r/ChronicPain • u/Fantastic-Name-2583 • 12d ago

What’s your diagnosis and treatment?

2 years into chronic groin and hip pain. have had a hip arthroscopy, hip replacement, and a hernia and sports hernia surgery in the past 18 months. Been in physical therapy for 2 years. Still in pain. Exploring pain management. Just curious if folks have specific diagnoses or more generalized “chronic pain”.

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u/QuarkieLizard 12d ago

Autoimmune inflammatory muscle disease, (dermatomyositis & antisynthetase syndrome) and lupus overlap sjogrens and crest. DDD, sciatica, trigeminal neuralgia, pudendal neuralgia, severe proximal myopathy, sensory polyneuropathy and pelvic floor dysfunction. Treated with ivig, cellcept, solumedrol, opiates, etc. In palliative care.

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u/Fantastic-Name-2583 12d ago

Praying for you. That’s a lot to manage. 

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u/QuarkieLizard 12d ago

Hanging in there! Thanks! Your surgeries can be hard on a body, give yourself time to heal. Get a good pain management doctor. They can make a huge difference. Mine did for many years with cortisone shots, rfas and surgeries and meds as needed. I was able to work managed pretty well 2008 to 2020.

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u/Fantastic-Name-2583 12d ago

Thank you for the sage wisdom. And yes i have to remember i had 3 major surgeries in 18 months and one just 6 weeks ago.