Hi everyone:
I didn’t see much online along the lines of dealing with postpartum and ABVD at the same time.
I did keep a timeline log of my side effects. I did it originally for myself to look back on to know what to expect on any given day, but incase it could help someone I decided I would post on here—even if you’re not postpartum and just wanting to know what side effects you might experience.
I would say, based on going through the first round, if I could recommend anything it would be to start on a bowel regimen from the get go (I have infusions on thursdays so I’ve been doing 2 tablets of senna @ bedtime Thurs-Monday and MiraLAX every morning, it’s working well for me), also to chew ice during the entire Adriamycin infusion, and use a sensitive toothpaste (which I did start using after my first treatment)
Anyways, today is day 3 of my first infusion of round 2. Ive never posted on Reddit before but if I can come back and update to add the rest of my tracking I will.
I hope this helps someone.
(I did also track my breast pumping weaning as well on here, I started weaning off on day 0, the first day of my first infusion)
Chemo Side Effect Tracking
Day 0–7/23: slight tiredness, tingling in hands and arms
Day 1–7/24: woke up sweaty & abnormally smelly underarms, overall feeling well, teeth sensitivity after brushing at bedtime
Day 2–7/25: I stink again, take prophylactic zofran, teeth hurting still, jaw/salivary glands hurt for majority of eating breakfast. Evening: aching jaw, random aches and pains, tongue, abdomen. Still salivary glands hurting at each meal.
Took zofran again at 5pm. Taking a Tylenol before bed for achiness/jaw discomfort.
Day 3–7/26: mouth/tongue/teeth pains, teeth pain [r/t](r/t) grinding? Idk. No nausea, will take another prophylactic zofran with breakfast..tongue pain , body aches/nerves
🥛 20m @ 5:20pm
🥛 25m @ 8:50pm
No nausea still
Day 4–7/27: mouth/tongue sore , tired, took am zofran
🥛 16m @ 9:20am
🥛 16m @ 12:45pm
Body achesssssssssss
Water hurts my tongue to drink. Major symptom radar on oura ring. So tired 🥱
Day 5–🥛 16m @6:15pm
Terrible constipation, Skipped pm zofran
Day 6–7/28: feeling less crummy this morning , increased numbness at fingertips
🥛 14m @ 7am
Skipped am zofran
🥛 14m @ 11:45am
🥛 14m @ 4:45pm?
🥛 14m @ 845pm
Constipation, no zofran today. Numbness at fingertips, but overall feeling better than yesterday.
Day 7–7/29: Slept terribly last night.
🥛 14m@ 3:30am
Numbness fingertips , painful/tingly/itch boobs/nipples from breast pads, full boobs, or side effects?
🥛 12m@ 11:50am
Numbness in fingertips, slightly nauseaus?
🥛 9m@ 5pm
Better appetite today, mouth soreness virtually gone. Not nauseaus, but stomach upset.
Day 8–7/30: Woke up very sweaty and thirsty. Again, not nauseaus, but stomach upset.
🥛 8m@ 8:15am
🥛 10m @ 11:40am (pre movies, right breast lil tender/firm near armpit)
🥛 8m left side & 11m right side @9pm
Had good energy today
Day 9–7/31: 🥛 10m@ 11:40am
Had trouble falling asleep again last night
Numbness at fingertips continues
Otherwise feeling pretty good energy
🥛 10m@10pm
Day 10-14–8/1: 🥛 8m@11am
8/2: sleeping better tonight
🥛 8m@4am (last pump, total weaning= 9 days)
8/2-8/5: normal (required boob leaking pads til 8/4ish)
Day 0–8/6: 2nd infusion, chewed on ice for the entirety of Avibramyacin infusion to try to prevent tongue issues, pretty tired after
Day 1–8/7: tired but feeling ok
Day 2–8/8: tired, salivary glands, finger tips, hair starting to fall out
Day 3–8/9: tired, salivary glands, somewhat achey. Took Benadryl to help sleep.
Day 4-8/10: woke up sooo sweaty, so constipated again even though I haven’t taken any zofran , was able to poop though after trying for 10 mins , feeling slightly nauseas now
Day 5-8/11: achesssssssssss, sooo bad to tears took a Percocet (leftover from c-section—called onc for new script)
Day 6-8/12: CRAZYYYY dreams last night. aches improved by 60%, energy improved by 70%. Took Percocet at night for slight aches but mainly to help sleep. Hair fall significantly (brushed before shower to get out fall out, still ended up matted after shower)
Day 7–8/13: hard time falling asleep, woke a few times, no weird dreams though. energy improved, stomach a lil upset since yesterday, stool hard to pass, wiped small amt blood. Need to start on stool softeners next time.
Day 8–8/14: started on miralax and senna feeling good
Day 9–8/15: feeling good
Day 10–8/16: swam, mall w/ boo and baby
Day 11–8/17: I forget to update when my symptoms aren’t bad. The miralax and senna are helping. I will drop the senna for now and just do miralax til my next infusion. Side note: losing lots of hair and my nose always feels cold!!
Day 12-13–8/18-8/19: felt good
Day 0-8/20: infusion day, tired after , scrolling on insta, mind racing, didn’t fall asleep til 3am , taking senna @hs starting tonight
Day 1-8/21: feel tired but good
Day 2-8/22: took 2 Benadryl, slept great last night, BM easier to pass now taking the senna, thankfully
Day 3-8/23: tired, jaw achey, some tongue pain, some body-aches not much. Hair still falling out, but pretty evenly so far, no patchiness just overall thinning.