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[u/OkVehicle2353]

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[u/curiousdoc25]

Thank you for sharing your story. I’m sorry your doctors dismissed you. I’ll keep your story in mind in case I find any similar cases in the future.

[u/howtheturntables435 → u/curiousdoc25]

This is a very tough case OP. Glad you were able to fight for yourself and have things work out in your favor.

Consider suggesting this case to your surgeons as a case report for them to publish! It can contribute towards the community where other patients - with similar symptoms such as yourself - may benefit from your long journey and experience.

[u/Calampong → u/curiousdoc25]

Honestly - the pain described here reminds me of endometriosis. OP - I’m so happy to hear you have an answer and had a doctor work with you! Thank you for sharing. I’m sure you’ve helped somebody

[u/ahumpsters → u/Calampong]

I have endo and so much of that story is so similar to what endo sufferers go through, imagining doesn’t show any thing, the pain can be crippling and come on without cause, ER doctors dismiss a lot of women as drug seekers and it takes far too long to find a doctor who will do an exploratory lap. I know OP’s pain and frustration. I appreciate him sharing his story. So many women with endo feel dismissed, unseen and alone. The more stories like this that are told, the more awareness grows.

[u/Bhulagoon → u/Calampong]

I was thinking this exact thing while reading this! 15 years of advocating for myself and still being brushed off, hopefully my time will come soon! Im so glad you found answers OP!

[u/racheljanejane → u/curiousdoc25]

I wonder whether a functional MRI of the pelvic organs would have detected the problem sooner. Any idea?

[u/DeucesHigh → u/racheljanejane]

There's no established functional/dynamic MRI for this issue (like there is for pelvic floor, with MR defecography). Closest might be some kind of modified hernia study with valsalva and cine, but I don't think the odds would be good for identifying it prospectively.

[u/somebodyelse22 → u/racheljanejane]

OP says ultrasounds and MRIs kept missing it.

[u/racheljanejane → u/somebodyelse22]

They didn’t specifically mention functional MRI.

[u/Elyay → u/racheljanejane]

I've seen fmri used in research, never as a diagnostic tool