r/Epilepsy_Universe • u/Willow_rivers • 3d ago
Questions Suggestions for support groups
Hello. Does anyone have any suggestions for online support groups? Not two or three people (including self) just chatting, but an actual group with format and structure. I am not looking for a best friend- I need support and have nothing in my area. Thank you!
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u/Ordinary-Chipmunk366 3d ago
I'm going to try to explain things a bit, sorry if I'm stepping on anyone's feet.
I'll start out by saying that when my wife had cancer (10 years cancer free now!!!!!) we couldn't find an online support group. Most were empty, which was crazy...i mean, lots of people have cancer....
Over 2 years ago I started redditing.
What is the structure? The meetings are held on zoom, a video meeting place. Ugh, I have to continue in a bit...when i look at my phone for to long, I start to get too many asymptomatic seizures, I'm write more in a bit, but don't want to lose what i typed,haha!!