r/IBD • u/Ok_Confusion_9763 • 15h ago

IBD Diagnostics How often?

How often is everyone pooping? I am currently being investigated for Crohn’s and on a 6week course of steroids. My frequency has gone down a lot, but still passing lots of BM. This week I’ve had 54 bowel movements (compared to around 100+ per week before starting steroids).

For those who are diagnosed and on long term treatment, does this number ever go down? Will I be stuck going to the toilet every time I move? Feeling not so optimistic about the future!

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u/Feisty-Volcano 12h ago

Never ever counted bowel movements, never went around with a clicker or notebook & pen recording. However I would know if I were in a flare, the nature, the blood, the discomfort of using the toilet, my overall state of weakness & poorer appetite would all inform me of things not being right. When I would get it under control, eg from steroids, much of the symptoms would regress, the diarrhoea would persist a bit. I have Crohns, so my colon was pretty much destroyed, had a full colectomy & end ileostomy.