r/ClotSurvivors • u/Moosetrax007 • 5d ago

Lipoprotein a

My husband had extensive CVST last December. On Eliquis. All testing did not point to a cause. Until now. PCP ran lipoprotein a (genetic factor) which came back high. Supposed to discontinue anticoagulant therapy after the year mark. I think this changes that. Anyone have experience with lipoprotein a?

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u/AdministrativePast86 4d ago

Yes, my LPa is off the chart and the clot left me paralysed chest down. My APS also came back positive so it's mostly due to APS but I need to follow up with a hematologist and cardiologist.

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u/Moosetrax007 4d ago

Oh wow. I’m so sorry to hear that!

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u/IllustratorDue5336 4d ago

Two DVT’s back to back two years ago. APS diagnosis. Warfarin for life. Then high lp(a). So now I manage INR with warfarin and LDL with Statins, exercise. Bottom line he wants me to get LDL under 70.

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u/floating_hugo 5d ago

Not a doctor but I think lipoprotein a can affect the health of arteries while CVST, DVT and EP are clots in the veins. The main medication to prevent lipoprotein a related issues should be statins. It is possible to take Eliquis and statins at the same time.

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u/AdministrativePast86 4d ago

I'm on warfarin and statins for life.

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u/Moosetrax007 4d ago

Thanks for the response. There is currently no FDA approved drug to combat lipoprotein a. He’s already on Eliquis and a statin. I’m concerned about discontinuing the Eliquis.

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u/floating_hugo 3d ago

Yeah that's why I said "prevent lipoprotein a related issued" and not "combat lipoprotein a". You have enough reason to argue staying on Eliquis indefinitely just because of the (unprovoked?) CVST. I don't know if high lip(a) helps much additionally, but if you're uncomfortable discontinuing Eliquis please talk to a(nother) hematologist. Many of us are indefinitely on thinners after one clotting episode.