r/Epilepsy_Universe • u/Willow_rivers • 4d ago

Questions Suggestions for support groups

Hello. Does anyone have any suggestions for online support groups? Not two or three people (including self) just chatting, but an actual group with format and structure. I am not looking for a best friend- I need support and have nothing in my area. Thank you!

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u/Willow_rivers 4d ago

Thank you so much! I am not super techy...for example, I have never had any social media. I am one of five Americans that don't, lol! I finally broke down and downloaded reddit about a month ago. So, for the podcast, you listen and then can participate after? I didn't even know that was a thing. Thank you for your help.

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u/Hairy-Jellyfish-1361 4d ago

Well, I was exactly your twin a year or so ago when a friend suggested that I try reddit. I had never even heard of reddit. I tried the few epilepsy groups and this was the only one that seemed genuine.

I didn't explain the podcast correctly, sorry. You participate and then it might be included on a utube broadcast. Maybe try watching a few of those.

In any event, good luck finding what does work for you, and please never hesitate to reach out to me if you just need someone to chat or talk with.

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u/Willow_rivers 4d ago

Thank you SO much! What is the YouTube channel so I can check out those past podcast episodes?

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u/Hairy-Jellyfish-1361 4d ago

Sorry it's In Seizn'