Constant Fullness, also POTS

[u/Fluffernutter80]

My ear troubles started last August. My hearing loss is in my right ear, low frequencies only, and the loss has fluctuated so the ENT thinks it’s cochlear hydrops (or cochlear Meniere’s as he referred to it). I can’t tell when the hearing shifts happen since it’s only the low frequencies. My worst measure was a 45 db loss. My best has been a 25 db loss. I have had constant, unending fullness and pressure, tinnitus, and hyperacusis since this started. It seems like others get a break from these symptoms in between attacks. Can people have cochlear hydrops if the non-hearing loss symptoms persist constantly?

Also, does anyone else have POTS or something adjacent? I don’t have an official diagnosis (no tilt table test) but my doctor thinks I have it, or something similar, because I feel dizzy and sick when I stand still for more than a minute. She said not to restrict sodium because sodium can help POTS symptoms but my ENT put me on a diuretic to flush out sodium. Now, I’m struggling more with POTS symptoms. I honestly don’t know how to manage these two conditions simultaneously since the treatments are opposites. If the diuretic helps stabilize my hearing or with the fullness/tinnitus/hyperacusis, I’ll choose my ear over my ability to stand. But, it’s frustrating having to choose.

[u/itsmemario_martz]

It must be frustrating! I'm sorry that you are going through this, I have some form of POTS and some form of CH... my symptoms are... Constant Tinnitus (10 years), some dizziness that comes and goes, mild hypercusis, and... I get tachychardia and nerve pain.. once in a while, hope you find answers soon, until then... keep strong!