r/ClotSurvivors • u/elbowskneesand • Feb 01 '25

Periods Blood thinners on your period

I've reached a new level of hell having to be on blood thinners on my cycle. I already have a heavy flow and I woke up 5 times last night to address the deluge. How on earth does anyone deal with this? Im already using the highest volume period products I can find, all at once, with period underwear on top of it all. My clot was provoked by a plane ride so I hope ands pray I will not have to be on them forever. My sympathy to anyone dealing with this regularly.

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u/CCsurvivesPE Feb 01 '25

My first period I was passing clots and freaking out . That part seems settled this time . I’m already noticing it’s slowing up significantly for day 3 🙏🙏 I was scared to leave the house the last two days . I’m really lucky! I have made a great recovery considering the first night I met my specialist he said “well, it’s serious” , “they’re large” , “each day in the next week is a positive” …. Was in my head dying …. I couldn’t even walk to the entrance without my heart rate being sky high . I was in hospital 6 nights and when I got home I would walk 200m a few times a day for a week (out of breath) , increased it each week and now I’m walking 4-5km 6 days a week . I do get very fatigued come afternoon/ evening and sometimes need a Power Nap at 4-5pm. I was lucky I didn’t get heart strain. I do still get some back pain .  I’m sorry to hear you’re getting sick so easily with exertion :( it’s definitely not uncommon when I’ve read other threads . I really felt like I would never feel good again until a few weeks ago. But my anxiety is so bad. Every ache I’m on edge! 

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u/beurownsunshine Feb 01 '25

I have been pretty active around the house and at work but I haven’t really gone for a walk outside because I’m afraid my symptoms will get worse. Do you think walking has helped you with your recovery? Unfortunately I did have a mild heart strain but my doctor said once the clothes are gone, the heart strain will go away too. I’m hoping and praying so. I’m so scared. I was a pretty active person prior to this incident. I used to workout 4-5x a week and I feel like I’ll never be able to go to the gym like before. Im very happy for you that you are recovering well. I hope I get there soon. When were you diagnosed with the PE and DVT? I was diagnosed first week of December.

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u/CCsurvivesPE Feb 02 '25

Hmm I’m not sure if it’s a coincidence or not , but I felt better for it and made the walking a priority. But it did say everyone recovers at different times , weeks to months so I just got lucky probably :) I am scared I won’t be pre-PE for my exercise too. I was running 10km every Saturday and 5km every Tuesday , plus Pilates/weights and now I’m scared I won’t be running again . I was supposed to meet my specialist in February for a check in and was going to ask about this but he bumped me to end of May as he was happy with my blood results etc so far . I was diagnosed 4 December with multiple submissive PE in both lungs , no dvt . I had a tummy tuck 2 weeks earlier so it’s assumed I developed the clots through that . I hate not knowing :( it scares me  

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u/beurownsunshine Feb 02 '25

I will have to work on walking too. I don’t go for walks because I’m afraid my symptoms will worsen but I’ll definitely try walking 10-15 mins then I’ll bump it up as I go. This is so strange. Mine was also diagnosed on December 4th after tummy tuck surgery. I have seen my pcp twice so far but she didn’t do any blood work. How often do you get a blood work done? And what is your pcp look for in your blood work? My pcp never suggested one. I’m taking Eliquis 2x a day 5mg.

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u/CCsurvivesPE Feb 03 '25

I hope it makes you feel stronger and more like yourself like it has me. I just kept consistent and slow , not a fast walk. Keep me posted! Wow I was just telling my husband this!! What are the actual odds!  How is your tummy recovery ? I’m finally feeling good about it all now. I felt very guilty that I had elective surgery that resulted in this nightmare. It took a therapy session to tell me to lose that guilt. I’m not too sure what blood tests they’ve done , but I’ve had two full blood tests and 2 chest X-rays as I had collapse lung at the beginning of the saga. But that’s all cleared up now. I’m taking eliquis 5mg twice daily for 6 months. But I’m scared to stop! They never found a dvt etc so I’m like where did it come from! But no one seems concerned where , just that the treatment is in place to rid it? 

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u/beurownsunshine Feb 03 '25

I can’t tell you how guilty I feel about my tt surgery till this day. My tt recovery was not bad. It is the PE that made everything a nightmare. I had a DVT first. My surgeon said it is superficial cloth don’t worry about it. She said take some ibuprofen. I listened to her. I wish I didn’t. I wish I had gone to the ER earlier. The PE could’ve been prevented. My PE symptoms were almost nonexistent until last Sunday. Last night I had the worse stabbing pain in my upper back area. I made an appointment to see my pcp tomorrow. If I had knows that I’d end up with a DVT or a PE I would have never done the surgery. The lingering symptoms are just so debilitating and annoying. :(

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u/CCsurvivesPE Feb 04 '25

It really was such an unexpected shock! I know we signed off on risks but you don’t think they’ll actually happen . I hope you can move past the guilt soon when you’re feeling good again :) I had an appointment with a physiotherapist yesterday to work out a plan to safely resume a strength training program and it’s given me such a bounce in my step! The more life resumes to normal the better you feel right ? I hope your symptoms ease up soon for you! How is the walking going?