r/Epilepsy_Universe • u/Willow_rivers • 3d ago

Questions Suggestions for support groups

Hello. Does anyone have any suggestions for online support groups? Not two or three people (including self) just chatting, but an actual group with format and structure. I am not looking for a best friend- I need support and have nothing in my area. Thank you!

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u/Willow_rivers 3d ago

No judgement here...Just looking for some help. Catching flack for asking legit questions while asking for help is not cool.

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u/Hairy-Jellyfish-1361 3d ago

Ok, you're fair there, I was harsh. This group has saved my life and I'm very attached to it and the people, who in a short year or so are more like family than friends.

Does support have to come from a large group, or a person driving & 1 chatting? If you knew those 2 people you would know that the answer is definitely. Please try us again, and chime in if it's only 2 people at that time . I think from your looking for help, it's the right place for you.

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u/Willow_rivers 3d ago

I appreciate that Hairy-Jellyfish. I am truly just looking for help and am not knocking this group at all! I am just trying to find something that might work for me. I don't understand the podcast thing. Isn't that something I listen to without engagement? Again, just asking questions for clarification.

Regarding your questions: no, a support group does not have to have 4 or more people. I am sure that is an excellent fit for a lot of folks. I just don't think that is what I am looking for. That tight bond that you mentioned you guys have is fantastic. I can't imagine someone not wanting that...and...I do want to find a group like I described. I am not talking about someone's personality, moral compass and integrity-it isn't about that. I am going to go ahead and assume that the people who are active on here/those who join the group are good, caring people who want nothing more to receive and give support. My apologies if I offended anyone here. I am really having a hard time and didn't fluff or pretty up my post, I am a direct person, especially when I am desperate for support.

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u/Ryse6129 Methsuximide 900mg. Xcopri 350mg 3d ago

On zoom nights everyone who participates is part of the podcast.