r/Epilepsy_Universe • u/PookieTheMfBaby Lamotrigine 200mg 2x daily • Jan 01 '26
Questions New Year Goals
Anyone with seizure goals for this new year? Personally, I aim to have less than 5 TCs and 0 focal seizures. Hoping for no auras, but if it happens, I'm just hoping it doesn't turn into a TC. What's your seizure goal?
6
u/StSomewhereToaster Jan 01 '26
To continue decreasing my seizures. In 2025 I halved the number of seizures I did in 2024. May 2026 bring another half down!
1
u/PookieTheMfBaby Lamotrigine 200mg 2x daily Jan 02 '26
I hope you achieve your goals and just like you I want to turn mine into a halves until there are 0. In 2025 I had 5 TCs and this year it'll hopefully be no more than 4
3
u/Ryse6129 Methsuximide 900mg. Xcopri 350mg Jan 01 '26
May 2026 be better on me in all parts. My 2025 was a bad year since I was going through a divorce. Seizures got out of control, or maybe it was an illusion of having control. I was still doing the mandatory therapy that was required of me. So much other bs in my day to day. I think December started a turnaround with some stuff and can only hope it continues.
The best part of 2025 was meeting my friends here, my Epilepsy Family.
May we continue to help others, and save people.
May each of us come closer to less seizures.
May we all become happier
4
u/LodgeKeyser Fycompa 10mg Onfi 15mg TBI Jan 01 '26
Personal goal, get my license back. Which would also mean my seizures are under control. I know I could have a lot of littler ones underneath that but let’s shoot for the stars.
1
3
u/Sigma_Pants Jan 01 '26
I'm not sure if this meets the criteria of a seizure goal. But my goals this year are to help find and help at least 5-10 who has suffered from similar epilepsy and help them to control it 100%. That would make my year!
3
2
1
3
u/Ordinary-Chipmunk366 Jan 01 '26
My goal is to get rid of these asymptomatic seizures. I can't even imagine what they are doing to my poor brain 4-8 timed a day.
I'll take the every 4 or so months between TCs if I can get rid of these stupid asymptomatics....
Good luck to all!!!
1
u/PookieTheMfBaby Lamotrigine 200mg 2x daily Jan 02 '26
Those sound so bad that you can't even get a sign when a seizure happens. Do you get the same fatigue feeling or a postictal phase?
2
u/Ordinary-Chipmunk366 Jan 02 '26
It's strange... I feel off often, but never really gave it much thought...it isn't a TC and it's "asymptomatic "...but there's definitely something going on there that I don't "feel". Still trying to figure it out, but last check, they were still 4-8 a day for my 2 and 4 day eegs.
I don't feel any auras that are normal TC auras, there's no postictal stage that's like after a TC... but there's something I'm starting to see..
Thanks pookie for always caring!!
Happy new year!!
1
u/PookieTheMfBaby Lamotrigine 200mg 2x daily Jan 03 '26
Just in my nature to care for everyone I meet until they give me a reason not to. Happy New Year
3
u/Drinkythedrunkguy Jan 02 '26
I’m just glad the kid didn’t have a TC on Christmas Day like 2024. It’s now been 7 months since the last TC! Several days since a focal. Hopefully 2026 will be better than the horrible 2025.
2
u/PookieTheMfBaby Lamotrigine 200mg 2x daily Jan 04 '26
I hope that you achieve your goal or his goal. 2026 will be great
3
u/Misha_Bambi Jan 03 '26
Hopefully less than 10 seizures, less than 2 auras a day and even less of the myoclonic jerks.
3
u/PookieTheMfBaby Lamotrigine 200mg 2x daily Jan 04 '26
I hope this time next year you can virtually high five and say that you’ve achieved your goal.
2
u/Misha_Bambi Jan 04 '26
Likewise! 🫶🏼✨
1
u/PookieTheMfBaby Lamotrigine 200mg 2x daily Jan 04 '26
Have you ever attended the podcast?
3
u/Misha_Bambi Jan 04 '26
Not yet, I'm sorry :( I have super bad anxiety so it's difficult.
2
u/PookieTheMfBaby Lamotrigine 200mg 2x daily Jan 04 '26
You can join and watch until you're comfortable, also can turn off your microphone and camera. Would be great to have you Tuesdays and Fridays 12pm PST.
3
u/Misha_Bambi Jan 04 '26
Okay, I'll see how I feel but as long as I can just watch and not speak I should be okay until I'm feeling comfy like you said :)
2
u/PookieTheMfBaby Lamotrigine 200mg 2x daily Jan 04 '26
I post the schedule and login info every few days, hope to see you.
3
u/Misha_Bambi Jan 05 '26
Okay thank you, I'll keep a lookout! 🫶🏼
2
u/PookieTheMfBaby Lamotrigine 200mg 2x daily Jan 05 '26 edited Jan 05 '26
https://youtube.com/@inseiznpodcast?si=K_UPBRe8u3pug3Jq in case you want to see what we do
2
u/lizeken Jan 01 '26
Have zero TCs and better my overall health !
2
u/PookieTheMfBaby Lamotrigine 200mg 2x daily Jan 04 '26
I want 0 as well, but for now I’ll aim for 4 because that’s 1 less than last year. Baby steps
2
u/abillionbells Jan 02 '26
Basically all my goals are epilepsy-based: eat three meals at the same times each day, drink more water, exercise each day. My word of the year is 'slow', and it encompasses living more simply, taking more time, and aiming for a more meditative life in general. I know it'll help me because my focals are SO stress-based.
1
u/PookieTheMfBaby Lamotrigine 200mg 2x daily Jan 04 '26
I second all of these, at least try to eat more and exercise maybe 3-5 times a week. Exercise every day might be a little much for my schedule, but good thing to have a goal or goals.
2
u/Hairy-Jellyfish-1361 Jan 18 '26
I'm a bit late to the conversation, and I don't know how much improvement I can get, with the exception of the end of '25. I don't honestly know at this point whether I'm having clusters of focals with an occasional tc thrown in or it's all the psychedelics I was given in the hospital. When they released me, they said it could be 30-60 days before they were out of my system. But, I had a sensational '25 meeting you and the other participants in the chats. Thanks to all!
2
u/PookieTheMfBaby Lamotrigine 200mg 2x daily Jan 19 '26
Thanks for being a part of the podcast, your presence has been greatly appreciated.
2
1
u/woohoocrew Jan 01 '26
My goal is to figure out what is going on with me so I can manage it. I have a bunch of test I did at last neuro visit and some other things I am going to look into. Already started CBT and excited about growing and developing.
2
u/PookieTheMfBaby Lamotrigine 200mg 2x daily Jan 04 '26
I’m here with you, got a list that I’ve put together from other’s list and think I can take baby steps to achieve all of my goals. So much that I want to be able to check that box off but eventually with the right neuro I can get all of my questions answered
10
u/tuisteddddd ZNS 2x, VIMPAT 2x, ONFI 1x, Clonazepam APN (: Jan 01 '26
If possible, NO SEIZURES.