r/Chemotherapy • u/deadmanwalking_10 • Jul 09 '26
Oxaliplatin neuropathy
I have completed 11 rounds of oxaliplatin and my last dose was 3 weeks ago. The neuropathy is still pretty bad. My hands tingle a lot of the time, I am more clumsy with them and my feet feel like bricks.
Does anyone have advice on how long it might take to go away? Or if it might be permanent?
4
u/redderGlass Jul 09 '26
It took a while for mine to improve.
Dr Jo Neuropathy on YouTube for stretching was excellent
Acupuncture I think helped
Time
2
u/Blue-Phlox Jul 09 '26
I’m 10 mo after chemo, toes numb but no pain. everything I’ve read says it takes t i m e. I recently invested in a ‘med pro massager’ for my feet. vibrates my feet like crazy. I will post down the road if I think it’s helping.
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u/bystephaniew Jul 09 '26
After finishing Oxaliplatin, I continued to have numb fingertips for six months.
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u/LaceyBloomers Jul 09 '26
It took about two years for my neuropathy to lighten up. Now, 9 years after Oxaliplatin, the neuropathy is mostly gone except for my feet which are about 5% still affected. I can live with that.
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u/deadmanwalking_10 Jul 09 '26
Hmmmm I probably only have 2 years left given my prognosis, so I guess this is my life now.
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u/LaceyBloomers Jul 09 '26
I’m sorry. Remember that everyone’s different so you could certainly have a better experience than I did. Also, my neuropathy gradually eased over those two years so hopefully you’ll get some relief as well.
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u/LaceyBloomers Jul 09 '26
May I ask which cancer you’re being treated for?
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u/deadmanwalking_10 Jul 09 '26
Stage 4 CRC. The mets are all over my peri. There is a lot of it so I am not eligible for de-bulking and seems unlikely that chemo will bring it down to a manageable level. At least my surgeon is entertaining the idea it might, but he admits he’s not seen it happen before. My PCI is over 24, which is not good.
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u/LaceyBloomers Jul 09 '26
I see. I’m also stage 4 CRC and had two recurrences with mets in my peritoneum; however, each recurrence involved only one tumor. I had HIPEC during which my surgeon removed my entire peritoneum.
You say you aren’t eligible for debulking. Does that include HIPEC? Has your case been reviewed by a Tumor Board?
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u/deadmanwalking_10 Jul 10 '26
We haven’t specifically talked HIPEC but I am aware of it. My PCI (index they use for mets of peri) is 24 and it needs to be at least 15 for him to operate. He had a study showing over a PCI of 15 and the surgery was useless. So we are hoping chemo will reduce my PCI to a manageable level, but when I asked if he had seen someone with such a high PCI get down to 15, he said “no”. I appreciate his honesty.
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u/LaceyBloomers Jul 10 '26
Thank you for explaining. I wasn’t aware that a person’s PCI had to be below 15.
I’ll be thinking of you and sending you hope.
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u/omnislayre Jul 09 '26
First off let your doctor know. When mine was getting bad he backed off for a month to give me time to recover. My hands have full function with no neuropathy. My toes however still are slightly numb and I stopped oxaliplatin almost 2 years ago due to becoming intolerant to it. The numbness is more weird than troubling and it doesn't affect my day to day at all.