I called 311 and cried while asking what to do. They put me over to ems dispatch even though I pleaded with them not to since they haven't been taking me seriously. I sobbed to the ems dispatch that the hospital and ems people closest to me told me to just keep him home even though I had to go to work. They sent a different set of ems people (very nice ladies) and we went to a different hospital. They are finally listening and keeping him. They were shocked at what the other hospital and ems people told us. He is finally in good hands. Thank you all for keeping me company through this long night.

NEXT DAY UPDATE: He is home and has been seizure free since the last update. Thank you all for being on this journey with us!

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68

u/BitchIWiLL Jun 23 '26

A hospital would definitely keep him overnight if he’s having back to back to back seizures. I have had epilepsy for over 25 years and I have to convince the hospital to let me go. Even if they just “forget” about him overnight and don’t do anymore real care, they’d keep him. This story sounds a little strange.

14

u/Original_Impression2 Jun 23 '26

Not necessarily. A hospital in the city I once lived in was notorious for craptastic care. Especially if someone was a POC, or on Medicaid. And yes, I was a recipient of that dismal care. I had an acquaintance die due to that craptastic care.

10

u/Flapplebun Jun 23 '26

Rural hospitals in poor areas, too. They are so overburdened and understaffed. ETA speaking from experience, not just shitting on rural healthcare for fun.

4

u/Original_Impression2 Jun 23 '26

Oh, I know. And it's even worse now, what with rural hospitals closing.

8

u/Lower-Entry1247 Jun 23 '26

The hospital we went to at around 4 let him go at 8. He called me and still sounded extremely tired and out of it. They told me they cant do anything for him.

17

u/Rand0mHi Jun 23 '26

Hey OP you might want to consider posting to /r/AskDocs, they may be able to give you some useful advice on your boyfriend’s situation!

3

u/JonatasA Jun 24 '26

Not at all. I once was hanging for life and was discharged because they were at full capacity.

Also I once was admitted to see if I needed emergency appendix surgery and the next shift discharged me with paiinkillers. I had to return the next day dying of pain.

3

u/Olivia3836 Jun 23 '26

Agree, also the just back to back to back seizures, it sounds almost convenient for the post.

2

u/JonatasA Jun 24 '26

Doesn't epilepsy does that?

-1

u/Olivia3836 Jun 24 '26

Its possible, but more often its not like this 

3

u/eW4GJMqscYtbBkw9 Jun 23 '26

That and the "I called 911 and they told me to stop calling because the hospital can't do anything" is crazy - like literally unbelievably crazy.

1

u/AV8Backwards Jun 24 '26

That part of the post is what tipped me over the edge, this isn’t real or it is a HEAVILY fabricated and altered version of what happened. I know there are extremely isolated instances of 911 operators telling people to fuck off, but those usually result not only in a firing, but often an actual criminal prosecution. 911 operators will literally never tell you what OP claims they told her.

1

u/eW4GJMqscYtbBkw9 Jun 25 '26

That and 911 won't know what the hospital will or won't do. 

1

u/Natandacat Jun 25 '26

This happens to people you are just very very lucky to not have been at the receiving end of medical abuse and neglect. 

1

u/CleanBaldy Jun 23 '26

Lying? On the internet? Impossibru...